List of works - Elizabeth L Sampson

A co-design process developing heuristics for practitioners providing end of life care for people with dementia

scientific article

A framework for understanding quality of life in individuals without capacity

scientific article published on 22 August 2013

A protocol for an exploratory phase I mixed-methods study of enhanced integrated care for care home residents with advanced dementia: the Compassion Intervention.

scientific article

A qualitative study exploring the difficulties influencing decision making at the end of life for people with dementia

scientific article

A systematic review of the prevalence, associations and outcomes of dementia in older general hospital inpatients

scientific article published on 18 August 2010

A volumetric magnetic resonance imaging study of the amygdala in frontotemporal lobar degeneration and Alzheimer's disease

scientific article published on 05 August 2005

Advance Care Planning in Dementia: Do Family Carers Know the Treatment Preferences of People with Early Dementia?

scientific article

Advance care planning for people with dementia: a review.

scientific article published on 26 August 2011

Agitation near the end of life with dementia: An ethnographic study of care

scientific article published on 23 October 2019

An ethnographic study of strategies to support discussions with family members on end-of-life care for people with advanced dementia in nursing homes

scientific article

Anticholinergic Burden Does Not Influence Delirium Subtype or the Delirium-Mortality Association in Hospitalized Older Adults: Results from a Prospective Cohort Study

scientific article published on 08 January 2021

Barriers to providing end-of-life care for people with dementia: a whole-system qualitative study.

scientific article published in March 2012

Behavioural and psychiatric symptoms in people with dementia admitted to the acute hospital: prospective cohort study.

scientific article published on 24 July 2014

Challenges and opportunities in understanding dementia and delirium in the acute hospital

scientific article

Clinical effectiveness of a manual based coping strategy programme (START, STrAtegies for RelaTives) in promoting the mental health of carers of family members with dementia: pragmatic randomised controlled trial

scientific article published on 25 October 2013

Clinical practice with anti-dementia drugs: A revised (third) consensus statement from the British Association for Psychopharmacology

scientific article

CoMPASs: IOn programme (Care Of Memory Problems in Advanced Stages of dementia: Improving Our Knowledge): protocol for a mixed methods study

scientific article

Context, mechanisms and outcomes in end of life care for people with advanced dementia

scientific article

Cost effectiveness of a manual based coping strategy programme in promoting the mental health of family carers of people with dementia (the START (STrAtegies for RelaTives) study): a pragmatic randomised controlled trial

scientific article published on 25 October 2013

Delusions in frontotemporal lobar degeneration

scientific article published on 09 April 2009

Dementia in the acute hospital: prospective cohort study of prevalence and mortality

scientific article published in July 2009

Dementia prevention, intervention, and care.

scientific article

Detection of delirium in the acute hospital

scientific article

Development of a model for integrated care at the end of life in advanced dementia: A whole systems UK-wide approach

scientific article published on 9 September 2015

Development, feasibility, and acceptability of an intervention to improve care for agitation in people living in nursing homes with dementia nearing the end-of-life

scientific article published on 15 September 2020

Editorial: End of life care in dementia

scholarly article by Louise Robinson & Elizabeth L. Sampson published 29 June 2009 in Dementia (journal)

Empowering Better End-of-Life Dementia Care (EMBED-Care): A mixed methods protocol to achieve integrated person-centred care across settings

scientific article published on 18 December 2019

Enteral tube feeding for older people with advanced dementia

scientific article

Erratum to: A co-design process developing heuristics for practitioners providing end of life care for people with dementia

scientific article published on 18 August 2016

Evidence-based clinical practice guidelines on management of pain in older people

scientific article

Experiences of end of life amongst family carers of people with advanced dementia: longitudinal cohort study with mixed methods

scientific article

Grief reactions in dementia carers: a systematic review.

scientific article published on 08 March 2012

Guiding practitioners through end of life care for people with dementia: The use of heuristics

scientific article published in PLoS ONE

Healthcare decision-making: past present and future, in light of a diagnosis of dementia.

scientific article published on January 2017

Implementing the compassion intervention, a model for integrated care for people with advanced dementia towards the end of life in nursing homes: a naturalistic feasibility study

scientific article

Improving end of life care for people with dementia: a rapid participatory appraisal

scientific article published on 31 March 2012

Improving the care of people with dementia in general hospitals: evaluation of a whole-system train-the-trainer model

scientific article published on 21 December 2016

Key components of the delirium syndrome and mortality: greater impact of acute change and disorganised thinking in a prospective cohort study

scientific article published on 25 January 2018

Key components of the delirium syndrome and mortality: greater impact of acute change and disorganised thinking in a prospective cohort study

article published in 2018

Living With an Older Person Dying From Cancer, Lung Disease, or Dementia: Health Outcomes From a General Practice Cohort Study

scientific article

Making decisions for people with dementia who lack capacity: qualitative study of family carers in UK

scientific article

Mapping and understanding the decision-making process for providing nutrition and hydration to people living with dementia: a systematic review

scientific article published on 02 December 2020

Nutrition and hydration for people living with dementia near the end of life: A qualitative systematic review

scientific article published on 29 November 2020

Opioids for agitation in dementia

scientific article

Pain and delirium: mechanisms, assessment, and management

scientific article published on 09 January 2020

Pain in Dementia

scholarly article published 2017

Palliative assessment and advance care planning in severe dementia: an exploratory randomized controlled trial of a complex intervention

scientific article published on 12 January 2011

Palliative care for people with dementia.

scientific article published on 30 July 2010

Palliative care in advanced dementia; A mixed methods approach for the development of a complex intervention

scientific article

Palliative care interventions in advanced dementia

scientific article

Pilot cluster randomised trial of an evidence-based intervention to reduce avoidable hospital admissions in nursing home residents (Better Health in Residents of Care Homes with Nursing-BHiRCH-NH Study)

scientific article published on 13 December 2020

Planning a personalised future with dementia: ‘the misleading simplicity of advance directives’ ⬇️

scientific article published on May 1, 2013

Preferences for end-of-life care: a nominal group study of people with dementia and their family carers.

scientific article published on 5 November 2012

Prognostic indicators of 6-month mortality in elderly people with advanced dementia: a systematic review.

scientific article published on 22 November 2012

Social networks, social capital and end-of-life care for people with dementia: a realist review

scientific article published on 09 December 2019

Survival of community-dwelling older people: the effect of cognitive impairment and social engagement

scientific article

Survival of people with dementia after unplanned acute hospital admission: a prospective cohort study

scientific article published on 21 December 2012

The Association between Home Healthcare and Burdensome Transitions at the End-of-Life in People with Dementia: A 12-Year Nationwide Population-Based Cohort Study

scientific article published on 10 December 2020

The Influence of Oral Health Factors on the Quality of Life in Older People: A Systematic Review

scientific article published on 12 September 2019

The assessment and management of pain in patients with dementia in hospital settings: a multi-case exploratory study from a decision making perspective. ⬇️

scientific article

The management of behavioural and psychological symptoms of dementia in the acute general medical hospital: a longitudinal cohort study.

scientific article published on 27 March 2016

The role of the memory service in helping carers to prepare for end of life: A mixed methods study.

scientific article

The use of facial expressions for pain assessment purposes in dementia: a narrative review

scientific article published on April 2016

Tools to Assess Pain or Lack of Comfort in Dementia: A Content Analysis.

scientific article

UK end-of-life care services in dementia, initiatives and sustainability: results of a national online survey.

scientific article

UK quality statements on end of life care in dementia: a systematic review of research evidence

scientific article

Using sense-making theory to aid understanding of the recognition, assessment and management of pain in patients with dementia in acute hospital settings ⬇️

scientific article published on 31 August 2015

VBM signatures of abnormal eating behaviours in frontotemporal lobar degeneration

scientific article

Volunteer activity in specialist paediatric palliative care: a national survey

scientific article

Volunteers in specialist palliative care: a survey of adult services in the United Kingdom

scientific article

When pain memories are lost: a pilot study of semantic knowledge of pain in dementia

scientific article published on 08 January 2014

Which Facial Descriptors Do Care Home Nurses Use to Infer Whether a Person with Dementia Is in Pain?

scientific article published in November 2017

List of works by Elizabeth L Sampson

A co-design process developing heuristics for practitioners providing end of life care for people with dementia

A framework for understanding quality of life in individuals without capacity

A protocol for an exploratory phase I mixed-methods study of enhanced integrated care for care home residents with advanced dementia: the Compassion Intervention.

A qualitative study exploring the difficulties influencing decision making at the end of life for people with dementia

A systematic review of the prevalence, associations and outcomes of dementia in older general hospital inpatients

A volumetric magnetic resonance imaging study of the amygdala in frontotemporal lobar degeneration and Alzheimer's disease

Advance Care Planning in Dementia: Do Family Carers Know the Treatment Preferences of People with Early Dementia?

Advance care planning for people with dementia: a review.

Agitation near the end of life with dementia: An ethnographic study of care

An ethnographic study of strategies to support discussions with family members on end-of-life care for people with advanced dementia in nursing homes

Anticholinergic Burden Does Not Influence Delirium Subtype or the Delirium-Mortality Association in Hospitalized Older Adults: Results from a Prospective Cohort Study

Barriers to providing end-of-life care for people with dementia: a whole-system qualitative study.

Behavioural and psychiatric symptoms in people with dementia admitted to the acute hospital: prospective cohort study.

Challenges and opportunities in understanding dementia and delirium in the acute hospital

Clinical effectiveness of a manual based coping strategy programme (START, STrAtegies for RelaTives) in promoting the mental health of carers of family members with dementia: pragmatic randomised controlled trial

Clinical practice with anti-dementia drugs: A revised (third) consensus statement from the British Association for Psychopharmacology

CoMPASs: IOn programme (Care Of Memory Problems in Advanced Stages of dementia: Improving Our Knowledge): protocol for a mixed methods study

Context, mechanisms and outcomes in end of life care for people with advanced dementia

Cost effectiveness of a manual based coping strategy programme in promoting the mental health of family carers of people with dementia (the START (STrAtegies for RelaTives) study): a pragmatic randomised controlled trial

Delusions in frontotemporal lobar degeneration

Dementia in the acute hospital: prospective cohort study of prevalence and mortality

Dementia prevention, intervention, and care.

Detection of delirium in the acute hospital

Development of a model for integrated care at the end of life in advanced dementia: A whole systems UK-wide approach

Development, feasibility, and acceptability of an intervention to improve care for agitation in people living in nursing homes with dementia nearing the end-of-life

Editorial: End of life care in dementia

Empowering Better End-of-Life Dementia Care (EMBED-Care): A mixed methods protocol to achieve integrated person-centred care across settings

Enteral tube feeding for older people with advanced dementia

Erratum to: A co-design process developing heuristics for practitioners providing end of life care for people with dementia

Evidence-based clinical practice guidelines on management of pain in older people

Experiences of end of life amongst family carers of people with advanced dementia: longitudinal cohort study with mixed methods

Grief reactions in dementia carers: a systematic review.

Guiding practitioners through end of life care for people with dementia: The use of heuristics

Healthcare decision-making: past present and future, in light of a diagnosis of dementia.

Implementing the compassion intervention, a model for integrated care for people with advanced dementia towards the end of life in nursing homes: a naturalistic feasibility study

Improving end of life care for people with dementia: a rapid participatory appraisal

Improving the care of people with dementia in general hospitals: evaluation of a whole-system train-the-trainer model

Key components of the delirium syndrome and mortality: greater impact of acute change and disorganised thinking in a prospective cohort study

Key components of the delirium syndrome and mortality: greater impact of acute change and disorganised thinking in a prospective cohort study

Living With an Older Person Dying From Cancer, Lung Disease, or Dementia: Health Outcomes From a General Practice Cohort Study

Making decisions for people with dementia who lack capacity: qualitative study of family carers in UK

Mapping and understanding the decision-making process for providing nutrition and hydration to people living with dementia: a systematic review

Nutrition and hydration for people living with dementia near the end of life: A qualitative systematic review

Opioids for agitation in dementia

Pain and delirium: mechanisms, assessment, and management

Pain in Dementia

Palliative assessment and advance care planning in severe dementia: an exploratory randomized controlled trial of a complex intervention

Palliative care for people with dementia.

Palliative care in advanced dementia; A mixed methods approach for the development of a complex intervention

Palliative care interventions in advanced dementia

Pilot cluster randomised trial of an evidence-based intervention to reduce avoidable hospital admissions in nursing home residents (Better Health in Residents of Care Homes with Nursing-BHiRCH-NH Study)

Planning a personalised future with dementia: ‘the misleading simplicity of advance directives’ ⬇️

Preferences for end-of-life care: a nominal group study of people with dementia and their family carers.

Prognostic indicators of 6-month mortality in elderly people with advanced dementia: a systematic review.

Social networks, social capital and end-of-life care for people with dementia: a realist review

Survival of community-dwelling older people: the effect of cognitive impairment and social engagement

Survival of people with dementia after unplanned acute hospital admission: a prospective cohort study

The Association between Home Healthcare and Burdensome Transitions at the End-of-Life in People with Dementia: A 12-Year Nationwide Population-Based Cohort Study

The Influence of Oral Health Factors on the Quality of Life in Older People: A Systematic Review

The assessment and management of pain in patients with dementia in hospital settings: a multi-case exploratory study from a decision making perspective. ⬇️

The management of behavioural and psychological symptoms of dementia in the acute general medical hospital: a longitudinal cohort study.

The role of the memory service in helping carers to prepare for end of life: A mixed methods study.

The use of facial expressions for pain assessment purposes in dementia: a narrative review

Tools to Assess Pain or Lack of Comfort in Dementia: A Content Analysis.

UK end-of-life care services in dementia, initiatives and sustainability: results of a national online survey.

UK quality statements on end of life care in dementia: a systematic review of research evidence

Using sense-making theory to aid understanding of the recognition, assessment and management of pain in patients with dementia in acute hospital settings ⬇️

VBM signatures of abnormal eating behaviours in frontotemporal lobar degeneration

Volunteer activity in specialist paediatric palliative care: a national survey

Volunteers in specialist palliative care: a survey of adult services in the United Kingdom

When pain memories are lost: a pilot study of semantic knowledge of pain in dementia

Which Facial Descriptors Do Care Home Nurses Use to Infer Whether a Person with Dementia Is in Pain?