List of works by Stephanie Sivell

"I didn't really understand it, I just thought it'd help": exploring the motivations, understandings and experiences of patients with advanced lung cancer participating in a non-placebo clinical IMP trial

scientific article

012 Improving the transition process for young people with life-limiting conditions

article by Stephanie Sivell et al published October 2013 in BMJ supportive & palliative care

110 Motivations of palliative lung cancer patients to participate in a non-placebo clinical trial (QualFRAG)

A decision explorer for women deciding about breast cancer treatments

A feasibility study to inform the design of a randomised controlled trial to identify the most clinically effective and cost-effective length of Anticoagulation with Low-molecular-weight heparin In the treatment of Cancer-Associated Thrombosis (ALIC

scientific article

An exploratory comparison of genetic counselling protocols for HNPCC predictive testing

article

Assessing the quality of decision support technologies using the International Patient Decision Aid Standards instrument (IPDASi)

scientific article published in 2009

BresDex Questionnaire

C08-C Decision-Making of Treatment In Advanced Lung Cancer: Results from the First Three Stages of the PACT Study (An Intervention to Support Advanced Lung Cancer Patients and Their Clinicians When Considering Systemic Anti-Cancer Therapy)

CONDUCTING QUALITATIVE RESEARCH INTERVIEWS WITH PALLIATIVE AND END OF LIFE CARE PATIENTS IN THE HOME SETTING; REFLECTIONS AND RECOMMENDATIONS FROM AN ACADEMIC PALLIATIVE CARE RESEARCH CENTRE

article

Cancer genetic risk assessment for individuals at risk of familial breast cancer

scientific article

Clinicians' concerns about decision support interventions for patients facing breast cancer surgery options: understanding the challenge of implementing shared decision-making

scientific article published on 28 October 2010

Considerations and recommendations for conducting qualitative research interviews with palliative and end-of-life care patients in the home setting: a consensus paper: Table 1

article

Decision aids for familial breast cancer: exploring women's views using focus groups

scientific article published on September 2006

Developing an intervention to support lung cancer patients and their clinicians when considering systemic anti-cancer therapy: pact study.

scientific article published on 29 November 2013

Development of an intervention to support patients and clinicians with advanced lung cancer when considering systematic anticancer therapy: protocol for the PACT study.

scientific article published on 12 July 2017

Exploring the requirements for a decision aid on familial breast cancer in the UK context: a qualitative study with patients referred to a cancer genetics service

article

Factors influencing the surgery intentions and choices of women with early breast cancer: the predictive utility of an extended theory of planned behaviour.

scientific article

How risk is perceived, constructed and interpreted by clients in clinical genetics, and the effects on decision making: systematic review

scientific article published on 30 October 2007

How to develop web-based decision support interventions for patients: a process map.

scientific article published on 2 June 2010

Identifying the key elements of an education package to up-skill multidisciplinary adult specialist palliative care teams caring for young adults with life-limiting conditions: an online Delphi study

scientific article

Increasing readiness to decide and strengthening behavioral intentions: evaluating the impact of a web-based patient decision aid for breast cancer treatment options (BresDex: www.bresdex.com).

scientific article

Interventions to improve risk communication in clinical genetics: systematic review

scientific article published on 18 January 2008

Managing, making sense of and finding meaning in advanced illness: a qualitative exploration of the coping and wellbeing experiences of patients with lung cancer.

scientific article published on 16 October 2017

Minimum standards for the certification of patient decision support interventions: feasibility and application

scientific article published on 31 December 2014

O-13 Understanding dying: Supplementary report from the palliative and end of life care priority setting partnership (PEOLCPSP)

article published in 2015

O-14 Unmet need in out of hours and emergency support: supplementary report from the palliative and end of life care priority setting partnership (peolcpsp)

P109 Transition in palliative care study day series

Palliative care research centre's move into social media: constructing a framework for ethical research, a consensus paper

scientific article published on 28 January 2016

Palliative radiotherapy in addition to self-expanding metal stent for improving outcomes of dysphagia and survival in advanced oesophageal cancer: ROCS (Radiotherapy after Oesophageal Cancer Stenting) Study

article

Process and outcome in communication of genetic information within families: a systematic review

scientific article published on 4 July 2007

RELATIVES' PREFERRED PLACE OF CARE AT THE END-OF-LIFE: IMPLICATIONS FOR PALLIATIVE CARE IN THE FUTURE

scholarly article by C Woodman et al published March 2015 in BMJ supportive & palliative care

Supporting adults bereaved through advanced illness: development of a core outcome set (COS)

article

Supporting people bereaved through advanced illness: a systematic review of the evidence

article by Emily J Harrop et al published September 2016 in BMJ supportive & palliative care

THE POTENTIAL FOR NURSE INDEPENDENT PRESCRIBING BY THE CLINICAL NURSE SPECIALIST IN PALLIATIVE CARE IN THE COMMUNITY; ATTITUDES AND EXPERIENCES OF GENERAL PRACTITIONERS

article by Elaine McGleish et al published March 2015 in BMJ supportive & palliative care

THE USE OF SOCIAL MEDIA IN A PALLIATIVE CARE RESEARCH CENTRE

scholarly article by N Hopewell-Kelly et al published March 2015 in BMJ supportive & palliative care

The Three-item ALERT-B Questionnaire Provides a Validated Screening Tool to Detect Chronic Gastrointestinal Symptoms after Pelvic Radiotherapy in Cancer Survivors.

scientific article

The experiences of palliative lung cancer patients participating in a clinical trial

The preferences and perspectives of family caregivers towards place of care for their relatives at the end-of-life. A systematic review and thematic synthesis of the qualitative evidence

scientific article published on 19 May 2015

Theory based analysis of the effects of decision aids for surgery in early breast cancer: a systematic review

article

Theory-based design and field-testing of an intervention to support women choosing surgery for breast cancer: BresDex.

scientific article published on 14 May 2011

Toward Minimum Standards for Certifying Patient Decision Aids: A Modified Delphi Consensus Process

scientific article

Understanding surgery choices for breast cancer: how might the Theory of Planned Behaviour and the Common Sense Model contribute to decision support interventions?

scientific article published on March 2011

‘Go home with your family and a lot of kit, and we’ll leave you to it’: perceptions of out of hours care by the PeolcPSP respondents

‘NEW’ POPULATION, NEW CHALLENGES: YOUNG ADULTS IN PALLIATIVE CARE