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List of works by Aad Tibben

A Counselling Model for BRCA1/2 Genetic Susceptibility Testing

scientific article

A counselee-oriented perspective on risk communication in genetic counseling: Explaining the inaccuracy of the counseleesʼ risk perception shortly after BRCA1/2 test result disclosure

scientific article published on 01 September 2011

A decade of genetic counseling in frontotemporal dementia affected families: few counseling requests and much familial opposition to testing

scientific article published on 10 April 2009

A hereditary disorder in the family and the family life cycle: Huntington disease as a paradigm.

scientific article published on January 2002

A large-scale diagnostic program for the fragile X-syndrome among the mentally retarded. II. Implications for parents and family

scientific article published in July 1998

A plea for end-of-life discussions with patients suffering from Huntington's disease: the role of the physician

scientific article published on 22 December 2012

A whisper-game perspective on the family communication of DNA-test results: a retrospective study on the communication process of BRCA1/2-test results between proband and relatives

scientific article

Adverse childhood experiences of persons at risk for Huntington's disease or BRCA1/2 hereditary breast/ovarian cancer

scientific article

Adverse effects of predictive testing for Huntington disease underestimated: long-term effects 7-10 years after the test

scientific article published in March 2004

Attachment in families with Huntington's disease. A paradigm in clinical genetics

scientific article published on 20 January 2006

Attitudes of Dutch general practitioners towards presymptomatic DNA-testing for Huntington disease

scientific article published in February 1993

BRCA1 in the family: A case description of the psychological implications

scientific article published on 01 July 1997

Behavioural complaints in participants who underwent predictive testing for Huntington's disease

scientific article published in November 2002

Body image and psychological distress after prophylactic mastectomy and breast reconstruction in genetically predisposed women: A prospective long-term follow-up study ⬇️

article by Mariska den Heijer et al published June 2012 in European Journal of Cancer

Body image issues after bilateral prophylactic mastectomy with breast reconstruction in healthy women at risk for hereditary breast cancer

article by Jessica P. Gopie et al published 8 December 2012 in Familial Cancer

Calculating risk changes after negative mutation test outcomes for autosomal dominant hereditary late-onset disorders

scientific article published in March 2006

Cancer genetics service provision: a comparison of seven European centres

scientific article published in January 2003

Cancer risk communication, predictive testing and management in France, Germany, the Netherlands and the UK: general practitioners' and breast surgeons' current practice and preferred practice responsibilities

scientific article published on 03 December 2013

Caregiver burden, health-related quality of life and coping in dementia caregivers: a comparison of frontotemporal dementia and Alzheimer's disease

scientific article published on 11 September 2006

Coordinated multidisciplinary care for Huntington's disease. An outpatient department

scientific article published in July 2009

Course of distress experienced by persons at risk for an autosomal dominant inheritable disorder participating in a predictive testing program: an explorative study. Rotterdam/Leiden Genetics Workgroup

scientific article published in September 1998

Cross-sectional study on prevalences of psychiatric disorders in mutation carriers of Huntington's disease compared with mutation-negative first-degree relatives

scientific article published on 4 November 2008

DNA testing for fragile X syndrome: implications for parents and family.

scientific article

DNA-testing for Huntington's disease in The Netherlands: a retrospective study on psychosocial effects.

scientific article

Decision-making on preimplantation genetic diagnosis and prenatal diagnosis: a challenge for couples with hereditary breast and ovarian cancer

scientific article published on 6 March 2014

Developing a policy for paediatric biobanks: principles for good practice

scientific article

Diagnostic genetic testing for Huntington's disease.

scientific article

Dilemmas in counselling females with the fragile X syndrome.

scientific article

Disentangling the Babylonian speech confusion in genetic counseling: an analysis of the reliability and validity of the nomenclature for BRCA1/2 DNA-test results other than pathogenic

scientific article published on October 2009

Distress in individuals facing predictive DNA testing for autosomal dominant late-onset disorders: comparing questionnaire results with in-depth interviews. Rotterdam/Leiden Genetics Workgroup

scientific article published on January 1998

Duchenne/Becker muscular dystrophy in the family: have potential carriers been tested at a molecular level?

scientific article published on 11 November 2010

Early cognitive and motor symptoms in identified carriers of the gene for Huntington disease

scientific article published in November 1997

Effect on a Dutch family of predictive DNA-testing for hereditary breast and ovarian cancer

scientific article published in The Lancet

Estimating decreased risks for Huntington disease without a test.

scientific article published on 30 January 2008

Euthanasia and advance directives in Huntington's disease: qualitative analysis of interviews with patients

scientific article published in January 2013

Euthanasia and physician-assisted suicide in Huntington's disease in The Netherlands

scientific article published on 10 October 2012

Evaluation of exclusion prenatal and exclusion preimplantation genetic diagnosis for Huntington's disease in the Netherlands.

scientific article published on 14 December 2012

Expectations and experiences of investigators and parents involved in a clinical trial for Duchenne/Becker muscular dystrophy.

scientific article published on 04 December 2013

Experience of parental cancer in childhood is a risk factor for psychological distress during genetic cancer susceptibility testing

scientific article published on 06 April 2006

Exploring the course of psychological distress around two successive control visits in women at hereditary risk of breast cancer

Exploring the short-term impact of DNA-testing in breast cancer patients: the counselees' perception matters, but the actual BRCA1/2 result does not.

scientific article published on 27 December 2011

Familial breast cancer: is it time to move from a reactive to a proactive role?

scientific article published on September 2011

Familial forms of fronto-temporal dementia

scientific article published on April 1995

Family communication matters: the impact of telling relatives about unclassified variants and uninformative DNA-test results

scientific article published in April 2011

Family system characteristics and psychological adjustment to cancer susceptibility genetic testing: a prospective study

scientific article published on 01 January 2007

Favourable mutation test outcomes for individuals at risk for Huntington disease change the perspectives of first-degree relatives.

scientific article published on 23 July 2002

Frontotemporal Dementia: Behavioral Symptoms and Caregiver Distress

scientific article published on 06 August 2004

Frontotemporal dementia: change of familial caregiver burden and partner relation in a Dutch cohort of 63 patients.

scientific article published on 21 October 2008

Genetic counseling does not fulfill the counselees' need for certainty in hereditary breast/ovarian cancer families: an explorative assessment

scientific article published on 09 July 2012

Genetic discrimination in Huntington's disease

scientific article published on 9 June 2009

Genetic risk estimation by healthcare professionals

scientific article published in February 2005

Genetic testing for familial/hereditary breast cancer-comparison of guidelines and recommendations from the UK, France, the Netherlands and Germany

scientific article

Genetic testing in familial melanoma: uptake and implications.

scientific article published in August 2008

Genetic testing in hereditary non-polyposis colorectal cancer families with a MSH2, MLH1, or MSH6 mutation

scientific article published in November 2002

Health-related quality of life of children with a positive carrier status for inherited cardiovascular diseases

article

Hereditary frontotemporal dementia is linked to chromosome 17q21?q22: A genetic and clinicopathological study of three dutch families

scientific article published on 01 February 1997

Hereditary melanoma and predictive genetic testing: why not?

scientific article published in September 2005

High prevalence of mutations in the microtubule-associated protein tau in a population study of frontotemporal dementia in the Netherlands

scientific article

High satisfaction rates in women after DIEP flap breast reconstruction

scientific article published on 25 November 2008

Impact of behavioural problems on spousal caregivers: a comparison between Alzheimer's disease and frontotemporal dementia

scientific article published on 4 May 2006

Impact of delayed implant and DIEP flap breast reconstruction on body image and sexual satisfaction: a prospective follow-up study

scientific article

Information-seeking behaviour and coping style of women opting for either implant or DIEP-flap breast reconstruction

scientific article published on 22 April 2011

Informing family members of individuals with Lynch syndrome: a guideline for clinical geneticists

scientific article published on 01 June 2013

Intelligence indices in people with a high/low risk for developing Huntington's disease

scientific article

International variation in physicians' attitudes towards prophylactic mastectomy - comparison between France, Germany, the Netherlands and the United Kingdom

scientific article

Italian appeal court: a genetic predisposition to commit murder?

scientific article published on 10 March 2010

Long-term psychological impact of carrying a BRCA1/2 mutation and prophylactic surgery: a 5-year follow-up study

scientific article published in October 2003

Long‐term psychological distress in women at risk for hereditary breast cancer adhering to regular surveillance: a risk profile ⬇️

scientific article published on February 7, 2012

Melanoma risk factors, perceived threat and intentional tanning: an international online survey

scientific article published on May 2010

Memory and learning are not impaired in presymptomatic individuals with an increased risk of Huntington's disease

scientific article published in December 1999

Men at risk of being a mutation carrier for hereditary breast/ovarian cancer: an exploration of attitudes and psychological functioning during genetic testing

scientific article published on July 2001

Methodology in longitudinal studies on psychological effects of predictive DNA testing: a review.

scientific article

Most women recover from psychological distress after postoperative complications following implant or DIEP flap breast reconstruction: A prospective long-term follow-up study

scientific article

Myotonic dystrophy - the burden for patients and their partners ⬇️

scientific article published on October 1, 2010

Nature and development of Huntington disease in a nursing home population: The Behavior Observation Scale Huntington (BOSH).

scientific article published in December 2005

New problems in testing for Huntington's disease: the issue of intermediate and reduced penetrance alleles

scientific article published in April 2001

Non-invasive prenatal testing for aneuploidy and beyond: challenges of responsible innovation in prenatal screening. Summary and recommendations

Nonlinear effects in behavioral changes in Huntington disease

scientific article published in March 2003

Offspring of a parent with genetic disease: childhood experiences and adult psychological characteristics.

scientific article published on 25 November 2013

On the biomedicalization of alcoholism.

scientific article published on 08 May 2009

Opening the psychological black box in genetic counseling. The psychological impact of DNA testing is predicted by the counselees' perception, the medical impact by the pathogenic or uninformative BRCA1/2-result

scientific article

Passive coping and psychological distress in women adhering to regular breast cancer surveillance

scientific article published in September 2007

Perceiving cancer-risks and heredity-likelihood in genetic-counseling: how counselees recall and interpret BRCA 1/2-test results

scientific article published on 28 November 2010

Perceptions of genetic research and testing among members of families with an increased risk of malignant melanoma

scientific article published on 21 June 2012

Predicting adaptation to presymptomatic DNA testing for late onset disorders: who will experience distress? Rotterdam Leiden Genetics Workgroup ⬇️

scientific article published on September 1, 1998

Predictive genetic testing for cardiovascular diseases: Impact on carrier children

Predictive testing for Huntington disease: nonparticipants compared with participants in the Dutch program.

scientific article published in October 1994

Predictive testing for Huntington's disease.

scientific article published on 9 November 2006

Predictors of sun protection behaviors and severe sunburn in an international online study

scientific article published on 19 July 2010

Pregnant couples at increased risk for common aneuploidies choose maximal information from invasive genetic testing

scientific article published on 28 October 2014

Preliminary experience with predictive testing for insulin-dependent diabetes mellitus

scientific article published in The Lancet

Prenatal consultation after a fetal anomaly scan: videotaped exploration of physician's attitude and patient's satisfaction

scientific article published in November 1999

Prenatal testing for Huntington's disease in the Netherlands from 1998 to 2008.

scientific article published on 27 March 2013

Presentation of amyloidosis in carriers of the codon 692 mutation in the amyloid precursor protein gene (APP692).

scientific article published in October 2000

Presymptomatic DNA testing for Huntington disease: identifying the need for psychological intervention

scientific article

Presymptomatic DNA-testing for Huntington disease in The Netherlands

scientific article published in January 1992

Procedure and initial results of presymptomatic DNA studies in Huntington's chorea

scientific article published in April 1990

Psychological consequences of presymptomatic testing for Huntington's disease

scientific article

Psychological distress and breast self-examination frequency in women at increased risk for hereditary or familial breast cancer

scientific article published in January 2003

Psychological distress in applicants for predictive DNA testing for autosomal dominant, heritable, late onset disorders. The Rotterdam/Leiden Genetics Workgroup.

scientific article

Psychological distress in women at increased risk for breast cancer: the role of risk perception

article by Silvia van Dooren et al published September 2004 in European Journal of Cancer

Psychological distress in women at risk for hereditary breast cancer: the role of family communication and perceived social support

scientific article published on 5 October 2010

Psychological studies in Huntington's disease: making up the balance

scientific article published in December 2001

Psychosocial aspects of preconception consultation in primary care: lessons from our experience in clinical genetics

scientific article

Putting it all behind: long-term psychological impact of an inconclusive DNA test result for breast cancer

scientific article published in October 2008

Quality in genetic counselling for presymptomatic testing--clinical guidelines for practice across the range of genetic conditions

scientific article published on 15 August 2012

Recommendations for the predictive genetic test in Huntington's disease

scientific article published on 30 July 2012

Reproductive options for prospective parents in families with Huntington's disease: clinical, psychological and ethical reflections.

scientific article

Satisfaction with prophylactic mastectomy and breast reconstruction in genetically predisposed women

scientific article published in May 2006

Screening and diagnosis for the fragile X syndrome among the mentally retarded: an epidemiological and psychological survey. Collaborative Fragile X Study Group

scientific article

Screening for the fragile X syndrome among the mentally retarded: a clinical study. The Collaborative Fragile X Study Group.

scientific article published in June 1999

Sense of competence in a Dutch sample of informal caregivers of frontotemporal dementia patients

scientific article published on 10 March 2009

Skin examination behavior: the role of melanoma history, skin type, psychosocial factors, and region of residence in determining clinical and self-conducted skin examination

scientific article published on October 2012

Subtle involuntary movements are not reliable indicators of incipient Huntington's disease

scientific article published in January 1998

Surveillance for hereditary cancer: does the benefit outweigh the psychological burden?--A systematic review.

scientific article published on 25 February 2012

Testing for Huntington's disease with support for all parties

scientific article published in March 1990

Testing the test--why pursue a better test for Huntington disease?

scientific article published on February 2003

The contribution of self-esteem and self-concept in psychological distress in women at risk of hereditary breast cancer

The counselees' self-reported request for psychological help in genetic counseling for hereditary breast/ovarian cancer: not only psychopathology matters

article by Joël Vos et al published 27 June 2012 in Psycho-Oncology

The counsellees' view of an unclassified variant in BRCA1/2: recall, interpretation, and impact on life.

scientific article published on August 2008

The course of distress in women at increased risk of breast and ovarian cancer due to an (identified) genetic susceptibility who opt for prophylactic mastectomy and/or salpingo-oophorectomy

scientific article published on 13 November 2006

The impact of having relatives affected with breast cancer on psychological distress in women at increased risk for hereditary breast cancer

The impact of social and personal resources on psychological distress in women at risk for hereditary breast cancer

scientific article published on 2 December 2010

The personal experience of parenting a child with juvenile Huntington's disease: perceptions across Europe

scientific article published on 27 February 2013

The short-term psychological impact of complications after breast reconstruction

scientific article published on 28 October 2011

Thinking about the end of life: a common issue for patients with Huntington's disease

scientific article published on 2 September 2014

Three-year follow-up after presymptomatic testing for Huntington's disease in tested individuals and partners

scientific article published in January 1997

Turkish female immigrants' intentions to participate in preconception carrier screening for hemoglobinopathies in the Netherlands: an empirical study

scientific article published on 31 August 2010

Understanding the low uptake of presymptomatic DNA testing for Huntington's disease

scientific article published in December 1992

Value-based healthcare in Lynch syndrome

scientific article published in June 2013

Variants of Uncertain Clinical Significance as a Result of BRCA1/2 Testing: Impact of an Ambiguous Breast Cancer Risk Message

scientific article published on 01 January 2004

What's the message? Interpretation of an uninformative BRCA1/2 test result for women at risk of familial breast cancer

scientific article published in April 2005

Who is prone to high levels of distress after prophylactic mastectomy and/or salpingo-ovariectomy?

scientific article published on 28 July 2007

Women's motives to opt for either implant or DIEP-flap breast reconstruction

scientific article

[Hereditary breast and/or ovarian cancer: consequences for family relations]

scientific article published on 01 February 1997

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