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List of works by Jenny T van der Steen

A cross-cultural study of physician treatment decisions for demented nursing home patients who develop pneumonia

scientific article

A family booklet about comfort care in advanced dementia: three-country evaluation

scientific article published on 21 March 2011

A model for quality of life measures in patients with dementia: Lawton's next step.

scientific article published on 21 June 2004

A validated risk score to estimate mortality risk in patients with dementia and pneumonia: barriers to clinical impact

scientific article published on 26 July 2010

Achieving consensus and controversy around applicability of palliative care to dementia.

scientific article published on 10 June 2015

Advance Care Planning in Nursing Home Patients With Dementia: A Qualitative Interview Study Among Family and Professional Caregivers

scientific article published on 5 August 2015

Advance care planning and physician orders in nursing home residents with dementia: a nationwide retrospective study among professional caregivers and relatives

scientific article published on 21 June 2013

Advance directives and physicians' orders in nursing home residents with dementia in Flanders, Belgium: prevalence and associated outcomes

scientific article published on 27 February 2012

An evaluation of palliative care contents in national dementia strategies in reference to the European Association for Palliative Care white paper

scientific article

Antibiotic prescribing in Dutch nursing homes: how appropriate is it?

scientific article published on 20 November 2014

Antibiotic treatment and survival of nursing home patients with lower respiratory tract infection: a cross-national analysis.

scientific article

Antibiotic use and associated factors in patients with dementia: a systematic review

scientific article

Antibiotic use and resistance in long term care facilities.

scientific article published on 09 May 2012

Antibiotics and mortality in patients with lower respiratory infection and advanced dementia.

scientific article published on 8 October 2010

Apathy and weight loss in nursing home residents: longitudinal study

scientific article published on 23 January 2013

Benefits and pitfalls of pooling datasets from comparable observational studies: combining US and Dutch nursing home studies.

scientific article published in September 2008

Caregivers' understanding of dementia predicts patients' comfort at death: a prospective observational study

scientific article

Causes of reporting bias: a theoretical framework

article

Causes of reporting bias: a theoretical framework

scientific article published on 12 March 2019

Changes in Care Goals and Treatment Orders Around the Occurrence of Health Problems and Hospital Transfers in Dementia: A Prospective Study.

scientific article published on 21 November 2016

Characteristics Associated with Quality of Life in Long-Term Care Residents with Dementia: A Cross-Sectional Study

scientific article published on 27 September 2016

Comfort and clinical events at the end of life of nursing home residents with and without dementia: The six-country epidemiological PACE study

scientific article published on 03 March 2020

Comfort goal of care and end-of-life outcomes in dementia: A prospective study

scientific article published on 17 February 2015

Comparing Palliative Care in Care Homes Across Europe (PACE): Protocol of a Cross-sectional Study of Deceased Residents in 6 EU Countries

scientific article published on 6 May 2016

Components of palliative care interventions addressing the needs of people with dementia living in long-term care: A systematic review

scientific article published on 04 February 2020

Conceptualization of a good end-of-life experience with dementia in Japan: a qualitative study

scientific article published on 28 August 2019

Continuous deep sedation until death in nursing home residents with dementia: a case series

scientific article published on 3 September 2013

Critical decisions for older people with advanced dementia: a prospective study in long-term institutions and district home care

scientific article published on 2 April 2015

Decision-making in patients with severe dementia and pneumonia: cross-national perspectives

scientific article published on 01 February 2011

Decisions to treat or not to treat pneumonia in demented psychogeriatric nursing home patients: development of a guideline.

scientific article

Decisions to treat or not to treat pneumonia in demented psychogeriatric nursing home patients: evaluation of a guideline

scientific article published in July 2001

Dementia, Lower Respiratory Tract Infection, and Long-Term Mortality

scientific article published on 14 June 2007

Determinants of selective reporting: A taxonomy based on content analysis of a random selection of the literature

scientific article

Development of a practice guideline for optimal symptom relief for patients with pneumonia and dementia in nursing homes using a Delphi study

scientific article published on 7 July 2014

Discomfort in dementia patients dying from pneumonia and its relief by antibiotics

scientific article

Do Findings of High Mortality From Pneumonia in the Elderly Make It the Old Man's Friend?

scientific article published on 01 January 2004

Dying with dementia: symptoms, treatment, and quality of life in the last week of life

scientific article

Een handreiking voor familieleden over palliatieve zorg bij dementie: evaluatie door zorgverleners en familieleden

scientific article published on 01 October 2011

Effect of tailored antibiotic stewardship programmes on the appropriateness of antibiotic prescribing in nursing homes

scientific article

Effects of Nurses' Screening of Spiritual Needs of Hospitalized Patients on Consultation and Perceived Nurses' Support and Patients' Spiritual Well-being

scientific article published in November 2015

Effects of a Stepwise Multidisciplinary Intervention for Challenging Behavior in Advanced Dementia: A Cluster Randomized Controlled Trial

scientific article published on 25 January 2016

Effects of a spiritual care training for nurses

scientific article

End-of-life decision making in nursing home residents with dementia and pneumonia: Dutch physicians' intentions regarding hastening death.

scientific article

End-of-life treatment decisions in nursing home residents dying with dementia in the Netherlands

scientific article published on 29 December 2016

Ensuring continuous high-quality care for people with impaired cognition including dementia at the end of life

scientific article published on 01 October 2012

European palliative care guidelines: how well do they meet the needs of people with impaired cognition?

scientific article

Evaluations of end of life with dementia by families in Dutch and U.S. nursing homes

scientific article

Examining trust in health professionals among family caregivers of nursing home residents with advanced dementia.

scientific article

Experiences with the Liverpool care pathway for the dying patient in nursing home residents: a mixed-method study to assess physicians' and nurse practitioners' perceptions

scientific article published on 30 November 2020

Factors Related to Rejection of Care and Behaviors Directed towards Others: A Longitudinal Study in Nursing Home Residents with Dementia.

scientific article published on January 2015

Factors associated with initiation of advance care planning in dementia: a systematic review

scientific article published on January 2014

Factors influencing antibiotic prescribing in long-term care facilities: a qualitative in-depth study

scientific article

Factors related to establishing a comfort care goal in nursing home patients with dementia: a cohort study among family and professional caregivers

scientific article

Family perceptions of end-of-life care for long-term care residents with dementia: differences between the United States and the Netherlands

scientific article published on 30 January 2012

Family perceptions of wishes of dementia patients regarding end-of-life care

scientific article published in February 2011

Feedback on end-of-life care in dementia: the study protocol of the FOLlow-up project

scientific article

From admission to death: prevalence and course of pain, agitation, and shortness of breath, and treatment of these symptoms in nursing home residents with dementia.

scientific article

General practitioners perceptions on advance care planning for patients living with dementia

scientific article published on 23 April 2015

Hospitalizations of nursing home residents with dementia in the last month of life: results from a nationwide survey

scientific article published on 27 May 2014

Improved end-of-life care for patients with dementia: greater family satisfaction and possibly greater end-of-life comfort

scientific article published in January 2013

Initiating advance care planning on end-of-life issues in dementia: Ambiguity among UK and Dutch physicians

scientific article published on 11 April 2016

Interventions targeting pain or behaviour in dementia: a systematic review.

scientific article published on 28 May 2013

Involvement in activities and wandering in nursing home residents with cognitive impairment.

scientific article published in July 2013

Letter referring to the article "development and testing of a decision aid on goals of care for advanced dementia" by Einterz et al.

scientific article published on 8 April 2014

Measuring end-of-life care and outcomes in residential care/assisted living and nursing homes

scientific article published on 6 September 2014

Measuring the quality of dying and quality of care when dying in long-term care settings: a qualitative content analysis of available instruments.

scientific article published on 26 May 2011

Modifiable factors related to abusive behaviors in nursing home residents with dementia

scientific article published on 9 October 2009

Mortality following nursing home-acquired lower respiratory infection: LRI severity, antibiotic treatment, and water intake

scientific article published on 22 April 2011

Nursing Staff Needs in Providing Palliative Care for Persons With Dementia at Home or in Nursing Homes: A Survey

scientific article published on 10 February 2020

Nursing home residents dying with dementia in Flanders, Belgium: a nationwide postmortem study on clinical characteristics and quality of dying

scientific article published on 21 March 2013

Orofacial Pain during Mastication in People with Dementia: Reliability Testing of the Orofacial Pain Scale for Non-Verbal Individuals

scientific article published on 8 February 2016

Palliative Care in Dementia 1986-2016: Progress and Remaining Challenges.

scientific article

Palliative Care in People With Young-Onset Dementia (YOD): An Undiscovered Area!

scientific article published on 18 August 2015

Palliative care provision in long-term care facilities differs across Europe: Results of a cross-sectional study in six European countries (PACE)

scientific article published on 01 July 2019

Participatory action research in antimicrobial stewardship: a novel approach to improving antimicrobial prescribing in hospitals and long-term care facilities

scientific article

Physicians' and Nurses' Perceived Usefulness and Acceptability of a Family Information Booklet about Comfort Care in Advanced Dementia

article

Physicians' perceptions of suffering in people with dementia at the end of life

scientific article published on 23 January 2017

Pneumonia, Intake Problems, and Survival Among Nursing Home Residents With Variable Stages of Dementia in the Netherlands: Results From a Prospective Observational Study

scientific article published on 15 November 2016

Pneumonia: the demented patient's best friend? Discomfort after starting or withholding antibiotic treatment

scientific article published in October 2002

Practical nursing recommendations for palliative care for people with dementia living in long-term care facilities during the COVID-19 pandemic: A rapid scoping review

scientific article published on 30 September 2020

Prediction of 6-month Mortality in Nursing Home Residents with Advanced Dementia: Validity of a Risk Score

scientific article published on 13 August 2007

Predictors of mortality for lower respiratory infections in nursing home residents with dementia were validated transnationally

scientific article published on 23 May 2006

Predictors of spiritual care provision for patients with dementia at the end of life as perceived by physicians: a prospective study

scientific article

Professional caregivers' experiences with the Liverpool Care Pathway in dementia: An ethnographic study in a Dutch nursing home

scientific article published on 11 July 2017

Prognosis is important in decisionmaking in Dutch nursing home patients with dementia and pneumonia

scientific article published in September 2009

Prolonged Life and Increased Symptoms vs Prolonged Dying and Increased Comfort After Antibiotic Treatment in Patients With Dementia and Pneumonia ⬇️

scientific article published on January 10, 2011

Prospective Observations of Discomfort, Pain, and Dyspnea in Nursing Home Residents With Dementia and Pneumonia

scientific article published on 22 September 2015

Psychometric properties of instruments to measure the quality of end-of-life care and dying for long-term care residents with dementia.

scientific article published on 5 August 2011

Quality of dying in nursing home residents dying with dementia: does advanced care planning matter? A nationwide postmortem study

scientific article

Quality of dying of nursing home residents with dementia as judged by relatives

scientific article published on 5 June 2013

Ratings of symptoms and comfort in dementia patients at the end of life: comparison of nurses and families

scientific article published on 03 April 2009

Reform influences location of death: Interrupted time-series analysis on older adults and persons with dementia

scientific article published on 04 November 2020

Relationship between symptoms of depression and agitation in nursing home residents with dementia

scientific article published on 28 September 2011

Retrospective and prospective data collection compared in the Dutch End Of Life in Dementia (DEOLD) study

scientific article

Selecting the best instruments to measure quality of end-of-life care and quality of dying in long term care

scientific article published on 17 November 2012

Selection bias in family reports on end of life with dementia in nursing homes

scientific article

Severe Dementia and Adverse Outcomes of Nursing Home-Acquired Pneumonia: Evidence for Mediation by Functional and Pathophysiological Decline

scientific article published on 01 March 2002

Spiritual end-of-life care in Dutch nursing homes: an ethnographic study

scientific article

Spirituality at the end of life: conceptualization of measurable aspects-a systematic review

scientific article published on 25 May 2011

Symptom relief in patients with pneumonia and dementia: implementation of a practice guideline

scientific article published on 28 July 2016

Symptoms and treatment when death is expected in dementia patients in long-term care facilities

scientific article

Symptoms, signs, problems, and diseases of terminally ill nursing home patients: a nationwide observational study in the Netherlands

scientific article

The 'natural' endpoint of dementia: death from cachexia or dehydration following palliative care?

scientific article published in April 2007

The Bedford Alzheimer nursing-severity scale to assess dementia severity in advanced dementia: a nonparametric item response analysis and a study of its psychometric characteristics

scientific article published in October 2013

The implementation of the serial trial intervention for pain and challenging behaviour in advanced dementia patients (STA OP!): a clustered randomized controlled trial

scientific article

The importance of physician presence in nursing homes for residents with dementia and pneumonia

scientific article published on 11 August 2010

The last days of life of nursing home patients with and without dementia assessed with the Palliative care Outcome Scale

scholarly article by Hella E Brandt et al published June 2005 in Palliative Medicine

Tools for Determining Life Expectancy in End-Stage Dementia: Validation Studies

scientific article published on 01 June 2008

Tools to Assess Pain or Lack of Comfort in Dementia: A Content Analysis.

scientific article

Toward a theory-based specification of non-pharmacological treatments in aging and dementia: Focused reviews and methodological recommendations

scientific article published on 20 November 2020

Translation and cross-cultural adaptation of a family booklet on comfort care in dementia: sensitive topics revised before implementation

scientific article published on 10 November 2012

Treatment of nursing home residents with dementia and lower respiratory tract infection in the United States and The Netherlands: an ocean apart

scientific article published in May 2004

Treatment strategy and risk of functional decline and mortality after nursing-home acquired lower respiratory tract infection: two prospective studies in residents with dementia

scientific article published on 01 October 2007

Treatments in patients dying with dementia: a cross-cultural perspective

scientific article published in March 2008

Trends in treatment of pneumonia among Dutch nursing home patients with dementia

scientific article

Verwijzen naar het hospice: verwijsgedrag van artsen en ervaren belemmeringen in Deventer en omgeving

scientific article published in December 2014

What research we no longer need in neurodegenerative disease at the end of life: The case of research in dementia

scientific article published on 01 March 2015

When do people with dementia die peacefully? An analysis of data collected prospectively in long-term care settings

scientific article

When should physicians forgo curative treatment of pneumonia in patients with dementia? Using a guideline for decision-making.

scientific article

Which moral barriers and facilitators do physicians encounter in advance care planning conversations about the end of life of persons with dementia? A meta-review of systematic reviews and primary studies

scientific article published on 12 November 2020

White paper defining optimal palliative care in older people with dementia: a Delphi study and recommendations from the European Association for Palliative Care.

scientific article published on 4 July 2013

Withholding antibiotic treatment in pneumonia patients with dementia: a quantitative observational study

scientific article published in August 2002

Withholding or starting antibiotic treatment in patients with dementia and pneumonia: prediction of mortality with physicians' judgment of illness severity and with specific prognostic models.

scientific article published in March 2005

[Measuring quality of life in nursing home residents with severe dementia: psychometric properties of the QUALID scale].

scientific article published in October 2009

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