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List of works by Ute Thyen

"Any decision is better than none" decision-making about sex of rearing for siblings with 17beta-hydroxysteroid-dehydrogenase-3 deficiency

scientific article published on 24 June 2006

A multicenter prospective quasi-experimental study on the impact of a transition-oriented generic patient education program on health service participation and quality of life in adolescents and young adults

scientific article

Access of children with cerebral palsy to the physical, social and attitudinal environment they need: a cross-sectional European study.

scientific article published on 6 May 2010

Adaptation and validation of the German Patient Activation Measure for adolescents with chronic conditions in transitional care: PAM® 13 for Adolescents

scientific article published on 20 December 2017

Age, metabolic control and type of insulin regime influences health-related quality of life in children and adolescents with type 1 diabetes mellitus

scientific article published on 5 May 2005

An assessment of the experiences and needs of adolescents with chronic conditions in transitional care: a qualitative study to develop a patient education programme

scientific article

Assessing empowerment as multidimensional outcome of a patient education program for adolescents with chronic conditions: A latent difference score model

scientific article published on 21 April 2020

Assessment of data quality in a multi-centre cross-sectional study of participation and quality of life of children with cerebral palsy

scientific article

Assessment of vision and hearing in children conceived spontaneously and by ICSI: a prospective controlled, single-blinded follow-up study.

scientific article published on 16 December 2009

Association between participation in life situations of children with cerebral palsy and their physical, social, and attitudinal environment: a cross-sectional multicenter European study ⬇️

scientific article published on July 27, 2012

Attitudes towards disclosure of conception mode in 899 pregnancies conceived after ICSI.

scientific article

Can we sense ART? The blinded examiner is not blind-a problem with follow-up studies on children born after assisted reproduction.

scientific article published on 26 February 2009

Clinical evaluation study of the German network of disorders of sex development (DSD)/intersexuality: study design, description of the study population, and data quality

scientific article

Cross-cultural development of a child health care questionnaire on satisfaction, utilization, and needs

scientific article published on September 2007

Deciding on gender in children with intersex conditions: considerations and controversies

scientific article

Deficiencies in health care of chronically ill and handicapped children and their families

scientific article published on 01 January 2002

Determinants of child-parent agreement in quality-of-life reports: a European study of children with cerebral palsy.

scientific article published in October 2007

Development and evaluation of a generic education program for chronic diseases in childhood

scientific article published on 12 January 2017

Differential effect of a patient-education transition intervention in adolescents with IBD vs. diabetes

scientific article published on 16 January 2018

Disorders of sex development

scientific article published in December 2007

Disorders or Differences of Sex Development? Views of Affected Individuals on DSD Terminology

scientific article published on 27 January 2020

Disparity of child/parent-reported quality of life in cerebral palsy persists into adolescence

scientific article published on 25 July 2020

Epidemiology and initial management of ambiguous genitalia at birth in Germany

scientific article published on 27 July 2006

Erratum: Transition of Patients with Esophageal Atresia to Adult Care: Results of a Transition-Specific Education Program.

scientific article

Ethical principles and recommendations for the medical management of differences of sex development (DSD)/intersex in children and adolescents

scientific article

Evaluation of a generic patient education program in children with different chronic conditions

scientific article published on 01 February 2019

Fertility outcome and information on fertility issues in individuals with different forms of disorders of sex development: findings from the dsd-LIFE study

scientific article published on 15 September 2017

Frequency of participation of 8-12-year-old children with cerebral palsy: a multi-centre cross-sectional European study.

scientific article published on 20 June 2008

Gender Dysphoria and Gender Change in Disorders of Sex Development/Intersex Conditions: Results From the dsd-LIFE Study

scientific article published on 29 March 2018

Gender role behavior in children with XY karyotype and disorders of sex development

scientific article published on 12 January 2007

Health Related Quality of Life, Self-Esteem and Health Behaviour on Average 6 Years after an Obesity Outpatient Lifestyle Program

scientific article published on 17 July 2017

Health care needs of children and adolescents with chronic conditions

scientific article published in June 2008

Health-Related Quality of Life in Children and Adolescents with Cerebral Palsy: A Secondary Analysis of the DISABKIDS Questionnaire in the Field-Study Cerebral Palsy Subgroup.

scientific article published on 15 February 2016

Health-related quality of life and psychological well-being in adults with differences/disorders of sex development.

scientific article

Health-related quality of life in children with disorders of sex development (DSD).

scientific article published on 28 January 2014

Hormone therapy and patient satisfaction with treatment, in a large cohort of diverse disorders of sex development

scientific article published on 17 November 2017

How are Effects of Patient Education Programs Influenced by Psychosocial Risk Factors in Pediatrics?

scientific article published on 13 December 2017

Implementation of the Kids-CAT in clinical settings: a newly developed computer-adaptive test to facilitate the assessment of patient-reported outcomes of children and adolescents in clinical practice in Germany

scientific article published on 20 January 2016

Improving the communication of healthcare professionals with affected children and adolescents

scientific article published on 09 September 2014

Long-Term Health Outcomes and Health-Related Quality of Life in Adolescents from a Cohort of Extremely Premature Infants Born at Less Than 27 Weeks of Gestation in Northern Germany

scientific article

Mental Health of a Large Group of Adults With Disorders of Sex Development in Six European Countries

scientific article published on 01 September 2019

Minimal Associations Between Clinical Data and Children's Self-Reported Health-Related Quality of Life in Children With Chronic Conditions-A Cross-Sectional Study

scientific article published on 05 February 2019

Multicentre cross-sectional clinical evaluation study about quality of life in adults with disorders/differences of sex development (DSD) compared to country specific reference populations (dsd-LIFE).

scientific article published on 3 April 2018

Neuromotor development and mental health at 5.5 years of age of singletons born at term after intracytoplasmatic sperm injection ICSI: results of a prospective controlled single-blinded study in Germany

scientific article published on 20 February 2008

Parent-reported quality of life of children with cerebral palsy in Europe.

scientific article published in January 2008

Participation in life situations of 8-12 year old children with cerebral palsy: cross sectional European study

scientific article published on 24 April 2009

Participation of adults with disorders/differences of sex development (DSD) in the clinical study dsd-LIFE: design, methodology, recruitment, data quality and study population

scientific article

Physical health at 5.5 years of age of term-born singletons after intracytoplasmic sperm injection: results of a prospective, controlled, single-blinded study

scientific article published on 18 January 2008

Predictors of health-related quality of life in chronically ill children and adolescents over time

scientific article published on 14 March 2018

Predictors of parent-reported quality of life of adolescents with cerebral palsy: A longitudinal study

scientific article published on 19 January 2017

Predictors of self-reported health-related quality of life according to the EQ-5D-Y in chronically ill children and adolescents with asthma, diabetes, and juvenile arthritis: longitudinal results

scientific article published on 30 November 2017

Prevalence and characteristics of children and youth with special health care needs (CSHCN) in the German Health Interview and Examination Survey for Children and Adolescents (KiGGS)

scientific article published in May 2007

Psychological adjustment and sexual development of adolescents with disorders of sex development

scientific article published on 11 May 2010

Psychological problems in children with cerebral palsy: a cross-sectional European study

scientific article published on 12 December 2007

Psychosexual development in adolescents and adults with disorders of sex development--results from the German Clinical Evaluation Study

scientific article published on 30 April 2012

Psychosexual development in children with disorder of sex development (DSD)--results from the German Clinical Evaluation Study

scientific article published on 01 June 2010

Psychosocial well-being and quality of life in women with Turner syndrome

scientific article published on 23 December 2019

Puberty in disorders of somatosexual differentiation

scientific article published on March 1, 2003

Quality of health care in adolescents and adults with disorders/differences of sex development (DSD) in six European countries (dsd-LIFE).

scientific article published on 5 July 2018

Satisfaction with Genital Surgery and Sexual Life of Adults with XY Disorders of Sex Development: Results from the German Clinical Evaluation Study ⬇️

scientific article published on November 16, 2011

Self- and proxy-reported outcomes after surgery in people with disorders/differences of sex development (DSD) in Europe (dsd-LIFE)

scientific article published on 13 December 2020

Self-reported quality of life of 8-12-year-old children with cerebral palsy: a cross-sectional European study

scientific article published in June 2007

Self-reported quality of life of adolescents with cerebral palsy: a cross-sectional and longitudinal analysis

scientific article

Sexuality in Adults with Differences/Disorders of Sex Development (DSD): Findings from the dsd-LIFE Study

scientific article published on 18 June 2019

Subjective health, school victimization, and protective factors in a high-risk school sample

scientific article published on June 2015

Subjective need for psychological support (PsySupp) in parents of children and adolescents with disorders of sex development (dsd).

scientific article published on 14 April 2015

The Youth Health Care measure-satisfaction, utilization, and needs (YHC-SUN)-development of a self-report version of the Child Health Care (CHC-SUN) proxy-measure

scientific article

The basis of gender assignment in disorders of somatosexual differentiation

scientific article published in January 2005

The performance of the screener to identify children with special health care needs in a European sample of children with chronic conditions

article

The validation of a computer-adaptive test (CAT) for assessing health-related quality of life in children and adolescents in a clinical sample: study design, methods and first results of the Kids-CAT study

scientific article published on 9 November 2016

Trajectories of Health-Related Quality of Life and HbA1c Values of Children and Adolescents With Diabetes Mellitus Type 1 Over 6 Months: A Longitudinal Observational Study

scientific article published on 01 January 2019

Transition of Patients with Esophageal Atresia to Adult Care: Results of a Transition-Specific Education Program

scientific article published on 14 August 2016

Unmet health care needs and impact on families with children with disabilities in Germany

scientific article published in March 2003

Utilization of health care services and satisfaction with care in adults affected by disorders of sex development (DSD).

scientific article

Voice dissatisfaction in individuals with a disorder of sex development

scientific article published on 15 May 2019

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