List of works - Janet K. Williams

"No one else sees the difference: "family members' perceptions of changes in persons with preclinical Huntington disease

scientific article published on July 2007

A closer look at the recommended criteria for disclosing genetic results: perspectives of medical genetic specialists, genomic researchers, and institutional review board chairs

scientific article published on 02 April 2013

A comparison of memory and attention in Turner syndrome and learning disability

scientific article published in October 1991

A new scale to measure family members' perception of community health care services for persons with Huntington disease

scientific article

A review of quality of life after predictive testing for and earlier identification of neurodegenerative diseases

scientific article published on 11 September 2013

Academic and Institutional Review Board Collaboration to Ensure Ethical Conduct of Doctor of Nursing Practice Projects

scientific article published on July 2015

Advanced nursing practice and research contributions to precision medicine

scientific article

Advancing Genetic Nursing Research

scientific article published on 01 July 2001

Advancing genetic nursing knowledge

scientific article published on March 2004

Assessment of Day-to-Day Functioning in Prodromal and Early Huntington Disease

scientific article

Caregiving by teens for family members with Huntington disease

scientific article published on 22 May 2009

Challenges assessing clinical endpoints in early Huntington disease

scientific article

Challenges in evaluating next-generation sequence data for clinical decisions

scientific article

Characterization of depression in prodromal Huntington disease in the neurobiological predictors of HD (PREDICT-HD) study

scientific article published on 19 June 2013

Clinical and Biomarker Changes in Premanifest Huntington Disease Show Trial Feasibility: A Decade of the PREDICT-HD Study

scientific article

Communication, encouragement, and cancer screening in families with and without mutations for hereditary nonpolyposis colorectal cancer: a pilot study

scientific article

Couples' attributions for work function changes in prodromal Huntington disease

scientific article published on 23 March 2010

Couples' coping in prodromal Huntington disease: a mixed methods study

scientific article published on 26 January 2012

Cystic fibrosis: A new perspective in genetic counseling

scientific article published on 01 November 1992

Development of the HD-Teen Inventory

scientific article published on June 2011

Development of the Huntington Disease Work Function Scale ⬇️

scientific article published on October 1, 2012

Development of the Huntington disease family concerns and strategies survey from focus group data

scientific article

Disclosing genetic test results to family members

scientific article published in January 2005

Disclosure of incidental genomic findings involving children: are we making progress?

Ethical issues in genetic testing

scientific article

Ethics, policy, and educational issues in genetic testing

scientific article published on January 2006

Evolution and current status of graduate programs in nursing genetics.

scientific article

Experiences of teens living in the shadow of Huntington Disease

scientific article

Family carer personal concerns in Huntington disease

scientific article

Five-Year Bibliometric Review of Genomic Nursing Science Research

scientific article published on 2 February 2016

From Nightingale and Mendel to Genomics in Health Care for Children

article

From ecology to base pairs: nursing and genetic science.

scientific article

Genetic Screening

scientific article published on 01 September 1985

Genetics in Health Practice and Education Special Issue

article

Genetics specialists' perspectives on disclosure of genomic incidental findings in the clinical setting

scientific article

Genomics in nursing education

scientific article

Genomics, clinical research, and learning health care systems: Strategies to improve patient care

scientific article published on 17 December 2015

Huntington disease: families' experiences of healthcare services

scientific article published on March 2010

Implementation science, genomic precision medicine, and improved health: A new path forward?

scientific article published on 20 August 2016

Implications for educating the next generation of nurses on genetics and genomics in the 21st century

scientific article

In their own words: reports of stigma and genetic discrimination by people at risk for Huntington disease in the International RESPOND-HD study

scientific article

Increasing participation in genomic research and biobanking through community-based capacity building

scientific article published on 18 September 2014

Individual genetic and genomic research results and the tradition of informed consent: exploring US review board guidance

scientific article published on 5 March 2012

Informed consent and genomic incidental findings: IRB chair perspectives

scientific article published on December 2011

Life trajectories, genetic testing, and risk reduction decisions in 18-39 year old women at risk for hereditary breast and ovarian cancer

scientific article

Living with genetic test results for hereditary breast and ovarian cancer

scientific article

Nurses transforming health care using genetics and genomics

scientific article

Nursing and genetic health care

article

Parenting a daughter with precocious puberty of turner syndrome

scientific article published on 01 May 1995

Perception, experience, and response to genetic discrimination in Huntington disease: the international RESPOND-HD study

scientific article

Perception, experience, and response to genetic discrimination in Huntington's disease: the Australian results of The International RESPOND-HD study

scientific article published on 4 January 2013

Perceptions of discrimination among persons who have undergone predictive testing for Huntington's disease

scientific article published on April 2008

Personal factors associated with reported benefits of Huntington disease family history or genetic testing

scientific article

Prediction of manifest Huntington's disease with clinical and imaging measures: a prospective observational study

scientific article

Pregnancy as foreground in cystic fibrosis carrier testing decisions in primary care

scientific article

Preparation of Undergraduate Nursing Faculty to Incorporate Genetics Content into Curricula

article

Recommendations for educating nurses in genetics ⬇️

scientific article published on November 1, 2001

Researcher and institutional review board chair perspectives on incidental findings in genomic research

scientific article

Risk reduction and health promotion behaviors following genetic testing for adult-onset disorders

scientific article published on January 2007

School Nurses' Experiences with Children with Chronic Conditions

scientific article published on 01 August 1995

Screening for genetic disorders

scientific article published on 01 May 1989

Self Reports of Day-to-Day Function in a Small Cohort of People with Prodromal and Early HD.

scientific article

Self-reported race and ethnicity of US biobank participants compared to the US Census

scientific article

Strategies to prepare faculty to integrate genomics into nursing education programs

scientific article published on 18 July 2011

Strategies used by teens growing up in families with Huntington disease

scientific article published on 24 March 2013

Stressors in Teens with Type 1 Diabetes and Their Parents: Immediate and Long-Term Implications for Transition to Self-Management

scientific article

Teratogenic Potential of Valproic Acid

scientific article published on 01 January 1987

The disclosure of incidental genomic findings: an "ethically important moment" in pediatric research and practice

scientific article published on 10 April 2013

The emotional experiences of family carers in Huntington disease

scientific article published on 09 February 2009

The importance of patient engagement

scientific article published on 13 August 2013

Toward a biopsychosocial model for 21st-century genetics

scientific article

U.S. Genetics Nurses in Advanced Practice

article

Using clinical genomics in health care: Strategies to create a prepared workforce

article

WHODAS 2.0 in prodromal Huntington disease: measures of functioning in neuropsychiatric disease

scientific article

List of works by Janet K. Williams

"No one else sees the difference: "family members' perceptions of changes in persons with preclinical Huntington disease

A closer look at the recommended criteria for disclosing genetic results: perspectives of medical genetic specialists, genomic researchers, and institutional review board chairs

A comparison of memory and attention in Turner syndrome and learning disability

A new scale to measure family members' perception of community health care services for persons with Huntington disease

A review of quality of life after predictive testing for and earlier identification of neurodegenerative diseases

Academic and Institutional Review Board Collaboration to Ensure Ethical Conduct of Doctor of Nursing Practice Projects

Advanced nursing practice and research contributions to precision medicine

Advancing Genetic Nursing Research

Advancing genetic nursing knowledge

Assessment of Day-to-Day Functioning in Prodromal and Early Huntington Disease

Caregiving by teens for family members with Huntington disease

Challenges assessing clinical endpoints in early Huntington disease

Challenges in evaluating next-generation sequence data for clinical decisions

Characterization of depression in prodromal Huntington disease in the neurobiological predictors of HD (PREDICT-HD) study

Clinical and Biomarker Changes in Premanifest Huntington Disease Show Trial Feasibility: A Decade of the PREDICT-HD Study

Communication, encouragement, and cancer screening in families with and without mutations for hereditary nonpolyposis colorectal cancer: a pilot study

Couples' attributions for work function changes in prodromal Huntington disease

Couples' coping in prodromal Huntington disease: a mixed methods study

Cystic fibrosis: A new perspective in genetic counseling

Development of the HD-Teen Inventory

Development of the Huntington Disease Work Function Scale ⬇️

Development of the Huntington disease family concerns and strategies survey from focus group data

Disclosing genetic test results to family members

Disclosure of incidental genomic findings involving children: are we making progress?

Ethical issues in genetic testing

Ethics, policy, and educational issues in genetic testing

Evolution and current status of graduate programs in nursing genetics.

Experiences of teens living in the shadow of Huntington Disease

Family carer personal concerns in Huntington disease

Five-Year Bibliometric Review of Genomic Nursing Science Research

From Nightingale and Mendel to Genomics in Health Care for Children

From ecology to base pairs: nursing and genetic science.

Genetic Screening

Genetics in Health Practice and Education Special Issue

Genetics specialists' perspectives on disclosure of genomic incidental findings in the clinical setting

Genomics in nursing education

Genomics, clinical research, and learning health care systems: Strategies to improve patient care

Huntington disease: families' experiences of healthcare services

Implementation science, genomic precision medicine, and improved health: A new path forward?

Implications for educating the next generation of nurses on genetics and genomics in the 21st century

In their own words: reports of stigma and genetic discrimination by people at risk for Huntington disease in the International RESPOND-HD study

Increasing participation in genomic research and biobanking through community-based capacity building

Individual genetic and genomic research results and the tradition of informed consent: exploring US review board guidance

Informed consent and genomic incidental findings: IRB chair perspectives

Life trajectories, genetic testing, and risk reduction decisions in 18-39 year old women at risk for hereditary breast and ovarian cancer

Living with genetic test results for hereditary breast and ovarian cancer

Nurses transforming health care using genetics and genomics

Nursing and genetic health care

Parenting a daughter with precocious puberty of turner syndrome

Perception, experience, and response to genetic discrimination in Huntington disease: the international RESPOND-HD study

Perception, experience, and response to genetic discrimination in Huntington's disease: the Australian results of The International RESPOND-HD study

Perceptions of discrimination among persons who have undergone predictive testing for Huntington's disease

Personal factors associated with reported benefits of Huntington disease family history or genetic testing

Prediction of manifest Huntington's disease with clinical and imaging measures: a prospective observational study

Pregnancy as foreground in cystic fibrosis carrier testing decisions in primary care

Preparation of Undergraduate Nursing Faculty to Incorporate Genetics Content into Curricula

Recommendations for educating nurses in genetics ⬇️

Researcher and institutional review board chair perspectives on incidental findings in genomic research

Risk reduction and health promotion behaviors following genetic testing for adult-onset disorders

School Nurses' Experiences with Children with Chronic Conditions

Screening for genetic disorders

Self Reports of Day-to-Day Function in a Small Cohort of People with Prodromal and Early HD.

Self-reported race and ethnicity of US biobank participants compared to the US Census

Strategies to prepare faculty to integrate genomics into nursing education programs

Strategies used by teens growing up in families with Huntington disease

Stressors in Teens with Type 1 Diabetes and Their Parents: Immediate and Long-Term Implications for Transition to Self-Management

Teratogenic Potential of Valproic Acid

The disclosure of incidental genomic findings: an "ethically important moment" in pediatric research and practice

The emotional experiences of family carers in Huntington disease

The importance of patient engagement

Toward a biopsychosocial model for 21st-century genetics

U.S. Genetics Nurses in Advanced Practice

Using clinical genomics in health care: Strategies to create a prepared workforce

WHODAS 2.0 in prodromal Huntington disease: measures of functioning in neuropsychiatric disease

`I'm like you': establishing and protecting a common ground in focus groups with Huntington disease caregivers