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List of works by Marion McAllister

Assessment of patient empowerment--a systematic review of measures

scientific article published on 13 May 2015

Conceptualising patient empowerment: a mixed methods study

scientific article

Developing an intervention to facilitate family communication about inherited genetic conditions, and training genetic counsellors in its delivery

scientific article published on 7 October 2015

Empowerment: qualitative underpinning of a new clinical genetics-specific patient-reported outcome

scientific article

Evaluating empowerment in genetic counseling using patient-reported outcomes

scientific article published on 23 October 2019

Experiences of Women Who Underwent Predictive BRCA 1/2 Mutation Testing Before the Age of 30.

scientific article published on 19 May 2015

Exploring the feasibility of delivering standardized genomic care using ophthalmology as an example

scientific article published on 16 March 2017

Family Communication in Inherited Cardiovascular Conditions in Ireland

scientific article

Identifying variation in models of care for the genomic-based diagnosis of inherited retinal dystrophies in the United Kingdom

scientific article published on 15 April 2016

Improving Service Evaluation in Clinical Genetics: Identifying Effects of Genetic Diseases on Individuals and Families

article

Outcome measurement in clinical genetics services: a systematic review of validated measures.

scientific article published on May 2008

Outcome measures for clinical genetics services: A comparison of genetics healthcare professionals and patients’ views

article

Patient empowerment in clinical genetics services.

scientific article published on October 2008

Patient empowerment: the need to consider it as a measurable patient-reported outcome for chronic conditions

scientific article

Patient reported outcomes and patient empowerment in clinical genetics services

scientific article

Personal theories of inheritance, coping strategies, risk perception and engagement in hereditary non-polyposis colon cancer families offered genetic testing

scientific article published in September 2003

Predictive Genetic Testing and Beyond: A Theory of Engagement

scientific article published on 01 September 2002

Shock, adjust, decide: reproductive decision making in cystic fibrosis (CF) carrier couples--a qualitative study

scientific article published on 5 April 2011

Standards for the Reporting of Genetic Counseling Interventions in Research and Other Studies (GCIRS): an NSGC Task Force Report

scientific article

The Genetic Counseling Outcome Scale: a new patient-reported outcome measure for clinical genetics services

scientific article published on 14 February 2011

The emotional effects of genetic diseases: Implications for clinical genetics

article

The need to develop an evidence base for genetic counselling in Europe.

scientific article published on 15 July 2015

The perceived personal control (PPC) questionnaire: Reliability and validity in a sample from the United Kingdom

scientific article published on 07 December 2011

Training Genetic Counsellors to Deliver an Innovative Therapeutic Intervention: their Views and Experience of Facilitating Multi-Family Discussion Groups

scientific article published on 10 October 2016

Translation and Adaptation of the Genetic Counselling Outcome Scale (GCOS-24) for Use in Denmark

scientific article published on 6 March 2017

Understanding the expectations of patients with inherited retinal dystrophies.

scientific article published on 5 June 2013

Understanding the impact of genetic testing for inherited retinal dystrophy.

scientific article published on 13 February 2013

Using Patient-Reported Outcome Measures for Quality Improvement in Clinical Genetics: an Exploratory Study

scientific article

Valuing Preferences for the Process and Outcomes of Clinical Genetics Services: A Pilot Study

scientific article

Valuing the benefits of genetic testing for retinitis pigmentosa: a pilot application of the contingent valuation method

scientific article published on 06 June 2013

Valuing the economic benefits of complex interventions: when maximising health is not sufficient ⬇️

scientific article published on February 6, 2012

What process attributes of clinical genetics services could maximise patient benefits?

scientific article

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