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List of works by Philip Moons

2018 ESC Guidelines for the management of cardiovascular diseases during pregnancy

2020 ESC Guidelines for the management of adult congenital heart disease

scientific article published on 29 August 2020

A Big Five Personality Typology in Adolescents with Congenital Heart Disease: Prospective Associations with Psychosocial Functioning and Perceived Health

scientific article

A Person-Centered Perspective on the Role of Peer Support and Extreme Peer Orientation in Youth with Type 1 Diabetes: A Longitudinal Study

scientific article published on 24 April 2020

A closer look at the developmental interplay between parenting and perceived health in adolescents with congenital heart disease

scientific article published on 13 May 2014

A good manuscript review for the European Journal of Cardiovascular Nursing

article by Tiny Jaarsma et al published 5 March 2013 in European Journal of Cardiovascular Nursing

A guide to improve your causal inferences from observational data

scientific article published on 10 October 2020

A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation.

scientific article published on 18 February 2018

A proposal for interdisciplinary, nurse-coordinated atrial fibrillation expert programmes as a way to structure daily practice

scientific article published on 21 March 2013

A randomised clinical trial of comprehensive cardiac rehabilitation versus usual care for patients treated for infective endocarditis--the CopenHeartIE trial protocol

scientific article

A survey of coronary risk factors and B-type natriuretic peptide concentrations in cardiac nurses from Europe: do nurses still practice what they preach?

scientific article

A systematic review of quality of life research in medicine and health sciences

scientific article published on 11 June 2019

A triadic perspective on control perceptions in youth with type 1 diabetes and their parents: Associations with treatment adherence and glycemic control

scientific article published on 20 March 2019

Adherence to guidelines in the clinical care for adults with congenital heart disease: the Euro Heart Survey on adult congenital heart disease

scientific article published on 09 January 2006

Adolescents with congenital heart disease: the importance of perceived parenting for psychosocial and health outcomes

scientific article

Adolescents' understanding of their congenital heart disease on transfer to adult-focused care

scientific article published on 2 November 2010

Advanced care planning in adult congenital heart disease: Transitioning from repair to palliation and end-of-life care

scientific article published on 26 October 2018

Ageing and age-related issues in congenital heart disease: a new niche in treatment, care, and research

scientific article published in 2023

An evaluation of disease knowledge in dyads of parents and their adolescent children with congenital heart disease

scientific article

Anaemia and iron deficiency in cardiac patients: what do nurses and allied professionals know?

scientific article published in March 2012

Annual cross-sectional study of nurse-sensitive problems: how to keep a finger on the pulse

scientific article published on July 2015

Are illness perception and coping style associated with the delay between symptom onset and the first general practitioner consultation in early rheumatoid arthritis management? An exploratory study within the CareRA trial.

scientific article published on 23 September 2015

Assessing the level of evidence on transfer and transition in young people with chronic conditions: protocol of a scoping review.

scientific article

Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International Study (APPROACH-IS): rationale, design, and methods

scientific article

Atrial Arrhythmias and Patient-Reported Outcomes in Adults with Congenital Heart Disease: an International Study

scientific article published on 19 September 2020

Attitude toward and current practice of transfer and transition of adolescents with congenital heart disease in the United States of America and Europe

scientific article published on 14 April 2009

Attitudes of nurses towards family involvement in the care for patients with cardiovascular diseases.

scientific article published on 28 July 2016

Attitudes of rheumatology practitioners toward transition and transfer from pediatric to adult healthcare.

scientific article published on 23 December 2011

Behavior of unrepaired perimembranous ventricular septal defect in young adults

scientific article published on 22 December 2009

Beliefs and attitudes of intensive care nurses toward visits and open visiting policy

scientific article published on 24 March 2007

Between invisible defects and visible impact: the life experiences of adolescents and young adults with congenital heart disease

scientific article

Bosentan for mild pulmonary vascular disease in ASD patients (the BOMPA trial): a double-blind, randomized controlled, pilot trial

scientific article

Bringing Antonovsky's salutogenic theory to life: A qualitative inquiry into the experiences of young people with congenital heart disease

scientific article published on March 2016

Burden of itch in epidermolysis bullosa

scientific article published on 22 June 2014

Burden of itch in ichthyosis: a multicentre study in 94 patients

scientific article published on 06 May 2019

Caliber of quality-of-life assessments in congenital heart disease: a plea for more conceptual and methodological rigor

scientific article

Cardiac complications relating to pregnancy and recurrence of disease in the offspring of women with atrioventricular septal defects

scientific article published on 17 August 2005

Cardiopulmonary exercise testing and SF-36 in patients with atrial septal defect type secundum

scientific article published in September 2011

Cardiovascular risk estimation by professionally active cardiovascular nurses: results from the Basel 2005 Nurses Cohort.

scientific article published on 14 August 2006

Caring for homecare: A mixed methods analysis of the current and future role of home nurses.

scientific article published on 17 September 2015

Change and stability in depressive symptoms in young adults with type 1 diabetes

scientific article published on 23 October 2015

Changes in QRS duration are associated with maximal exercise capacity in adult patients with repaired tetralogy of Fallot

scientific article published on 01 September 2005

Changes in perceived health of children with congenital heart disease after attending a special sports camp.

scientific article

ChatGPT: can artificial intelligence language models be of value for cardiovascular nurses and allied health professionals

scientific article published in 2023

Chronic illness as a 'family disease': The need for appropriate scientific methods for dyadic research

scientific article published on 01 February 2020

Clinical Effects and Implications of Cardiac Rehabilitation for Implantable Cardioverter Defibrillator Patients: A Mixed-Methods Approach Embedding Data From the Copenhagen Outpatient ProgrammE-Implantable Cardioverter Defibrillator Randomized Clini

scientific article

Clinical changes in older adults during hospitalization: responsiveness of the interRAI acute care instrument

scientific article published on 16 April 2013

Coaching through transition: a challenge for critical care nurses

scientific article published on 09 September 2011

Comorbidity as a mediator of depression in adults with congenital heart disease: A population-based cohort study

scientific article published on 19 May 2020

Comparing normal saline versus diluted heparin to lock non-valved totally implantable venous access devices in cancer patients: a randomised, non-inferiority, open trial

scientific article published on 03 April 2013

Comparison of participants and non-participants in patient-reported outcome surveys: the case of Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International Study

scientific article

Comparison of pregnancy outcomes in women with repaired versus unrepaired atrial septal defect

scientific article published on 13 August 2009

Comparison of risk stratification models for pregnancy in congenital heart disease

scientific article published on 12 September 2020

Comprehensive care for adults with congenital heart disease: expanding roles for nurses

scientific article published on February 2002

Congenital cardiovascular nursing: preparing for the next decade.

scientific article

Congenital heart disease in 111 225 births in Belgium: birth prevalence, treatment and survival in the 21st century.

scientific article published on 30 November 2008

Contraceptive Practices of Women With Complex Congenital Heart Disease

scientific article published on 18 December 2016

Convergent validity of the Cognitive Performance Scale of the interRAI acute care and the mini-mental state examination.

scientific article published on 6 February 2013

Conversion from cyclosporine to tacrolimus improves quality-of-life indices, renal graft function and cardiovascular risk profile

scientific article

Coping with type 1 diabetes through emerging adulthood: Longitudinal associations with perceived control and haemoglobin A1c.

scientific article published on 23 February 2016

Correction: Identity Statuses Throughout Adolescence and Emerging Adulthood: A Large-scale Study into Gender, Age, and Contextual Differences

scientific article published on 14 February 2018

Covered stent placement for treatment of coarctation of the aorta: immediate and long-term results

scientific article published on 28 October 2020

Creating the BELgian COngenital heart disease database combining administrative and clinical data (BELCODAC): Rationale, design and methodology

scientific article published on 27 May 2020

Critique on the conceptualisation of quality of life: a review and evaluation of different conceptual approaches

scientific article

Current attitude of rheumatology practitioners on transition and transfer from pediatric to adult health care

scientific article published on 14 September 2011

Delivery of care for adult patients with congenital heart disease in Europe: results from the Euro Heart Survey.

scientific article

Determining the impact of 24/7 phone support on hospital readmissions after aortic valve replacement surgery (the AVRre study): study protocol for a randomised controlled trial.

scientific article published on 30 May 2017

Development and persistence of depressive symptoms in adolescents with CHD.

scientific article published on August 2016

Development and preliminary evaluation of the validity and reliability of a revised illness perception questionnaire for healthcare professionals

scientific article

Development of an international research agenda for adult congenital heart disease nursing

scientific article published on 4 April 2012

Diagnostic accuracy of the Catheter Injection and Aspiration (CINAS) classification for assessing the function of totally implantable venous access devices

scientific article published on 26 July 2015

Differential impact of physical activity type on depression in adults with congenital heart disease: A multi-center international study

scientific article published on 05 July 2019

Discharge management for patients in Flemish psychiatric hospitals

scientific article

Discontinuity of Cardiac Follow-Up in Young People With Congenital Heart Disease Transitioning to Adulthood: A Systematic Review and Meta-Analysis

publication published on 04 March 2021

Distress associated with adverse effects of immunosuppressive medication in kidney transplant recipients

scientific article published in March 2010

Diverging illness perceptions between physicians about patients with systemic lupus erythematosus and systemic sclerosis: a vignette-based study.

scientific article published on 28 February 2017

Early physical and psycho-educational rehabilitation in patients with coronary artery bypass grafting: A randomized controlled trial

scientific article published on 01 February 2019

Early physical training and psycho-educational intervention for patients undergoing coronary artery bypass grafting. The SheppHeart randomized 2 × 2 factorial clinical pilot trial.

scientific article published on 17 July 2015

Eating Disorder Symptomatology and Identity Formation in Adolescence: A Cross-Lagged Longitudinal Approach.

scientific article published on 4 June 2018

Eating Disorder Symptomatology in Adolescent Boys and Girls: Identifying Distinct Developmental Trajectory Classes

scientific article published on 24 November 2019

Education as important predictor for successful employment in adults with congenital heart disease worldwide

scientific article published on 04 February 2019

Educational and behavioral issues in transitioning from pediatric cardiology to adult-centered health care.

scientific article

Effectiveness of structured education on knowledge and health behaviors in patients with congenital heart disease

scientific article published on April 2015

Effectiveness of structured patient education on the knowledge level of adolescents and adults with congenital heart disease

scientific article published on 17 February 2013

Eisenmenger syndrome: A clinical review

scientific article published on 21 June 2009

Emotions and health: findings from a randomized clinical trial on psychoeducational nursing to patients with implantable cardioverter defibrillator

scientific article published in May 2015

Empowering Young Persons with Congenital Heart Disease: Using Intervention Mapping to Develop a Transition Program - The STEPSTONES Project

scientific article published on 25 October 2019

Engagement of adults with congenital heart disease in research: overcoming barriers relating to social deprivation

scientific article published in October 2024

European cardiac nurses’ current practice and knowledge on anticoagulation therapy

scientific article published on 27 May 2013

European cardiovascular nurses' experiences of and attitudes towards having family members present in the resuscitation room

scientific article published on 4 November 2009

European nursing organizations stand up for family presence during cardiopulmonary resuscitation: a joint position statement.

scientific article published on January 2008

Evaluation of the appropriateness and outcome of in-hospital telemetry monitoring

scientific article published on 04 July 2013

Expectations and experiences of adolescents with congenital heart disease on being transferred from pediatric cardiology to an adult congenital heart disease program

scientific article published on 12 February 2009

Experiences of informal caregivers after cardiac surgery: a systematic integrated review of qualitative and quantitative studies

scientific article published on 11 November 2019

Explanatory value of the Ability Index as assessed by cardiologists and patients with congenital heart disease

scientific article

Exploring the activity profile of health care assistants and nurses in home nursing.

scientific article published on December 2015

Exploring the relationship between disease-related knowledge and health risk behaviours in young people with congenital heart disease

scientific article published on 30 December 2014

Fertility, pregnancy and delivery in women after biventricular repair for double outlet right ventricle.

scientific article published on 14 August 2007

First-generation versus third-generation comprehensive geriatric assessment instruments in the acute hospital setting: a comparison of the Minimum Geriatric Screening Tools (MGST) and the interRAI Acute Care (interRAI AC)

scientific article published on 01 August 2011

Forty years of quality-of-life research in congenital heart disease: Temporal trends in conceptual and methodological rigor

scientific article published on 15 May 2015

Functional evaluation of conventional 'Celsite' venous ports versus 'Vortex' ports with a tangential outlet: a prospective randomised pilot study

scientific article published on 15 April 2008

Geographical variation and predictors of physical activity level in adults with congenital heart disease

Health behaviours reported by adults with congenital heart disease across 15 countries

scientific article published on 17 September 2019

Health care providers' attitudes towards transfer and transition in young persons with long term illness- a web-based survey

scientific article

Health risk behaviors in adolescents and emerging adults with congenital heart disease: psychometric properties of the Health Behavior Scale-Congenital Heart Disease

scientific article published on 29 January 2013

Health status, functional abilities, and quality of life after the Mustard or Senning operation

scientific article published on April 2004

Health-related fitness profiles in adolescents with complex congenital heart disease

scientific article published on 31 January 2015

Health-related quality of life and symptom experience in tacrolimus-based regimens after renal transplantation: a multicentre study

scientific article published on 14 May 2003

Healthcare needs of adolescents with congenital heart disease transitioning into adulthood: a Delphi survey of patients, parents, and healthcare providers.

scientific article

Healthcare provision for adults with congenital heart disease in Europe: a review.

scientific article published on October 2010

Healthcare system inputs and patient-reported outcomes: a study in adults with congenital heart defect from 15 countries

scientific article published on 03 June 2020

Heart Failure Management Programmes in Europe

scientific article published on 01 September 2006

High readmission rates and mental distress after infective endocarditis - Results from the national population-based CopenHeart IE survey

scientific article published on 24 February 2017

Homograft survival after tetralogy of Fallot repair: determinants of accelerated homograft degeneration

scientific article published on 19 September 2007

Hopelessness among adults with congenital heart disease: Cause for despair or hope?

scientific article published on 21 December 2016

How meaningful is sense of coherence to cardiovascular nursing?

scientific article published on 12 July 2012

How to get the most out of ChatGPT? Tips and tricks on prompting

scholarly article

Identity Processes and Statuses in Patients with and without Eating Disorders

scientific article

Identity Statuses throughout Adolescence and Emerging Adulthood: A Large-Scale Study into Gender, Age, and Contextual Differences

scientific article published on 04 April 2017

Identity dynamics and peer relationship quality in adolescents with a chronic disease: the sample case of congenital heart disease

scientific article published on October 2012

Identity formation in adolescents and emerging adults with type 1 diabetes

scientific article published on 30 August 2019

Identity formation in adolescents with congenital cardiac disease: a forgotten issue in the transition to adulthood

scientific article

Illness Identity in Adolescents and Emerging Adults With Type 1 Diabetes: Introducing the Illness Identity Questionnaire

scientific article

Illness Identity in Adults with a Chronic Illness.

scientific article published on 21 February 2018

Illness Identity: A Novel Predictor for Healthcare Use in Adults With Congenital Heart Disease.

scientific article published on 22 May 2018

Illness identity in young adults with refractory epilepsy

scientific article published in February 2018

Illness identity: Capturing the influence of illness on the person's sense of self

scientific article published on 05 November 2018

Illness intrusiveness in parents of youth with type 1 diabetes: A longitudinal study

scientific article published on 21 April 2020

Illness perceptions in adult congenital heart disease: A multi-center international study.

scientific article

Illness representations of systemic lupus erythematosus and systemic sclerosis: a comparison of patients, their rheumatologists and their general practitioners.

scientific article published on 14 November 2017

Impact of corticosteroid-related symptoms in patients with immune thrombocytopenic purpura: results of a survey of 985 patients

scientific article

Impact of telephone follow-up and 24/7 hotline on 30-day readmission rates following aortic valve replacement -A randomized controlled trial

scientific article published on 30 July 2019

Impact of the COVID-19 pandemic on ongoing cardiovascular research projects: considerations and adaptations

scientific article published on 16 May 2020

Implantable cardioverter-defibrillators and patient-reported outcomes in adults with congenital heart disease: An international study

scientific article published on 30 November 2019

Implementation of discharge management for geriatric patients at risk of readmission or institutionalization

scientific article published on 22 July 2006

Implementation of the American College of Cardiology/American Heart Association 2008 Guidelines for the Management of Adults With Congenital Heart Disease

scientific article published on 9 May 2015

Implementation of transition programs can prevent another lost generation of patients with congenital heart disease

scientific article published on 01 December 2008

Improved perceived health status persists three months after a special sports camp for children with congenital heart disease

scientific article published on 23 May 2006

Individual and contextual determinants of quality of life in adolescents with congenital heart disease

scientific article published on 22 February 2012

Individual quality of life in adults with congenital heart disease: a paradigm shift.

scientific article published on 7 December 2004

Influence of percutaneous transcatheter closure of an atrial septal defect on the atrioventricular conduction

scientific article published on 01 June 2011

Instrument translation and initial psychometric evaluation of the Danish Body Image Quality of Life Inventory.

scientific article published on 15 January 2016

Insufficient living: experiences of recovery after infective endocarditis

scientific article published in May 2015

International research in cardiovascular nursing: Getting insight in the role of system factors

scientific article published on 25 April 2019

Interrater reliability of the interRAI Acute Care (interRAI AC).

scientific article published on 8 September 2011

Introducing Advanced Practice Nurses / Nurse Practitioners in health care systems: a framework for reflection and analysis

scientific article

Is quality of life the ultimate outcome parameter?

scientific article

Is sense of coherence a pathway for improving the quality of life of patients who grow up with chronic diseases? A hypothesis

scientific article

Is the severity of congenital heart disease associated with the quality of life and perceived health of adult patients?

scientific article published on September 2005

Landmark lecture in nursing: a life-cycle perspective on CHD: What happens beyond your clinic?

scientific article published in December 2017

Late acute rejection and subclinical noncompliance with cyclosporine therapy in heart transplant recipients

scientific article published on 01 September 1998

Lifespan Perspective on Congenital Heart Disease Research

journal article from 'Journal of the American College of Cardiology' published in 2021

Management of functional complications of totally implantable venous access devices by an advanced practice nursing team: 5 years of clinical experience

scientific article published on 21 January 2012

Management of venous access devices by Advanced Practice Nursing teams: more research needed

scientific article published on 03 October 2012

Measurement of itching: validation of the Leuven Itch Scale

scientific article published on 18 May 2011

Measuring knowledge of patients with congenital heart disease and their parents: validity of the 'Leuven Knowledge Questionnaire for Congenital Heart Disease'.

scientific article

Measuring symptom experience of side-effects of immunosuppressive drugs: the Modified Transplant Symptom Occurrence and Distress Scale.

scientific article published on 29 May 2008

Menstrual cycle and its disorders in women with congenital heart disease

article

Methods to assess the reliability of the interRAI Acute Care: a framework to guide clinimetric testing. Part II.

scientific article

Methods to assess the validity of the interRAI Acute Care: a framework to guide clinimetric testing

scientific article

Migraine and coarctation of the aorta: prevalence and risk factors

scientific article published in August 2008

Modifiable correlates of illness perceptions in adults with chronic somatic conditions: A systematic review.

scientific article published on 9 January 2018

Newly Developed Adult Congenital Heart Disease Anatomic and Physiological Classification: First Predictive Validity Evaluation

scientific article published on 24 February 2020

Nonadherence with immunosuppressive drugs: U.S. compared with European kidney transplant recipients

scientific article published in September 2006

Nurse Specialists in Adult Congenital Heart Disease: The Current Status in Europe

scientific article published on 09 December 2005

Outcome of pregnancy in women with congenital heart disease: a literature review

scientific article published on 4 June 2007

Outcome of the Glenn procedure as definitive palliation in single ventricle patients

scientific article published on 18 November 2019

Outpatient volumes and medical staffing resources as predictors for continuity of follow-up care during transfer of adolescents with congenital heart disease

scientific article published on 17 January 2020

Pain in adults with congenital heart disease - An international perspective

scientific article published in 2021

Parental and peer support in adolescents with a chronic condition: a typological approach and developmental implications

scientific article published on 14 September 2015

Parental illness intrusiveness and youth glycaemic control in type 1 diabetes: intergenerational associations and processes

scientific article published on 12 January 2019

Parental support, internalizing symptoms, perceived health status, and quality of life in adolescents with congenital heart disease: influences and reciprocal effects

scientific article published on 20 November 2012

Parental uncertainty about transferring their adolescent with congenital heart disease to adult care

scientific article published on 18 October 2018

Patient empowerment and its correlates in young persons with congenital heart disease

scientific article published on 05 March 2019

Patient empowerment in young persons with chronic conditions: Psychometric properties of the Gothenburg Young Persons Empowerment Scale (GYPES)

scientific article published on 20 July 2018

Patient knowledge of and adherence to oral anticoagulation therapy after mechanical heart-valve replacement for congenital or acquired valve defects

scientific article published in March 2011

Patient reported outcomes are associated with physical activity level in adults with congenital heart disease

scientific article

Patient-Reported Health in Young People With Congenital Heart Disease Transitioning to Adulthood

scientific article published on 3 October 2015

Patient-Reported Outcome Data From an Early Rheumatoid Arthritis Trial: Opportunities for Broadening the Scope of Treating to Target

scientific article published on 01 December 2019

Patient-Reported Outcomes in Adults With Congenital Heart Disease Following Hospitalization (from APPROACH-IS)

journal article from 'The American Journal of Cardiology' published in 2021

Patient-reported outcomes in adult survivors with single-ventricle physiology

scientific article

Patient-reported outcomes in adults with congenital heart disease: Inter-country variation, standard of living and healthcare system factors

scientific article

Patient-reported outcomes in congenital cardiac disease: are they as good as you think they are?

scientific article published on December 1, 2010

Patient-reported outcomes of adults with congenital heart disease from eight European countries: scrutinising the association with healthcare system performance

scientific article published on 26 February 2019

Patients' Perceptions of their Rheumatic Condition: Why Does it Matter and How Can Healthcare Professionals Influence or Deal with these Perceptions?

scientific article published on 8 December 2015

Patients, family members, and health professionals making decisions together about starting blood thinning treatment to prevent stroke in patients with an irregular heart rhythm

scientific article published in 2022

Perceived Health Mediates Effects of Physical Activity on Quality of Life in Patients With a Fontan Circulation

scientific article published on 10 April 2019

Perceived health is partially associated with the symptomatological profile in patients with benign and severe conditions: the case of congenital heart disease

scientific article published on 31 July 2012

Perineal colostomy with appendicostomy as an alternative for an abdominal colostomy: symptoms, functional status, quality of life, and perceived health

scientific article published in June 2007

Persisting anorectal dysfunction after rectal cancer surgery

scientific article published in November 2013

Person-centred transition programme to empower adolescents with congenital heart disease in the transition to adulthood: a study protocol for a hybrid randomised controlled trial (STEPSTONES project).

scientific article published on 17 April 2017

Personal and illness identity in youth with type 1 diabetes: Developmental trajectories and associations.

scholarly article

Personal attributes as determinants of timely care in rheumatoid arthritis

scientific article published on July 2006

Personality Functioning in Adolescents and Emerging Adults With Type 1 Diabetes

scientific article published on 25 September 2018

Personality and illness adaptation in adults with type 1 diabetes: the intervening role of illness coping and perceptions

scientific article published in March 2014

Personality and self-esteem in emerging adults with Type 1 diabetes

scientific article

Personality traits, quality of life and perceived health in adolescents with congenital heart disease

scientific article published on 5 October 2012

Phantom shocks in patients with implantable cardioverter defibrillator: results from a randomized rehabilitation trial (COPE-ICD).

scientific article published on 18 April 2013

Pharmacological treatment and perceived health status during 1-year follow up in patients diagnosed with coronary artery disease, but ineligible for revascularization. Results from the Euro Heart Survey on Coronary Revascularization

scientific article (publication date: June 2006)

Physical Activity-Related Drivers of Perceived Health Status in Adults With Congenital Heart Disease

article

Physical Functioning, Mental Health, and Quality of Life in Different Congenital Heart Defects: Comparative Analysis in 3538 Patients From 15 Countries

scientific article published on 06 April 2020

Physical self-concept and its link to cardiopulmonary exercise tolerance among adolescents with mild congenital heart disease.

scientific article

Practical challenges regarding in-hospital telemetry monitoring require the development of European practice standards

scientific article published on 19 July 2016

Predicting 15-Year Mortality in Adults With Congenital Heart Disease Using Disease Severity and Functional Indices

scientific article published on 26 April 2019

Predicting the risk of functional decline in older patients admitted to the hospital: a comparison of three screening instruments.

scientific article

Prediction of functional decline in older hospitalized patients: a comparative multicenter study of three screening tools.

scientific article published in October 2011

Predictive model for late atrial arrhythmia after closure of an atrial septal defect

scientific article published on 29 July 2011

Predictors of Care Gaps in Adolescents With Complex Chronic Condition Transitioning to Adulthood

scientific article published on 3 March 2016

Predictors of pregnancy complications in women with congenital heart disease

scientific article published on 28 June 2010

Pregnancy and delivery in women after Fontan palliation

scientific article published on 31 January 2006

Pregnancy in women with corrected tetralogy of Fallot: occurrence and predictors of adverse events.

scientific article

Pregnancy outcome in women with repaired versus unrepaired isolated ventricular septal defect

scientific article published on 15 February 2010

Pregnancy-related health behavior of women with congenital heart disease: room for behavioral change interventions

scientific article published in September 2009

Prehospital stroke scales in a Belgian prehospital setting: a pilot study

scientific article published on 01 February 2010

Prevalence and Effects of Cigarette Smoking, Cannabis Consumption, and Co-use in Adults From 15 Countries With Congenital Heart Disease

scientific article published on 14 August 2019

Prevalence and antithrombotic management of atrial fibrillation in hospitalised patients

scientific article

Prevalence of cardiovascular risk factors in adults with congenital heart disease

scientific article published on 01 August 2006

Prioritized outcomes to evaluate the effectiveness of atrial fibrillation disease management: A systematic review and Delphi study

scientific article published on 26 September 2015

Profile of adults with congenital heart disease having a good, moderate, or poor quality of life: a cluster analytic study

scientific article published on 18 December 2008

Propensity weighting: how to minimise comparative bias in non-randomised studies?

scientific article published on 01 January 2020

Prospective associations between illness perceptions and health outcomes in patients with systemic sclerosis and systemic lupus erythematosus: a cross-lagged analysis

scientific article published on 06 March 2018

Prospective clinical evaluation of the Polyperf® Safe, a safety Huber needle, in cancer patients

scientific article published in July 2011

Psychometric Properties of the “Modified Transplant Symptom Occurrence and Symptom Distress Scale”

scientific article published on 01 January 2001

Psychosocial functioning and glycemic control in emerging adults with Type 1 diabetes: A 5-year follow-up study

scientific article

Psychosocial functioning and quality of life in adults with congenital heart disease and heart failure

scientific article published on 5 October 2013

Psychosocial impact of implantable cardioverter defibrillators (ICD) in young adults with Tetralogy of Fallot.

scientific article

Quality of Life of Adults With Congenital Heart Disease in 15 Countries: Evaluating Country-Specific Characteristics.

scientific article published in May 2016

Quality of life and health status in adults with congenital heart disease: a direct comparison with healthy counterparts

scientific article published on 01 June 2006

Quality of life in adult congenital heart disease: what do we already know and what do we still need to know?

scientific article published on October 2013

Quality-of-life research in adult patients with congenital heart disease: current status and the way forward

scientific article published on 19 June 2019

Rapid reviews: the pros and cons of an accelerated review process

scientific article

Rationale, design and baseline data of a mixed methods study examining the clinical impact of a brief transition programme for young people with juvenile idiopathic arthritis: the DON'T RETARD project.

scientific article

Ready for Transfer to Adult Care? A Triadic Evaluation of Transition Readiness in Adolescents With Congenital Heart Disease and Their Parents

scientific article published on 25 July 2019

Real life evaluation of intravenous antibiotic treatment in a paediatric cystic fibrosis centre: outcome of home therapy is not inferior

scientific article

Recall of patients discharged from follow-up after repair of isolated congenital shunt lesions

scientific article published on 05 July 2016

Recommendations for advance care planning in adults with congenital heart disease: a position paper from the ESC Working Group of Adult Congenital Heart Disease, the Association of Cardiovascular Nursing and Allied Professions (ACNAP), the European

scientific article published on 29 August 2020

Red Flags for Maltese Adults with Congenital Heart Disease: Poorer Dental Care and Less Sports Participation Compared to Other European Patients-An APPROACH-IS Substudy

scientific article published on 24 March 2017

Regional variation in quality of life in patients with a Fontan circulation: A multinational perspective.

scientific article published on 2 August 2017

Religion and spirituality as predictors of patient-reported outcomes in adults with congenital heart disease around the globe

scientific article published on 23 July 2018

Requirements for Quality-Of-Life Reports

Research Electronic Data Capture (REDCap): tackling data collection, management, storage, and privacy challenges

scientific article published in 2021

Research in cardiovascular care: a position statement of the Council on Cardiovascular Nursing and Allied Professionals of the European Society of Cardiology

scientific article

Response to the Letter to the editor by Shoar et al. on outpatient volumes and medical staffing resources as predictors for continuity of follow-up care during transfer of adolescents with congenital heart disease

scientific article published on 01 August 2020

Response to the letter to the editor – Dr. ChatGPT in cardiovascular nursing: a deeper dive into trustworthiness, value, and potential risk

scientific article published in 2023

Screening for risk of readmission of patients aged 65 years and above after discharge from the emergency department: predictive value of four instruments.

scientific article published on December 2007

SecurAstaP trial: securement with SecurAcath versus StatLock for peripherally inserted central catheters, a randomised open trial

scientific article published on 24 February 2018

Self-classification as an adult in patients with type 1 diabetes: relationships with glycemic control and illness coping

scientific article published on 15 December 2010

Self-efficacy as a predictor of patient-reported outcomes in adults with congenital heart disease

scientific article

Self-reported physical activities in patients after the Mustard or Senning operation: comparison with healthy control subjects

scientific article published on 02 January 2007

Sense of coherence and perceived physical health explain the better quality of life in adolescents with congenital heart disease

scientific article

Sense of coherence as a predictor of quality of life in adolescents with congenital heart defects: a register-based 1-year follow-up study

scientific article published in May 2011

Sense of coherence as a resource for quality of life in patients with congenital heart disease: the benefits continue into adulthood

scientific article published on 29 April 2013

Sense of coherence does not moderate the relationship between the perceived impact of stress on health and self-rated health in adults with congenital heart disease

scientific article published on 26 November 2015

Sense of coherence in adults with congenital heart disease in 15 countries: Patient characteristics, cultural dimensions and quality of life

scientific article published on 11 June 2020

Sense of coherence in young people with congenital heart disease

scientific article

Sense of coherence is a predictor of perceived health in adolescents with congenital heart disease: a cross-lagged prospective study

scientific article published on 31 July 2012

Sense of coherence--a determinant of quality of life over time in older female acute myocardial infarction survivors.

scientific article

Sensory perceptions of patients with cancer undergoing surgical insertion of a totally implantable venous access device: a qualitative, exploratory study

scientific article

Serial pulmonary vascular resistance assessment in patients late after ventricular septal defect repair

scientific article published on 16 December 2018

Serious games for improving knowledge and self-management in young people with chronic conditions: a systematic review and meta-analysis.

scientific article published on 17 July 2015

Sexual concerns and practices after ICD implantation: findings of the COPE-ICD rehabilitation trial

scientific article published on 8 January 2013

Sexual counselling of cardiac patients in Europe: culture matters

scientific article published in October 2011

Sexual counselling of cardiac patients: nurses' perception of practice, responsibility and confidence

scientific article published on 11 December 2009

Sexual functioning and congenital heart disease: Something to worry about?

scientific article

SheppHeartCABG trial-comprehensive early rehabilitation after coronary artery bypass grafting: a protocol for a randomised clinical trial

scientific article published on 17 January 2017

Staffing, activities, and infrastructure in 96 specialised adult congenital heart disease clinics in Europe

scientific article published on 26 April 2019

Steroids may compromise quality of life of renal transplant recipients on a tacrolimus-based regimen

scientific article published in August 2002

Structure and activities of adult congenital heart disease programmes in Europe

scientific article published on 22 December 2009

Substance use, dental hygiene, and physical activity in adult patients with single ventricle physiology

scientific article published on 13 May 2013

Supplementing prediction by EuroSCORE with social and patient-reported measures among patients undergoing cardiac surgery

scientific article published on 01 December 2020

Symptom experience associated with immunosuppressive drugs after liver transplantation in adults: possible relationship with medication non-compliance?

scientific article published on 31 July 2008

Symptom experience associated with maintenance immunosuppression after heart transplantation: patients' appraisal of side effects

scientific article published in September 1998

Systematic review: malfunction of totally implantable venous access devices in cancer patients.

scientific article published on 10 May 2011

Temporal trends in survival to adulthood among patients born with congenital heart disease from 1970 to 1992 in Belgium

scientific article published on 22 November 2010

The 24-h recall instrument for home nursing to measure the activity profile of home nurses: development and psychometric testing

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The International Adult Congenital Heart Disease Nursing Network: coming together for the future.

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The NYHA classification, employment, and physical activities are poor indicators of quality of life after congenital cardiac surgery

scientific article published in September 2006

The Role of Peers for Diabetes Management in Adolescents and Emerging Adults With Type 1 Diabetes: A Longitudinal Study

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The Science Committee of the CCNAP: Eager to Start

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The Science Committee of the Council of Cardiovascular Nursing and Allied Professions: Moving forward.

scientific article published on 31 August 2016

The Scope of Research on Transfer and Transition in Young Persons With Chronic Conditions

scientific article published on 17 September 2019

The Social Context and Illness Identity in Youth with Type 1 Diabetes: A Three-Wave Longitudinal Study

scientific article published on 18 December 2019

The challenge of non-adherence to early rehabilitation after coronary artery bypass surgery: Secondary results from the SheppHeartCABG trial

scientific article published on 19 October 2019

The clinical impact of a brief transition programme for young people with juvenile idiopathic arthritis: results of the DON'T RETARD project

scientific article published on 28 August 2015

The construct and concurrent validity of the EQ-5D in a renal transplant population.

scientific article published in July 2004

The effect of bosentan in patients with a failing Fontan circulation.

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The effectiveness of inpatient geriatric evaluation and management units: a systematic review and meta-analysis.

scientific article published on 09 December 2009

The future of adult patients after Mustard or Senning repair for transposition of the great arteries

scientific article published on 10 January 2006

The importance of methodological rigour in quality-of-life studies

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The importance of studying personality in individuals with congenital heart disease

The interRAI Acute Care instrument incorporated in an eHealth system for standardized and web-based geriatric assessment: strengths, weaknesses, opportunities and threats in the acute hospital setting.

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The other side of the coin: perceived positive effects of illness in women following acute myocardial infarction

scientific article published on 31 October 2007

The outcome of Eisenmenger patients with trisomy 21 does not differ from patients without trisomy 21.

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The role of nurses in a chest pain unit

scientific article published on 8 March 2007

The spectrum of adult congenital heart disease in Europe: morbidity and mortality in a 5 year follow-up period. The Euro Heart Survey on adult congenital heart disease

scientific article published on 04 July 2005

Thirty-day readmissions in surgical and transcatheter aortic valve replacement: A systematic review and meta-analysis.

scientific article published on 17 May 2018

Three live-birth pregnancies in a woman with Williams syndrome

scientific article published on 01 March 2007

Time to expand risk evaluation systems for cardiac surgery? Looking beyond physiological parameters

scientific article published on 13 June 2018

Trajectories of loneliness in adolescents with congenital heart disease: associations with depressive symptoms and perceived health

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Transfer and transition practices in 96 European adult congenital heart disease centres

scientific article published on 01 December 2020

Transfer from paediatric rheumatology to the adult rheumatology setting: experiences and expectations of young adults with juvenile idiopathic arthritis

scientific article published on 14 December 2012

Transfer of adolescents with congenital heart disease from pediatric cardiology to adult health care: an analysis of transfer destinations

scientific article published on 01 June 2011

Transition program for adolescents with congenital heart disease in transition to adulthood: protocol for a mixed-method process evaluation study (the STEPSTONES project)

scientific article published on 02 August 2019

Transitional care for adolescents with rheumatic diseases: urgent need for more research

scientific article published on 01 May 2008

Uncertainties in insurances for adults with congenital heart disease

scientific article published on 18 March 2015

Unraveling Patient-Preferred Health and Treatment Outcomes in Early Rheumatoid Arthritis: A Longitudinal Qualitative Study.

scientific article published on 29 December 2015

Unravelling the role of sense of coherence: more research is needed to empirically underpin the construct

scientific article published on 10 May 2013

Updating EuroSCORE by including emotional, behavioural, social and functional factors to the risk assessment of patients undergoing cardiac surgery: a study protocol

scientific article published on 03 July 2019

Validity of the interRAI Acute Care based on test content: a multi-center study.

scientific article published in October 2011

Validity, reliability and responsiveness of a Dutch version of the prolapse quality-of-life (P-QoL) questionnaire

scientific article published on 16 January 2010

Validity, reliability and responsiveness of the "Schedule for the Evaluation of Individual Quality of Life-Direct Weighting" (SEIQoL-DW) in congenital heart disease

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Validity, reliability and responsiveness of the Body Image Quality of Life Inventory in patients treated for infective endocarditis.

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What do cardiovascular nurses know about the hematological management of patients with Eisenmenger syndrome?

scientific article published on 7 June 2009

What does it mean to grow up with juvenile idiopathic arthritis? A qualitative study on the perspectives of patients.

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What does it mean to live with a congenital heart disease? A qualitative study on the lived experiences of adult patients

scientific article published on 01 March 2005

What if your patient switches from Dr. Google to Dr. ChatGPT? A vignette-based survey of the trustworthiness, value, and danger of ChatGPT-generated responses to health questions

scientific article published in 2023

Why call it health-related quality of life when you mean perceived health status?

scientific article published in December 2004

Why some people do well and others don't. The role of sense of coherence in disease adaptation

scientific article published on 27 June 2018