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Authors whose works are in public domain in at least one jurisdiction

List of works by Amy P. Abernethy

"Not the 'grim reaper service'": an assessment of provider knowledge, attitudes, and perceptions regarding palliative care referral barriers in heart failure

scientific article published on 02 January 2014

A Framework for Managing Comorbid Conditions in Palliative Care

A Pilot Study of a Mobile Health Pain Coping Skills Training Protocol for Patients With Persistent Cancer Pain

scientific article

A brief symptom index for advanced lung cancer

scientific article published on 23 May 2011

A clinical decision and economic analysis model of cancer pain management

scientific article published on October 1, 2003

A community population survey of prevalence and severity of dyspnea in adults

scientific article

A comparison of FDA and EMA drug approval: implications for drug development and cost of care

scientific article published in December 2013

A comparison of methodologies from two longitudinal community-based randomized controlled trials of similar interventions in palliative care: what worked and what did not?

scientific article published on December 2005

A decision exercise to engage cancer patients and families in deliberation about Medicare coverage for advanced cancer care

scientific article

A framework for generalizability in palliative care

scientific article published on 21 September 2008

A framework for understanding cancer comparative effectiveness research data needs

scientific article

A multicenter prospective evaluation of the clinical utility of F-18 FDG-PET/CT in patients with AJCC stage IIIB or IIIC extremity melanoma

scientific article

A new index of priority symptoms in advanced ovarian cancer.

scientific article published on 13 November 2010

A pilot phase II randomized, cross-over, double-blinded, controlled efficacy study of octreotide versus hyoscine hydrobromide for control of noisy breathing at the end-of-life

scientific article published in January 2008

A pilot study on the influence of an individualized and experiential training on cancer caregiver's self-efficacy in home care and symptom management

scientific article published on May 2009

A population-based cross-sectional study that defined normative population data for the Life-Space Mobility Assessment-composite score

scientific article

A pragmatic 2×2×2 factorial cluster randomized controlled trial of educational outreach visiting and case conferencing in palliative care—methodology of the Palliative Care Trial [ISRCTN 81117481]

article by Amy P. Abernethy et al published February 2006 in Contemporary Clinical Trials

A preliminary study of a health related quality of life assessment of priority symptoms in advanced lymphoma: the National Comprehensive Cancer Network-Functional Assessment of Cancer Therapy - Lymphoma Symptom Index

scientific article

A spicamycin derivative (KRN5500) provides neuropathic pain relief in patients with advanced cancer: a placebo-controlled, proof-of-concept trial

scientific article

A strategy to advance the evidence base in palliative medicine: formation of a palliative care research cooperative group

scientific article

A systematic review of strategies used to increase recruitment of people with cancer or organ failure into clinical trials: implications for palliative care research

scientific article published on 27 December 2014

Academic medical centers: ripe for rapid-learning personalized health care

scientific article published on September 2011

Accelerating anticancer drug development - opportunities and trade-offs

scientific article published on 01 December 2018

Achieving palliative care research efficiency through defining and benchmarking performance metrics

scientific article published on December 2012

Actigraphy assessment of sleep quality among patients with acute myeloid leukaemia during induction chemotherapy

scientific article published on 11 April 2018

Activity as a Measure of Symptom Control ⬇️

scientific article published on September 24, 2012

Advances in the pharmacological management of breathlessness

scientific article published on June 2009

Adverse events in hospice and palliative care: a pilot study to determine feasibility of collection and baseline rates

scientific article published on 19 January 2011

Age-associated differences in fatigue among patients with cancer

scientific article

An Exploratory Factor Analysis of the Scale Structure of the Patient Care Monitor Version 2.0.

scientific article published on 16 December 2015

An International Initiative To Create a Collaborative for Pharmacovigilance in Hospice and Palliative Care Clinical Practice

An mHealth Pain Coping Skills Training Intervention for Hematopoietic Stem Cell Transplantation Patients: Development and Pilot Randomized Controlled Trial.

scientific article published on 19 March 2018

Analyzing phase III studies in hospice/palliative care. a solution that sits between intention-to-treat and per protocol analyses: the palliative-modified ITT analysis

scientific article published on 21 July 2012

Anamorelin hydrochloride in the treatment of cancer anorexia-cachexia syndrome

scientific article

Anamorelin in patients with non-small-cell lung cancer and cachexia (ROMANA 1 and ROMANA 2): results from two randomised, double-blind, phase 3 trials

scientific article published on 19 February 2016

Anti-cholinergic load, health care utilization, and survival in people with advanced cancer: a pilot study

scientific article published in June 2010

Anticholinergic Drug Burden in Noncancer Versus Cancer Patients Near the End of Life

scientific article

Assessment of the psychometric properties of an English version of the cancer dyspnea scale in people with advanced lung cancer

scientific article published on 4 July 2012

Association between the Medicare Modernization Act of 2003 and patient wait times and travel distance for chemotherapy

scientific article

Assuring the patient centeredness of patient-reported outcomes: content validity in medical product development and comparative effectiveness research

scientific article published in December 2011

Bereavement help-seeking following an 'expected' death: a cross-sectional randomised face-to-face population survey

scientific article

Blinded Patient Preference for Morphine Compared to Placebo in the Setting of Chronic Refractory Breathlessness--An Exploratory Study.

scientific article published on 24 October 2015

Breast cancer as heterogeneous disease: contributing factors and carcinogenesis mechanisms.

scientific article

Breathlessness in an age of noncommunicable diseases ⬇️

scientific article published on June 1, 2012

Building the palliative care evidence base: Lessons from a randomized controlled trial of oxygen vs room air for refractory dyspnea

scientific article

Can we predict which patients with refractory dyspnea will respond to opioids?

scientific article published in October 2007

Cancer registration needs assessment at a tertiary medical centre in Kilimanjaro, Tanzania

scientific article published on January 2013

CareSearch: finding and evaluating Australia's missing palliative care literature

scientific article

Caregiver Expectations: Predictors of a Worse Than Expected Caregiving Experience at the End of Life

scientific article published on 21 May 2015

Caregiver characteristics and bereavement needs: Findings from a population study

scientific article published on 8 August 2016

Caregivers for people with end-stage lung disease: characteristics and unmet needs in the whole population

scientific article published on January 2008

Caregivers of People with Neurodegenerative Diseases: Profile and Unmet Needs from a Population-Based Survey in South Australia

article

Caregivers' perceived adequacy of support in end-stage lung disease: results of a population survey

scientific article

Caring at the end of life: do cancer caregivers differ from other caregivers?

scientific article published on 22 January 2014

Case Studies from the Clinic: Initiating and Implementing Patient-Reported Outcome Measures

scientific article published on 12 June 2017

Changes in anticholinergic load from regular prescribed medications in palliative care as death approaches

scientific article published in April 2009

Changes in the use and costs of diagnostic imaging among Medicare beneficiaries with cancer, 1999-2006.

scientific article published in April 2010

Characteristics of Real-World Metastatic Non-Small Cell Lung Cancer Patients Treated with Nivolumab and Pembrolizumab During the Year Following Approval

scientific article published on 9 January 2018

Characterizing the Hospice and Palliative Care Workforce in the U.S.: Clinician Demographics and Professional Responsibilities

scientific article

Chronic pain in South Australia - population levels that interfere extremely with activities of daily living

article

Chronic refractory dyspnoea--evidence based management

scientific article

Clinical Trial Participants With Metastatic Renal Cell Carcinoma Differ From Patients Treated in Real-World Practice

scientific article published on September 2015

Clinical cancer informatics: creating pathways for personalized medicine and rapid learning cancer care from the guest editors

scientific article published in July 2011

Clinically important differences in the intensity of chronic refractory breathlessness.

scientific article

Clinicopathologic study of 85 cases of melanoma of the female genitalia.

scientific article published on 13 January 2012

Collecting data on quality is feasible in community-based palliative care

scientific article

Comfort in the last 2 weeks of life: relationship to accessing palliative care services

scientific article published on 12 March 2008

Commentary: Encouraging Clinicians to Incorporate Longitudinal Patient-Reported Symptoms in Routine Clinical Practice ⬇️

scientific article published on January 1, 2011

Common approaches to dyspnoea management in advanced life-limiting illness

article by Amy P. Abernethy et al published June 2010 in Current Opinion in Supportive and Palliative Care

Community-based palliative care: the natural evolution for palliative care delivery in the U.S.

scientific article

Comorbidity, age, race and stage at diagnosis in colorectal cancer: a retrospective, parallel analysis of two health systems

scientific article

Comparing Oncologist, Nurse, and Physician Assistant Attitudes Toward Discussions of Negative Emotions with Patients ⬇️

scientific article published on January 1, 2010

Comparing unmet needs between community-based palliative care patients with heart failure and patients with cancer

scientific article published on 03 March 2014

Comparison of seven-day and repeated 24-hour recall of symptoms in the first 100 days after hematopoietic cell transplantation

scientific article

Conflict of interest disclosure in off-label oncology clinical trials

scientific article

Conformance With Supportive Care Quality Measures Is Associated With Better Quality of Life in Patients With Cancer Receiving Palliative Care ⬇️

scientific article published on May 1, 2013

Consensus-based standards for best supportive care in clinical trials in advanced cancer.

scientific article published on February 2012

Considerations in reporting palliative care clinical trials: standardizing information reported and authorship practices

scientific article published on December 2012

Coping with sexual concerns after cancer: the use of flexible coping

scientific article published on 18 February 2010

Correlates of quality of life-related outcomes in breast cancer patients participating in the Pathfinders pilot study

scientific article

Correlation between the international consensus definition of the Cancer Anorexia-Cachexia Syndrome (CACS) and patient-centered outcomes in advanced non-small cell lung cancer

scientific article published on 4 November 2014

Creating a research culture in a palliative care service environment: a qualitative study of the evolution of staff attitudes to research during a large longitudinal controlled trial (ISRCTN81117481).

scientific article

Critical Summaries of Innovations in Palliative Care Pharmacotherapy

article

Culture and financing influence palliative care services, study populations, and generalizability of research findings

scientific article published in March 2008

Data for cancer comparative effectiveness research: past, present, and future potential

scientific article

Death service ratio: a measure of hospice utilization and cost impact

scientific article

Decision making and quality of life in the treatment of cancer: a review.

scientific article published on 19 September 2008

Deferred systemic therapy in patients with metastatic renal cell carcinoma

scientific article published on 31 December 2014

Defining High-Quality Palliative Care in Oncology Practice: An American Society of Clinical Oncology/American Academy of Hospice and Palliative Medicine Guidance Statement

scientific article published on 16 August 2016

Defining best supportive care

scientific article published on 6 October 2008

Defining distinct caregiver subpopulations by intensity of end-of-life care provided

scientific article published on 7 November 2008

Defining quality, disseminating evidence, and enforcing guidelines for cancer treatment

scientific article published in August 2013

Delivering high-quality and affordable care throughout the cancer care continuum

scientific article published on 14 October 2013

Delivery strategies to optimize resource utilization and performance status for patients with advanced life-limiting illness: results from the "palliative care trial" [ISRCTN 81117481].

scientific article published on 24 October 2012

Demonstration of a sustainable community-based model of care across the palliative care continuum

scientific article published on 7 July 2012

Design and Rationale of the Metastatic Renal Cell Carcinoma (MaRCC) Registry: A Prospective Academic and Community-Based Study of Patients With Metastatic Renal Cell Cancer

scientific article

Designing and conducting randomized controlled trials in palliative care: A summary of discussions from the 2010 clinical research forum of the Australian Palliative Care Clinical Studies Collaborative

scientific article published on 15 August 2011

Detailing of gastrointestinal symptoms in cancer patients with advanced disease: new methodologies, new insights, and a proposed approach

scientific article published on March 2009

Developing the evidence base for palliative care: formation of the Palliative Care Research Cooperative and its first trial

scientific article published on August 2010

Development and Refinement of a Learning Health Systems Training Program

scientific article

Development and Validation of 11 Symptom Indexes to Evaluate Response to Chemotherapy for Advanced Cancer ⬇️

scientific article published on March 1, 2011

Development and Validation of a High-Quality Composite Real-World Mortality Endpoint

scientific article published on 14 May 2018

Development and initial validation of the NCCN/FACT symptom index for advanced kidney cancer.

scientific article

Development and validation of a symptom index for advanced hepatobiliary and pancreatic cancers: the National Comprehensive Cancer Network Functional Assessment of Cancer Therapy (NCCN-FACT) Hepatobiliary-Pancreatic Symptom Index (NFHSI).

scientific article

Development and validation of eleven symptom indexes to evaluate response to chemotherapy for advanced cancer: Measurement compliance with regulatory demands

article published in Research in human capital and development

Development of a health information technology-based data system in community-based hospice and palliative care

scientific article

Development of a subject search filter to find information relevant to palliative care in the general medical literature.

scientific article

Development of a symptom index for patients with primary brain tumors

scientific article published in January 2014

Development of the National Cancer Institute's patient-reported outcomes version of the common terminology criteria for adverse events (PRO-CTCAE).

scientific article

Development of the Quality Data Collection Tool for Prospective Quality Assessment and Reporting in Palliative Care.

scientific article

Discontinuation of statins in routine care settings

scientific article published in July 2013

Do patient attributes predict oncologist empathic responses and patient perceptions of empathy?

scientific article

Do terminally ill people who live alone miss out on home oxygen treatment? An hypothesis generating study

scientific article published in September 2008

Do the trajectories of dyspnea differ in prevalence and intensity by diagnosis at the end of life? A consecutive cohort study

scientific article

Don't ask, don't tell? Revealing placebo responses to research participants and patients

scientific article published on 20 February 2008

Double-blind, placebo-controlled, randomized trial of octreotide in malignant bowel obstruction

scientific article published on 14 November 2014

Dyspnea in supportive oncology

Dyspnea review for the palliative care professional: assessment, burdens, and etiologies

scientific article

Dyspnea review for the palliative care professional: treatment goals and therapeutic options

scientific article

Editorial

Editorial: Epidemiology

scholarly article by John H. Sampson et al published August 2011 in Journal of Neurosurgery

Effect of palliative oxygen versus room air in relief of breathlessness in patients with refractory dyspnoea: a double-blind, randomised controlled trial

scientific article

Effects of an individualized caregiver training intervention on self-efficacy of cancer caregivers

scientific article published on 26 September 2011

Effects of low-dose morphine on perceived sleep quality in patients with refractory breathlessness: A hypothesis generating study

scientific article published on 12 November 2015

Electronic Health Records (EHRs) in the oncology clinic: how clinician interaction with EHRs can improve communication with the patient

scientific article

Electronic patient-reported data capture as a foundation of rapid learning cancer care

scientific article

Electronic toxicity monitoring and patient-reported outcomes

scientific article published on July 2011

End-of-Life Care

Enhancing communication between oncologists and patients with a computer-based training program: a randomized trial

scientific article

Establishing a regional, multisite database for quality improvement and service planning in community-based palliative care and hospice.

scientific article published in August 2010

Ethical conduct of palliative care research: enhancing communication between investigators and institutional review boards

scientific article

Evaluating the number of stages in development of squamous cell and adenocarcinomas across cancer sites using human population-based cancer modeling.

scientific article

Evaluation of 39 cases of pediatric cutaneous head and neck melanoma

scientific article published on 13 November 2010

Evaluation of Pillars4life: a virtual coping skills program for cancer survivors

scientific article

Evaluation of treatment- and disease-related symptoms in advanced head and neck cancer: validation of the national comprehensive cancer network-functional assessment of cancer therapy-head and neck cancer symptom index-22 (NFHNSI-22).

scientific article published on 25 September 2012

Evidence-based intervention for chronic refractory breathlessness: practical therapies that make a difference

scientific article published on November 2013

Experience of the National Cancer Institute Community Cancer Centers Program on Community-Based Cancer Clinical Trials Activity

scientific article published on 29 March 2016

Families looking back: one year after discussion of withdrawal or withholding of life-sustaining support

scientific article published in January 2001

Fatigue is the most important symptom for advanced cancer patients who have had chemotherapy

scientific article published on May 2008

Feasibility and acceptability to patients of a longitudinal system for evaluating cancer-related symptoms and quality of life: pilot study of an e/Tablet data-collection system in academic oncology

scientific article

Feasibility of Cardiopulmonary Exercise Testing and Longitudinal Patient-Reported Outcome (PRO) Assessment in Patients Undergoing Hematopoietic Cell Transplantation

scholarly article by William A. Wood et al published February 2013 in Biology of Blood and Marrow Transplantation

Feasibility of frequent patient-reported outcome surveillance in patients undergoing hematopoietic cell transplantation

scientific article published on 16 December 2012

Financial Distress, Use of Cost-Coping Strategies, and Adherence to Prescription Medication Among Patients With Cancer

scientific article published in November 2013

Financial burden of caring until the end of life

scientific article published on 01 September 2008

Financial toxicity, Part I: a new name for a growing problem

scientific article published in February 2013

Financial toxicity, Part II: how can we help with the burden of treatment-related costs?

scientific article published on April 1, 2013

Five Years' Time and the Next Five Things for the List of Choosing Wisely ⬇️

scientific article published on April 24, 2013

Former palliative caregivers who identify that additional spiritual support would have been helpful in a population survey

scientific article published on 12 January 2011

Frameworks for Prescribing in Comorbid Illness

article published in 2007

Full Disclosure — Out-of-Pocket Costs as Side Effects ⬇️

scientific article published on October 17, 2013

Gaps in the Evidence Base of Opioids for Refractory Breathlessness. A Future Work Plan? ⬇️

scientific article published on January 30, 2012

Gastrointestinal symptoms in cancer patients with advanced disease: new methodologies, insights, and a proposed approach

scientific article published on March 2012

Generalist plus Specialist Palliative Care — Creating a More Sustainable Model

article

Guest editors’ introduction to the special section on information technology and evidence implementation ⬇️

scientific article published on March 1, 2011

Handheld computers for data entry: high tech has its problems too.

scientific article

Hazard-rate analysis and patterns of recurrence in early stage melanoma: moving towards a rationally designed surveillance strategy

scientific article

Hazards for pain severity and pain interference with daily living, with exploration of brief pain inventory cutpoints, among women with metastatic breast cancer

scientific article

Holding back moderates the association between health symptoms and social well-being in patients undergoing hematopoietic stem cell transplantation

scientific article published on 13 February 2014

Hospices' preparation and practices for quality measurement

scientific article published on 01 January 2010

Hospital Can Be the Actively Chosen Place for Death ⬇️

scientific article published on January 7, 2013

How Should We Conduct and Interpret Phase III Clinical Trials in Palliative Care?

How do non-physician clinicians respond to advanced cancer patients' negative expressions of emotions?

scientific article

Ideas whose times have come

Importance of Health Information Technology, Electronic Health Records, and Continuously Aggregating Data to Comparative Effectiveness Research and Learning Health Care ⬇️

scientific article published on October 15, 2012

Improving health care efficiency and quality using tablet personal computers to collect research-quality, patient-reported data

scientific article

Improving the management of dyspnea in the community using rapid learning approaches

scientific article published on February 2012

Improving the methodologic and ethical validity of best supportive care studies in oncology: lessons from a systematic review

scientific article published on 29 June 2009

In Reply

Indwelling catheters for the management of refractory malignant ascites: a systematic literature overview and retrospective chart review.

scientific article published on 28 March 2009

Informatics in action: lessons learned in comparative effectiveness research

scientific article published on July 2011

Informational needs assessment of non-Hodgkin lymphoma survivors and their physicians

scientific article

Integrating technology into palliative care research

scientific article published on December 2012

International perspective: outcomes of palliative oncology

scientific article

Investment of palliative medicine in bridging the gap with academia: a call to action

scientific article published on 17 January 2011

It's time to have 'the talk': cost communication and patient-centered care

scientific article published in June 2014

Key characteristics of palliative care studies reported in the specialized literature

scientific article

Lack of timely accrual information in oncology clinical trials: a cross-sectional analysis

scientific article published on 25 March 2014

Lessons from the Liverpool Care Pathway--evidence is key.

scientific article published on 16 October 2013

Leveraging informatics, mobile health technologies and biobanks to treat each patient right

article

Long-term dynamics of death rates of emphysema, asthma, and pneumonia and improving air quality

scientific article

Longitudinal patient-reported performance status assessment in the cancer clinic is feasible and prognostic

scientific article published on November 2011

Longitudinal patterns of chemotherapy use in metastatic colorectal cancer

scientific article published on September 2009

Low-dose opioids should be considered for symptom relief also in advanced chronic obstructive pulmonary disease (COPD).

scientific article published on 6 January 2015

Management of Respiratory Symptoms in People with Cancer

Management of dyspnea in advanced lung cancer: recent data and emerging concepts

scientific article

Management of dyspnea in older adults with cancer

Management of dyspnea in patients with chronic obstructive pulmonary disease

scientific article published on December 2009

Management of dyspnea within a rapid learning healthcare model

scientific article published on June 2011

Management of gastrointestinal symptoms in advanced cancer patients: the rapid learning cancer clinic model.

scientific article

Managing comorbidities in patients at the end of life

scientific article published in October 2004

Measuring priority symptoms in advanced bladder cancer: development and initial validation of a brief symptom index.

scientific article published in June 2013

Measuring the Net Benefits of Hospice and Palliative Care: A Composite Measure for Multiple Audiences—Palliative Net Benefit

scientific article published in March 2011

Minimization of heatwave morbidity and mortality

scientific article

Mobile health technology evaluation: the mHealth evidence workshop

scientific article published on August 2013

Modern Supportive Care in Oncology

Moving on: Factors associated with caregivers' bereavement adjustment using a random population-based face-to-face survey

scientific article published in June 2017

Multi-site research allows adequately powered palliative care trials; web-based data management makes it achievable today

article by David C. Currow et al published January 2008 in Palliative Medicine

Multisite studies offer a solution to recruitment challenges in palliative care studies

scientific article published on March 2013

Need for Mechanistically Focused Research of Global Systemic Interventions in Palliative Care ⬇️

scientific article published on August 3, 2010

Need for global partnership in cancer care: perceptions of cancer care researchers attending the 2010 australia and Asia pacific clinical oncology research development workshop

scientific article

Not published, not indexed: issues in generating and finding hospice and palliative care literature

scientific article published in June 2010

Off-label prescribing in palliative care – a cross-sectional national survey of Palliative Medicine doctors

Once-daily opioids for chronic dyspnea: a dose increment and pharmacovigilance study.

scientific article published on 31 March 2011

Oncologist communication about emotion during visits with patients with advanced cancer

scientific article published in December 2007

Opioids for chronic refractory breathlessness: patient predictors of beneficial response

scientific article published on 20 December 2012

Opioids for chronic refractory breathlessness: right patient, right route?

scientific article published on January 2014

Overcoming recruitment challenges in palliative care clinical trials

scientific article published on 15 October 2013

Oxygen Use—Patients Define Symptomatic Benefit Discerningly

Oxygen for relief of dyspnea: what is the evidence?

scientific article published on June 2008

Oxygen for relief of dyspnoea in people with chronic obstructive pulmonary disease who would not qualify for home oxygen: a systematic review and meta-analysis

scientific article

PC-FACS

PC-FACS.

scientific article

PC-FACS: a real-time evidence resource for busy palliative care clinicians

scientific article published on 01 February 2006

Pain and palliative care pharmacotherapy literature summaries and analyses

scientific article published on January 2009

Pain and palliative care pharmacotherapy literature summaries and analyses

article

Pain and sleep: establishing bi-directional association in a population-based sample

scientific article published on 14 April 2008

Palliative Care Clinical Trials: Generalizability and Applicability in Hospice and Palliative Care Practice

Palliative Care and Dyspnea Management in Patients with Hematological Malignancies and Acute Respiratory Failure

Palliative care clinical research networks, a requirement for evidence-based palliative care: time for coordinated action

scientific article published on 01 August 2007

Palliative care needs of patients with cancer living in the community

scientific article published on November 2011

Palliative care pharmacotherapy literature summaries and analyses

scientific article published on January 2007

Palliative care pharmacotherapy literature summaries and analyses.

scientific article published on January 2009

Palliative caregivers who would not take on the caring role again

scientific article

Palliative management of refractory dyspnea in COPD.

scientific article published on January 2006

Palliative oxygen for non-hypoxaemic chronic obstructive pulmonary disease

scientific article

Partnering with engaged patients accelerates research

scientific article

Patient Engagement Practices in Clinical Research among Patient Groups, Industry, and Academia in the United States: A Survey

scientific article

Patient experiences with communication about sex during and after treatment for cancer

scientific article

Patient free text reporting of symptomatic adverse events in cancer clinical research using the National Cancer Institute's Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)

Patient preferences in advanced or recurrent ovarian cancer

scientific article

Patient self-reporting in palliative care using information technology: Yes, there is hope! ⬇️

scientific article published on October 1, 2011

Patient-Reported Distress in Myelodysplastic Syndromes and Its Association With Clinical Outcomes: A Retrospective Cohort Study

scientific article published in March 2018

Patient-Reported Outcomes After Choice for Contralateral Prophylactic Mastectomy

scientific article published on 7 March 2016

Patient-oncologist communication in advanced cancer: predictors of patient perception of prognosis

scientific article

Patient-reported outcomes as end points and outcome indicators in solid tumours

scientific article

Patient-reported outcomes in cancer care - hearing the patient voice at greater volume

scientific article

Pc-facs

scientific article published on 01 July 2011

Perceptions of Statin Discontinuation among Patients with Life-Limiting Illness

scientific article published on 18 May 2017

Pharmacological management of breathlessness in advanced disease

scholarly article by Amy P. Abernethy et al published February 2008 in Progress in palliative care

Pharmacological management of dyspnoea

scientific article published on August 2007

Pharmacological treatment of respiratory symptoms

scholarly article published 1 January 2012

Phase 2 pilot study of Pathfinders: a psychosocial intervention for cancer patients

scientific article

Place of death for people with noncancer and cancer illness in South Australia: a population-based survey.

scientific article

Polypharmacy in patients with advanced cancer and the role of medication discontinuation

scientific article published on July 2015

Poor documentation prevents adequate assessment of quality metrics in colorectal cancer

scientific article published on July 2009

Populations who die without specialist palliative care: does lower uptake equate with unmet need?

Post-traumatic stress symptoms in long-term non-Hodgkin's lymphoma survivors: does time heal?

scientific article published on 11 October 2011

Potential Opioid-Sparing Effect of Regular Benzodiazepines in Dyspnea: Longer Duration of Studies Needed ⬇️

scientific article published on November 1, 2010

Practical Dyspnea Assessment: Relationship Between the 0-10 Numerical Rating Scale and the Four-Level Categorical Verbal Descriptor Scale of Dyspnea Intensity

scientific article published on 21 May 2015

Predictors of chronic breathlessness: a large population study ⬇️

scientific article published on January 12, 2011

Preferences of people with advanced heart failure-a structured narrative literature review to inform decision making in the palliative care setting

scientific article published on 11 August 2012

Prescribing at Times of Clinical Transition in Chronic Or Progressive Diseases

article published in 2009

Prescribing in palliative care as death approaches

scientific article published in April 2007

Pretransplantation assessments and symptom profiles: predicting transplantation-related toxicity and improving patient-centered outcomes

scientific article published on 19 October 2011

Prevalence and Outcomes of Breathlessness in Older Adults: A National Population Study

scientific article published on 7 September 2016

Prevalence and Predictors of Burnout Among Hospice and Palliative Care Clinicians in the U.S.

retracted scientific article published on 24 November 2015

Probiotics to Prevent Antibiotic-Related Diarrhea

scientific article published on January 2008

Prognostic significance of functional capacity and exercise behavior in patients with metastatic non-small cell lung cancer

scientific article published on 22 November 2011

Prospectively collected characteristics of adult patients, their consultations and outcomes as they report breathlessness when presenting to general practice in Australia

scientific article

Psychological approaches to understanding and treating disease-related pain

scientific article

Psychological interventions for arthritis pain management in adults: a meta-analysis

scientific article published on May 2007

Psychological interventions for cancer pain

Quality management of potential chemotherapy-induced neutropenic complications: evaluation of practice in an academic medical center

scientific article published on 19 December 2008

Quality measures for palliative care in patients with cancer: a systematic review

scientific article

Quality of life after isolated limb infusion for in-transit melanoma of the extremity

scientific article published on 14 August 2014

Quality of life among long-term survivors of non-Hodgkin lymphoma: a follow-up study

scientific article

Quality of life in ICON7: need for patients' perspectives

scientific article published on 18 January 2013

Quality of life in higher resolution: the next generation of comparative effectiveness research in malignant hematology ⬇️

scientific article published on June 1, 2013

Quality of palliative care for patients with advanced cancer in a community consortium

scientific article published on 8 September 2014

Quality palliative care: practitioners' needs for dynamic lifelong learning

scientific article published in April 2005

Racial differences in pain during 1 year among women with metastatic breast cancer: a hazards analysis of interval-censored data

scientific article

Randomised, double blind, placebo controlled crossover trial of sustained release morphine for the management of refractory dyspnoea

scientific article published in September 2003

Randomized Controlled Trial of Acupuncture for Chronic Neck Pain

scientific article published on 01 January 2008

Rapid, responsive, relevant (R3) research: a call for a rapid learning health research enterprise

scientific article published on 10 May 2013

Rapid-learning system for cancer care

scientific article

Real-World Evidence In Support Of Precision Medicine: Clinico-Genomic Cancer Data As A Case Study

article by Vineeta Agarwala et al published May 2018 in Health Affairs

Real-World Outcomes in Metastatic Renal Cell Carcinoma: Insights From a Joint Community-Academic Registry ⬇️

scientific article published on November 26, 2013

Real-World Outcomes of Patients with Metastatic Non-Small Cell Lung Cancer Treated with Programmed Cell Death Protein 1 Inhibitors in the Year Following U.S. Regulatory Approval

scientific article published on 27 December 2018

Real-world progression, treatment, and survival outcomes during rapid adoption of immunotherapy for advanced non-small cell lung cancer

scientific article published on 05 August 2019

Recommendations for Clinical Trials of Off-Label Drugs Used to Treat Advanced-Stage Cancer ⬇️

scientific article published on January 17, 2012

Recommendations for Incorporating Patient-Reported Outcomes Into Clinical Comparative Effectiveness Research in Adult Oncology ⬇️

scientific article published on October 15, 2012

Redistribution of health care costs after the adoption of positron emission tomography among medicare beneficiaries with non-small-cell lung cancer, 1998-2005.

scientific article published in April 2014

Refining a checklist for reporting patient populations and service characteristics in hospice and palliative care research.

scientific article published on 21 March 2012

Regional variation in identified cancer care needs of early-career oncologists in China, India, and Pakistan

scientific article published on 17 April 2015

Reply to M.S. Hofman et al.

scientific article published in February 2013

Repurposing Medications for Hospice/Palliative Care Symptom Control Is No Longer Sufficient: A Manifesto for Change

scientific article published on 29 December 2016

Research in end-of-life settings: an ethical inquiry

scientific article published on September 2010

Response to Davis and Behm (doi: 10.1089/jpm.2017.0608): Discontinuation of Statins

scientific article published in March 2018

Review of Electronic Patient-Reported Outcomes Systems Used in Cancer Clinical Care ⬇️

scientific article published on December 3, 2013

Rituximab for follicular lymphoma: watch and wait, watch and worry, or watch and live?

scientific article published in June 2014

Safety of benzodiazepines and opioids in very severe respiratory disease: national prospective study

scientific article published on 30 January 2014

Safety profile and pharmacokinetic analyses of the anti-CTLA4 antibody tremelimumab administered as a one hour infusion

scientific article published on 21 November 2012

Selecting the Optimal Design for Drug Discontinuation Trials in a Setting of Advanced, Life-Limiting Illness-Reply

scientific article published in October 2015

Self-reported financial burden and satisfaction with care among patients with cancer

scientific article published on 25 March 2014

Sexual concerns in cancer patients: a comparison of GI and breast cancer patients

scientific article published on 24 September 2009

Sexual concerns in lung cancer patients: an examination of predictors and moderating effects of age and gender

scientific article published on 4 September 2010

Should Bisphosphonates Be Used Routinely to Manage Pain and Skeletal Complications in Cancer?

Should Bisphosphonates Be Used Routinely to Manage Pain and Skeletal Complications in Other Conditions?

Software for Administering the National Cancer Institute's Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events: Usability Study

scientific article published on 16 July 2018

Specialist palliative care needs of whole populations: a feasibility study using a novel approach

scientific article published in April 2004

Specialized palliative care services are associated with improved short- and long-term caregiver outcomes

scientific article published on 25 October 2007

Stage Migration, Selection Bias, and Survival Associated With the Adoption of Positron Emission Tomography Among Medicare Beneficiaries With Non–Small-Cell Lung Cancer, 1998-2003 ⬇️

scientific article published on July 2, 2012

Stakeholder perspectives on implementing the National Cancer Institute's patient-reported outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE).

scientific article

Standardization and Scaling of a Community-Based Palliative Care Model

scientific article

Standards for palliative care delivery in oncology settings.

scientific article published on September 2010

Strategies to support recruitment of patients with life-limiting illness for research: the Palliative Care Research Cooperative Group

scientific article

Structured decision-making: using personalized medicine to improve the value of cancer care

scientific article

Study protocol: a phase III randomised, double-blind, parallel arm, stratified, block randomised, placebo-controlled trial investigating the clinical effect and cost-effectiveness of sertraline for the palliative relief of breathlessness in people w

scientific article

Supporting clinical practice decisions with real-time patient-reported outcomes

scientific article published on 31 January 2011

Supporting implementation of evidence-based behavioral interventions: the role of data liquidity in facilitating translational behavioral medicine

scientific article

Symptom Burden and Performance Status among Community-Dwelling Patients with Serious Illness

scientific article published on 19 March 2015

Symptomatic oxygen for non-hypoxaemic chronic obstructive pulmonary disease

scientific article

Systematic review: reliability of compendia methods for off-label oncology indications.

scientific article published on 16 February 2009

Tackling the Challenges of Clinical Trials in Palliative Care

Targeted investment improves access to hospice and palliative care

scientific article published on 10 May 2013

The 'surprise' question in advanced cancer patients: A prospective study among general practitioners

scientific article published on 24 March 2014

The Australia-modified Karnofsky Performance Status (AKPS) scale: a revised scale for contemporary palliative care clinical practice [ISRCTN81117481].

scientific article

The Burden of Polypharmacy in Patients Near the End of Life

scientific article published on 29 September 2015

The Effect of Palliative Care on Patient Functioning ⬇️

scientific article published on September 10, 2013

The Ethics of Health Information Technology in Oncology: Emerging Isssues from Both Local and Global Perspectives ⬇️

scientific article published on January 1, 2013

The Evidence Base for Oxygen for Chronic Refractory Breathlessness: Issues, Gaps, and a Future Work Plan ⬇️

scientific article published on September 25, 2012

The Financial Toxicity of Cancer Treatment: A Pilot Study Assessing Out-of-Pocket Expenses and the Insured Cancer Patient's Experience ⬇️

scientific article published on February 26, 2013

The Heart Failure Care Giving Experience: Findings from a Population Based Study

The Medicare Modernization Act and reimbursement for outpatient chemotherapy: do patients perceive changes in access to care?

scientific article published on 01 November 2007

The National Tumor Association Foundation (ANT): A 30 year old model of home palliative care

scientific article

The active identification and management of chronic refractory breathlessness is a human right

scientific article

The broader implications of diabetes management at the end of life

The caregiving perspective in heart failure: a population based study

scientific article

The clinical and social dimensions of prescribing palliative home oxygen for refractory dyspnea

scientific article published on 4 January 2013

The effect of metastatic site and decade of diagnosis on the individual burden of metastatic melanoma: contemporary estimates of average years of life lost

scientific article published on 28 September 2012

The impact of conducting a regional palliative care clinical study

scientific article published in December 2006

The longitudinal pattern of response when morphine is used to treat chronic refractory dyspnea

scientific article published on 08 June 2013

The management of chronic breathlessness in patients with advanced and terminal illness

scientific article published on 02 January 2015

The need to research refractory breathlessness.

scientific article published in January 2016

The quality imperative for palliative care

scientific article

The relationship between two performance scales: New York Heart Association Classification and Karnofsky Performance Status Scale

scientific article

The role of benzodiazepines in breathlessness: a single site, open label pilot of sustained release morphine together with clonazepam

scientific article

The science of breathlessness: '… as we come onto the home straight, Science is catching Clinical Practice. Just two lengths between them'.

scientific article published in September 2014

The ultimate personalised medicine

scientific article published on 01 September 2012

The value of data collection within a palliative care program

scientific article (publication date: August 2011)

Therapeutic nihilism: the next hurdle in improving the treatment of breathlessness

article published in 2011

There is a mismatch between the medicare benefit package and the preferences of patients with cancer and their caregivers

scientific article

Time for Better Integration of Oncology and Palliative Care ⬇️

scientific article published on November 1, 2011

Time-Limited Trials ⬇️

scientific article published in The Journal of the American Medical Association

Timing of end-of-life care discussion with performance on end-of-life quality indicators in ovarian cancer.

scientific article published on 13 April 2013

To What Causes Do People Attribute Their Chronic Breathlessness? A Population Survey ⬇️

scientific article published on June 11, 2012

Total Parenteral Nutrition for Patients with Advanced, Life-Limiting Cancer

scholarly article published 24 May 2011

Total dyspnoea

scientific article published on June 2008

Total parenteral nutrition for patients with advanced life-limiting cancer: decision-making in the face of conflicting evidence

article

Treatment-related toxicity and supportive care in metastatic colorectal cancer.

scientific article published on January 2010

True translational research: bridging the three phases of translation through data and behavior

scientific article

Two colliding epidemics - obesity is independently associated with chronic pain interfering with activities of daily living in adults 18 years and over; a cross-sectional, population-based study

scientific article

Uncovering an invisible network of direct caregivers at the end of life: a population study

scientific article

Understanding the Impact of Withdrawing From Phase III Studies in Palliative Care: Reply to Johnson et al

Unmet spiritual care needs impact emotional and spiritual well-being in advanced cancer patients

scientific article published on 29 November 2011

Usability and Acceptability of the QDACT-PC, an Electronic Point-of-Care System for Standardized Quality Monitoring in Palliative Care

scientific article published on 9 July 2015

Use of "Real-World" data to describe adverse events during the treatment of metastatic renal cell carcinoma in routine clinical practice

scientific article

Using Patient Reported Outcomes in Oncology Clinical Practice

scientific article published on 16 June 2016

Utility and use of palliative care screening tools in routine oncology practice

scientific article published on September 2010

Validation and real-world assessment of the Functional Assessment of Anorexia-Cachexia Therapy (FAACT) scale in patients with advanced non-small cell lung cancer and the cancer anorexia-cachexia syndrome (CACS).

scientific article published on 14 January 2015

Validation of the Patient Care Monitor (Version 2.0): a review of system assessment instrument for cancer patients.

scientific article published on 25 June 2010

Validity and Reliability of the US National Cancer Institute's Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)

scientific article published on 13 August 2015

Variations in Use of PET among Medicare Beneficiaries with Non–Small Cell Lung Cancer, 1998–2007 ⬇️

scientific article published on February 15, 2013

What Interventions Are Effective for Managing Dyspnea in Cancer?

What bothers lung cancer patients the most? A prospective, longitudinal electronic patient-reported outcomes study in advanced non-small cell lung cancer

scientific article published on 21 March 2015

What is different about patients with hematologic malignancies? A retrospective cohort study of cancer patients referred to a hospice research network

scientific article published on 10 August 2014

What is the role of friends when contributing care at the end of life? Findings from an Australian population study

scientific article published in February 2011

When Should Corticosteroids Be Used to Manage Pain?

When Should Nonsteroidal Antiinflammatory Drugs Be Used to Manage Pain?

When a chance to cut is not a chance to cure: a future for palliative surgery?

scientific article published in November 2011

Who provides care for people dying of cancer? A comparison of a rural and metropolitan cohort in a South Australian bereaved population study

scientific article published on February 2015

Young caregivers in the end-of-life setting: a population-based profile of an emerging group

scientific article published in October 2010

“Real World” Treatment of Metastatic Renal Cell Carcinoma in a Joint Community-Academic Cohort: Progression-Free Survival Over Three Lines of Therapy ⬇️

scientific article published on July 12, 2013

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