List of works - Claire Wakefield

"Forewarned and forearmed": Long-term childhood cancer survivors' and parents' information needs and implications for survivorship models of care

scientific article published on 22 September 2016

'What they're not telling you': a new scale to measure grandparents' information needs when their grandchild has cancer

scientific article

A Digital Educational Intervention With Wearable Activity Trackers to Support Health Behaviors Among Childhood Cancer Survivors: Pilot Feasibility and Acceptability Study

scientific article published in 2022

A Study Protocol for the Australasian Oncofertility Registry: Monitoring Referral Patterns and the Uptake, Quality, and Complications of Fertility Preservation Strategies in Australia and New Zealand

scientific article

A randomized controlled trial of a decision aid for women considering genetic testing for breast and ovarian cancer risk

scientific article published on 27 February 2007

A randomized trial of a breast/ovarian cancer genetic testing decision aid used as a communication aid during genetic counseling

scientific article

A study protocol for Truce: a pragmatic controlled trial of a seven-week acceptance and commitment therapy program for young people who have a parent with cancer.

scientific article published on 9 September 2015

A systematic review of psychological interventions for adolescents and young adults living with chronic illness.

scientific article

Acceptability and feasibility of a parent-targeted dietary intervention in young survivors of childhood cancer: "Reboot"

scientific article published on 10 July 2020

Acceptability and feasibility of an e-mental health intervention for parents of childhood cancer survivors: "Cascade".

scientific article

Accommodation in pediatric oncology: parental experiences, preferences and unmet needs

scientific article

Adolescent and Young Adult Cancer Survivors' Experiences of the Healthcare System: A Qualitative Study

scientific article published on 24 July 2017

An exploration of the communication preferences regarding genetic testing in individuals from families with identified breast/ovarian cancer mutations ⬇️

article by Paboda Ratnayake et al published 29 September 2010 in Familial Cancer

Assessment of Psychosocial Outcomes in Genetic Counseling Research: An Overview of Available Measurement Scales

scientific article published on 13 August 2007

Attitudes toward Organ Donation and Donor Behavior: A Review of the International Literature ⬇️

scientific article published on December 1, 2010

Attitudes toward genetic testing for cancer risk after genetic counseling and decision support: a qualitative comparison between hereditary cancer types

scientific article

Barriers and enablers to physical activity and aerobic fitness deficits among childhood cancer survivors

scientific article published on 09 May 2020

Cancer survivorship services for indigenous peoples: where we stand, where to improve? A systematic review

scientific article published on 07 September 2015

Changes in body mass index in long-term survivors of childhood acute lymphoblastic leukemia treated without cranial radiation and with reduced glucocorticoid therapy

scientific article published on 10 November 2016

Childhood cancer survivors' school (re)entry: Australian parents' perceptions

scientific article published on 3 June 2013

Cognitive compensations for blindness in children: an investigation using odour naming

scientific article published in January 2004

Communication and consent: discussion and organ donation decisions for self and family

scientific article published on January 2013

Consensus Among International Ethical Guidelines for the Provision of Videoconferencing-Based Mental Health Treatments

scientific article

Decision Aid for Nutrition Support in Pediatric Oncology: A Pilot Study.

scientific article published on 8 August 2016

Design and Rationale for a Parent-Led Intervention to Increase Fruit and Vegetable Intake in Young Childhood Cancer Survivors (Reboot): Protocol for a Pilot Study (Preprint)

article published in 2017

Design and Rationale for a Parent-Led Intervention to Increase Fruit and Vegetable Intake in Young Childhood Cancer Survivors (Reboot): Protocol for a Pilot Study.

scientific article

Design and rationale for Reboot: A behavioural medicine pilot intervention to increase fruit and vegetable intake in young childhood cancer survivors

Development and Pilot Testing of a Fertility Decision Aid for Young Women Diagnosed with Early Breast Cancer

scientific article published on 6 December 2010

Development and pilot testing of a decision aid for men considering genetic testing for breast and/or ovarian cancer-related mutations (BRCA1/2).

scientific article published in December 2008

Development and pilot testing of two decision aids for individuals considering genetic testing for cancer risk

scientific article published on 23 February 2007

Dietary intake after treatment in child cancer survivors

scientific article published on 17 August 2011

Distress and adjustment among adolescents and young adults with cancer: an empirical and conceptual review

scientific article published on October 2013

Family Communication, Risk Perception and Cancer Knowledge of Young Adults from BRCA1/2 Families: a Systematic Review

scientific article published on 30 June 2017

Family information needs at childhood cancer treatment completion

scientific article

Feasibility of clinical psychosocial screening in pediatric oncology: Implementing the PAT2.0.

scientific article published on 11 July 2016

Fertility concerns among child and adolescent cancer survivors and their parents: A qualitative analysis

scientific article

Further evidence for the co-occurrence of adverse health behaviors among childhood cancer survivors

scientific article

Health Literacy in Adolescents and Young Adults: An Updated Review

scientific article published on 09 February 2016

Hospital-based bereavement services following the death of a child: a mixed study review.

scientific article

Imagining the future in health anxiety: the impact of rumination on the specificity of illness-related memory and future thinking.

scientific article published on 5 February 2014

Improving mutation notification when new genetic information is identified in research: a trial of two strategies in familial breast cancer

scientific article published on 13 September 2012

Issues faced by unaffected men with a family history of prostate cancer: a multidisciplinary overview

scientific article published on 15 May 2008

Men at Increased Risk of Developing Breast Cancer: Language Preferences for Naming a Cancer-Related Mutation

scientific article published on 01 June 2009

Models of childhood cancer survivorship care in Australia and New Zealand: Strengths and challenges.

scientific article

Nutritional interventions for survivors of childhood cancer

scientific article

Nutritional interventions for survivors of childhood cancer.

scientific article

Online group-based cognitive-behavioural therapy for adolescents and young adults after cancer treatment: a multicenter randomised controlled trial of Recapture Life-AYA.

scientific article

Online parent-targeted cognitive-behavioural therapy intervention to improve quality of life in families of young cancer survivors: study protocol for a randomised controlled trial

scientific article

Online prostate cancer screening decision aid for at-risk men: a randomized trial

scientific article published on 25 November 2013

Oral contraceptive use in women at increased risk of breast/ovarian cancer: knowledge and attitudes

scientific article published on 9 September 2011

Paediatric oncology patient preference for oral nutritional supplements in a clinical setting

scientific article published on 10 July 2010

Parent feeding interactions and practices during childhood cancer treatment. A qualitative investigation

scientific article published on 7 January 2015

Parental adjustment to the completion of their child's cancer treatment

scientific article published on 10 December 2010

Parental sleep experiences on the pediatric oncology ward

scientific article published on 5 August 2012

Parental smoking may confer negligible environmental, but significant lifestyle costs to childhood cancer survivors

scientific article published on 23 May 2012

Participation in psychosocial oncology and quality-of-life research: a systematic review.

scientific article

Patient-reported depression measures in cancer: a meta-review.

scientific article published on 30 June 2015

Perceived cancer-related pain and fatigue, information needs, and fear of cancer recurrence among adult survivors of childhood cancer

scientific article published on 26 June 2019

Primary Care Physicians' Perspectives of Their Role in Cancer Care: A Systematic Review.

scientific article published on 24 May 2016

Psychometric evaluation of the Sibling Cancer Needs Instrument (SCNI): an instrument to assess the psychosocial unmet needs of young people who are siblings of cancer patients

scientific article published on 25 October 2013

Quantifying family dissemination and identifying barriers to communication of risk information in Australian BRCA families.

scientific article published on 11 May 2017

Randomized trial of a decision aid for individuals considering genetic testing for hereditary nonpolyposis colorectal cancer risk

scientific article published in September 2008

Results of a nurse-led intervention: connecting pediatric cancer patients from the hospital to the school using videoconferencing technologies

scientific article published in November 2013

Returning to School After Adolescent Cancer: A Qualitative Examination of Australian Survivors' and Their Families' Perspectives

scientific article published on June 2011

School Experiences of Siblings of Children with Chronic Illness: A Systematic Literature Review

scientific article

School and educational support programmes for paediatric oncology patients and survivors: A systematic review of evidence and recommendations for future research and practice

scientific article published on 05 January 2021

Sexual and Romantic Relationships: Experiences of Adolescent and Young Adult Cancer Survivors

scientific article

Smell and Taste Disorders Resulting from Cancer and Chemotherapy

scientific article published on 16 February 2016

Support after the completion of cancer treatment: perspectives of Australian adolescents and their families

scientific article published on 3 June 2013

Thank you for your lovely card: ethical considerations in responding to bereaved parents invited in error to participate in childhood cancer survivorship research.

scientific article published on February 2015

The 'value' of values clarification in cancer-related decision aids

scientific article published on 26 November 2012

The Avatar Acceptability Study: Survivor, Parent and Community Willingness to Use Patient-Derived Xenografts to Personalize Cancer Care

scientific article published on 29 October 2018

The COVID-19 pandemic: Distance-delivered care for childhood cancer survivors

scientific article published on 24 September 2020

The Development of Delta: Using Agile to Develop a Decision Aid for Pediatric Oncology Clinical Trial Enrollment (Preprint)

The Development of Delta: Using Agile to Develop a Decision Aid for Pediatric Oncology Clinical Trial Enrollment.

scientific article published on 4 May 2018

The impact of long-term follow-up care for childhood cancer survivors: A systematic review

scientific article (publication date: June 2017)

The psychological impact of genetic information on children: a systematic review

scientific article

The psychosocial impact of completing childhood cancer treatment: a systematic review of the literature

scientific article published on 03 July 2009

Time perspective in hereditary cancer: psychometric properties of a short form of the Zimbardo Time Perspective Inventory in a community and clinical sample

scientific article published on 19 August 2010

Understanding parents' communication experiences in childhood cancer: a qualitative exploration and model for future research

scientific article published on 11 January 2020

Understanding the school experiences of children and adolescents with serious chronic illness: a systematic meta-review

scientific article

Usefulness of the Threatening Medical Situations Inventory in individuals considering genetic testing for cancer risk

scientific article published on 15 August 2007

Utilizing the Experience of Consumers in Consultation to Develop the Australasian Oncofertility Consortium Charter

scientific article

Women's knowledge, beliefs, and information needs in relation to the risks and benefits associated with use of the oral contraceptive pill

scientific article

List of works by Claire Wakefield

"Forewarned and forearmed": Long-term childhood cancer survivors' and parents' information needs and implications for survivorship models of care

'What they're not telling you': a new scale to measure grandparents' information needs when their grandchild has cancer

A Digital Educational Intervention With Wearable Activity Trackers to Support Health Behaviors Among Childhood Cancer Survivors: Pilot Feasibility and Acceptability Study

A Study Protocol for the Australasian Oncofertility Registry: Monitoring Referral Patterns and the Uptake, Quality, and Complications of Fertility Preservation Strategies in Australia and New Zealand

A randomized controlled trial of a decision aid for women considering genetic testing for breast and ovarian cancer risk

A randomized trial of a breast/ovarian cancer genetic testing decision aid used as a communication aid during genetic counseling

A study protocol for Truce: a pragmatic controlled trial of a seven-week acceptance and commitment therapy program for young people who have a parent with cancer.

A systematic review of psychological interventions for adolescents and young adults living with chronic illness.

Acceptability and feasibility of a parent-targeted dietary intervention in young survivors of childhood cancer: "Reboot"

Acceptability and feasibility of an e-mental health intervention for parents of childhood cancer survivors: "Cascade".

Accommodation in pediatric oncology: parental experiences, preferences and unmet needs

Adolescent and Young Adult Cancer Survivors' Experiences of the Healthcare System: A Qualitative Study

An exploration of the communication preferences regarding genetic testing in individuals from families with identified breast/ovarian cancer mutations ⬇️

Assessment of Psychosocial Outcomes in Genetic Counseling Research: An Overview of Available Measurement Scales

Attitudes toward Organ Donation and Donor Behavior: A Review of the International Literature ⬇️

Attitudes toward genetic testing for cancer risk after genetic counseling and decision support: a qualitative comparison between hereditary cancer types

Barriers and enablers to physical activity and aerobic fitness deficits among childhood cancer survivors

Cancer survivorship services for indigenous peoples: where we stand, where to improve? A systematic review

Changes in body mass index in long-term survivors of childhood acute lymphoblastic leukemia treated without cranial radiation and with reduced glucocorticoid therapy

Childhood cancer survivors' school (re)entry: Australian parents' perceptions

Cognitive compensations for blindness in children: an investigation using odour naming

Communication and consent: discussion and organ donation decisions for self and family

Consensus Among International Ethical Guidelines for the Provision of Videoconferencing-Based Mental Health Treatments

Decision Aid for Nutrition Support in Pediatric Oncology: A Pilot Study.

Design and Rationale for a Parent-Led Intervention to Increase Fruit and Vegetable Intake in Young Childhood Cancer Survivors (Reboot): Protocol for a Pilot Study (Preprint)

Design and Rationale for a Parent-Led Intervention to Increase Fruit and Vegetable Intake in Young Childhood Cancer Survivors (Reboot): Protocol for a Pilot Study.

Design and rationale for Reboot: A behavioural medicine pilot intervention to increase fruit and vegetable intake in young childhood cancer survivors

Development and Pilot Testing of a Fertility Decision Aid for Young Women Diagnosed with Early Breast Cancer

Development and pilot testing of a decision aid for men considering genetic testing for breast and/or ovarian cancer-related mutations (BRCA1/2).

Development and pilot testing of two decision aids for individuals considering genetic testing for cancer risk

Dietary intake after treatment in child cancer survivors

Distress and adjustment among adolescents and young adults with cancer: an empirical and conceptual review

Family Communication, Risk Perception and Cancer Knowledge of Young Adults from BRCA1/2 Families: a Systematic Review

Family information needs at childhood cancer treatment completion

Feasibility of clinical psychosocial screening in pediatric oncology: Implementing the PAT2.0.

Fertility concerns among child and adolescent cancer survivors and their parents: A qualitative analysis

Further evidence for the co-occurrence of adverse health behaviors among childhood cancer survivors

Health Literacy in Adolescents and Young Adults: An Updated Review

Hospital-based bereavement services following the death of a child: a mixed study review.

Imagining the future in health anxiety: the impact of rumination on the specificity of illness-related memory and future thinking.

Improving mutation notification when new genetic information is identified in research: a trial of two strategies in familial breast cancer

Issues faced by unaffected men with a family history of prostate cancer: a multidisciplinary overview

Men at Increased Risk of Developing Breast Cancer: Language Preferences for Naming a Cancer-Related Mutation

Models of childhood cancer survivorship care in Australia and New Zealand: Strengths and challenges.

Nutritional interventions for survivors of childhood cancer

Nutritional interventions for survivors of childhood cancer.

Online group-based cognitive-behavioural therapy for adolescents and young adults after cancer treatment: a multicenter randomised controlled trial of Recapture Life-AYA.

Online parent-targeted cognitive-behavioural therapy intervention to improve quality of life in families of young cancer survivors: study protocol for a randomised controlled trial

Online prostate cancer screening decision aid for at-risk men: a randomized trial

Oral contraceptive use in women at increased risk of breast/ovarian cancer: knowledge and attitudes

Paediatric oncology patient preference for oral nutritional supplements in a clinical setting

Parent feeding interactions and practices during childhood cancer treatment. A qualitative investigation

Parental adjustment to the completion of their child's cancer treatment

Parental sleep experiences on the pediatric oncology ward

Parental smoking may confer negligible environmental, but significant lifestyle costs to childhood cancer survivors

Participation in psychosocial oncology and quality-of-life research: a systematic review.

Patient-reported depression measures in cancer: a meta-review.

Perceived cancer-related pain and fatigue, information needs, and fear of cancer recurrence among adult survivors of childhood cancer

Primary Care Physicians' Perspectives of Their Role in Cancer Care: A Systematic Review.

Psychometric evaluation of the Sibling Cancer Needs Instrument (SCNI): an instrument to assess the psychosocial unmet needs of young people who are siblings of cancer patients

Quantifying family dissemination and identifying barriers to communication of risk information in Australian BRCA families.

Randomized trial of a decision aid for individuals considering genetic testing for hereditary nonpolyposis colorectal cancer risk

Results of a nurse-led intervention: connecting pediatric cancer patients from the hospital to the school using videoconferencing technologies

Returning to School After Adolescent Cancer: A Qualitative Examination of Australian Survivors' and Their Families' Perspectives

School Experiences of Siblings of Children with Chronic Illness: A Systematic Literature Review

School and educational support programmes for paediatric oncology patients and survivors: A systematic review of evidence and recommendations for future research and practice

Sexual and Romantic Relationships: Experiences of Adolescent and Young Adult Cancer Survivors

Smell and Taste Disorders Resulting from Cancer and Chemotherapy

Support after the completion of cancer treatment: perspectives of Australian adolescents and their families

Thank you for your lovely card: ethical considerations in responding to bereaved parents invited in error to participate in childhood cancer survivorship research.

The 'value' of values clarification in cancer-related decision aids

The Avatar Acceptability Study: Survivor, Parent and Community Willingness to Use Patient-Derived Xenografts to Personalize Cancer Care

The COVID-19 pandemic: Distance-delivered care for childhood cancer survivors

The Development of Delta: Using Agile to Develop a Decision Aid for Pediatric Oncology Clinical Trial Enrollment (Preprint)

The Development of Delta: Using Agile to Develop a Decision Aid for Pediatric Oncology Clinical Trial Enrollment.

The impact of long-term follow-up care for childhood cancer survivors: A systematic review

The psychological impact of genetic information on children: a systematic review

The psychosocial impact of completing childhood cancer treatment: a systematic review of the literature

Time perspective in hereditary cancer: psychometric properties of a short form of the Zimbardo Time Perspective Inventory in a community and clinical sample