List of works - Nancy L. Young

A Conceptual Model of the Factors Affecting the Recreation and Leisure Participation of Children with Disabilities

A comparison of different indices of responsiveness

scientific article published on 01 March 1997

A prospective study of health-related quality of life of boys with severe haemophilia A in China: comparing on-demand to prophylaxis treatment.

scientific article published on 27 March 2017

A screening mechanism to recognize and support at-risk Aboriginal children.

scientific article published on 27 December 2016

Adherence to treatment regimen and bleeding rates in a prospective cohort of youth and young adults on low-dose daily prophylaxis for severe hemophilia A.

scientific article

Advancing rehabilitation research: an interactionist perspective to guide question and design

scientific article published on October 2006

An Examination of Adolescent Bone Tumor Patient Responses on the Activities Scale for Kids (ASK)

article

An examination of quality of life of children and parents during their Tele-Homecare experience

scientific article published in December 2006

Assessing children's interpretations of the Aboriginal Children's Health and Well-Being Measure (ACHWM).

scientific article published on 22 July 2015

Beyond the patient: lessons from community engagement in a rural First Nation

scientific article published on 01 November 2018

CARIFS: The Canadian Acute Respiratory Illness and Flu Scale

article

Canadian Acute Respiratory Illness and Flu Scale (CARIFS)

article

Challenges of patient-reported outcome assessment in hemophilia care—a state of the art review

scientific article published on July 2009

Changes in gross motor function and health-related quality of life in adults with cerebral palsy: an 8-year follow-up study.

scientific article published on 6 June 2014

Children's and parents' beliefs regarding the value of walking: rehabilitation implications for children with cerebral palsy

scientific article

Community-based participatory research with indigenous communities: the proximity paradox

scientific article published on 3 October 2013

Comparing the burden of illness of haemophilia between resource-constrained and unconstrained countries: the São Paulo-Toronto Hemophilia Study

scientific article published on 24 April 2017

Comparing two measures of quality of life for children with haemophilia: the CHO-KLAT and the Haemo-QoL.

scientific article published in November 2006

Comparison of oral versus normal and high-dose rectal acetaminophen in the treatment of febrile children

scientific article published on September 2002

Comparison of three outcomes instruments in children

scientific article published on 01 July 2001

Complexities during transitions to adulthood for youth with disabilities: person-environment interactions

scientific article

Connecting to the Good Life through outdoor adventure leadership experiences designed for Indigenous youth

Construct validation of the Health Utilities Index and the Child Health Questionnaire in children undergoing cancer chemotherapy.

scientific article published on April 2003

Cross-cultural adaptation of the CHO-KLAT for boys with hemophilia in rural and urban China

scientific article

Cross-cultural validation of the CHO-KLAT and HAEMO-QoL-A in Canadian French

scientific article published on 21 November 2011

Describing the quality of life of boys with haemophilia in China: Results of a multicentre study using the CHO-KLAT.

scientific article published on 18 September 2017

Developing a disease activity tool for systemic-onset juvenile idiopathic arthritis by international consensus using the Delphi approach

scientific article

Disability Evaluation in Children With Hemidecorticectomy: Use of the Activity Scales for Kids and the Pediatric Evaluation Disability Inventory

scientific article published on 01 January 2000

Effectiveness of Telehealth for Teaching Specialized Hand-assessment Techniques to Physical Therapists

scientific article published on 01 October 2000

Evaluating physical function in an adolescent bone tumor population

scientific article

Evaluation of health related quality of life in children with immune thrombocytopenia with the PedsQL™ 4.0 Generic Core Scales: a study on behalf of the pays de Loire pediatric hematology network

scientific article

Exploration of nurses' pediatric pain management experiences in rural hospitals: A qualitative descriptive study

scientific article published on 18 June 2018

Exploring disability from the perspective of adults living with HIV/AIDS: development of a conceptual framework

scientific article

Generic and disease-specific quality of life among youth and young men with Hemophilia in Canada.

scientific article

Health outcomes among youths and adults with spina bifida

scientific article published on 17 November 2012

Health profiles of First Nations children living on-reserve in Northern Ontario: a pooled analysis of survey data.

scientific article

Health-related quality of life (HRQL) scores reported from parents and their children with chronic illness differed depending on utility elicitation method

scientific article

Health-related quality of life outcomes for patients with immune thrombocytopenic purpura.

scientific article

Health-related quality of life questionnaires in individuals with haemophilia: a systematic review of their measurement properties.

scientific article

How do existing HIV-specific instruments measure up? Evaluating the ability of instruments to describe disability experienced by adults living with HIV.

scientific article

How well does the Canadian Haemophilia Outcomes-Kids' Life Assessment Tool (CHO-KLAT) measure the quality of life of boys with haemophilia?

scientific article

Impact of prophylaxis on health-related quality of life of boys with hemophilia: An analysis of pooled data from 9 countries

scientific article published on 23 April 2019

Impairment and activity limitation associated with epiphyseal dysplasia in children 11No commercial party having a direct financial interest in the results of the research supporting this article has or will confer a benefit upon the author(s) or upo

scientific article published on 01 October 2004

Importance of literacy for self-reported health-related quality of life: a study of boys with haemophilia in Brazil.

scientific article published on 20 June 2013

Inaccessible childhoods: evaluating accessibility in homes, schools and neighbourhoods with disabled children

Indigenous Healing and Seeking Safety: A Blended Implementation Project for Intergenerational Trauma and Substance Use Disorders

Insight into health-related quality of life of young children with haemophilia B treated with long-acting nonacog beta pegol recombinant factor IX.

scientific article published on 30 March 2017

International cross-cultural validation study of the Canadian haemophilia outcomes: kids' life assessment tool

scientific article published on 4 December 2014

Keeping kids safe: caregivers' perspectives on the determinants of physical activity in rural Indigenous communities

scientific article published on 20 March 2019

Leisure-Time Physical Activity in adults with Cerebral Palsy

scientific article published on 30 May 2015

Looking Beyond the Bright Lights: Identifying Canadian Indicators of Health for Children in Rural and Northern Regions

article

Measurement properties of the Activities Scale for Kids

scientific article published on 01 February 2000

Measuring disease-specific quality of life in rare populations: a practical approach to cross-cultural translation

scientific article

Measuring patient-reported outcomes in haemophilia clinical research.

scientific article published on 07 April 2009

Measuring the impact of changing from standard half-life (SHL) to extended half-life (EHL) FVIII prophylaxis on health-related quality of life (HRQoL) in boys with moderate/severe haemophilia A: Lessons learned with the CHO-KLAT tool

scientific article published on 22 December 2019

Men on the margin: A Bourdieusian examination of living into adulthood with muscular dystrophy

scientific article published on 04 May 2007

Oral oseltamivir treatment of influenza in children.

scientific article

Paediatric health-related quality of life: what is it and why should we measure it?

scientific article published on 6 October 2016

Patient preferences before and after total knee arthroplasty

scientific article published on 11 December 2009

Patient-reported outcomes for the myelodysplastic syndromes: a new MDS-specific measure of quality of life

scientific article

Patterns of participation in recreational and leisure activities among children with complex physical disabilities

scientific article

Pediatric pain patterns during Ilizarov treatment of limb length discrepancy and angular deformity.

scientific article published in May 1994

Pilot study of the effect of romiplostim on child health-related quality of life (HRQoL) and parental burden in immune thrombocytopenia (ITP).

scientific article

Preference-based measurement of health-related quality of life (HRQL) in children with chronic musculoskeletal disorders (MSKDs).

scientific article

Process and experience of cross-cultural adaptation of a quality of life measure (CHO-KLAT) for boys with haemophilia in Brazil.

scientific article published on 20 June 2013

Putting episodic disability into context: a qualitative study exploring factors that influence disability experienced by adults living with HIV/AIDS.

scientific article

Quality of life in childhood immune thrombocytopenia: international validation of the kids' ITP tools

scientific article

Quality of life in immune thrombocytopenia following treatment

scientific article

Rasch analysis of the Western Ontario McMaster (WOMAC) Osteoarthritis Index: results from community and arthroplasty samples.

scientific article published in November 2003

Reasons for hospital admissions among youth and young adults with cerebral palsy

scientific article published on January 2011

Relationships among bleeding severity, health-related quality of life, and platelet count in children with immune thrombocytopenic purpura

scientific article

Relevance of the Aboriginal Children's Health and Well-being Measure Beyond Wiikwemkoong.

scientific article published on 04 April 2017

Reliability of the Aboriginal Children's Health and Well-Being Measure (ACHWM).

scientific article published on 7 December 2016

Returning the focus to the quality of life of boys with Haemophilia

scholarly article by Nancy L. Young et al published 2 March 2007 in Pediatric Blood Cancer

Revised versions of the Childhood Health Assessment Questionnaire (CHAQ) are more sensitive and suffer less from a ceiling effect

article

Taking the call-bell home: a qualitative evaluation of Tele-HomeCare for children

scientific article published on 01 May 2006

Telehomecare: a comparison of three Canadian models

scientific article published on 01 January 2004

The Application of Two-Eyed Seeing Decolonizing Methodology in Qualitative and Quantitative Research for the Treatment of Intergenerational Trauma and Substance Use Disorders

The Internet is valid and reliable for child-report: an example using the Activities Scale for Kids (ASK) and the Pediatric Quality of Life Inventory (PedsQL).

scientific article published in October 2008

The Jamaican Haemophilia Registry: Describing the burden of disease

scientific article published on 31 May 2018

The Relationship Between Function, Self-perception, and Spinal Deformity

scientific article published on 01 January 2005

The burden of waiting for hip and knee replacements in Ontario. Ontario Hip and Knee Replacement Project Team

scientific article published on February 1997

The clinical meaning of functional outcome scores in children with juvenile arthritis

scientific article published on 01 August 2001

The context of measuring disability: Does it matter whether capability or performance is measured?

scientific article published on 01 October 1996

The health and quality of life outcomes among youth and young adults with cerebral palsy

scientific article published in January 2010

The role of children in reporting their physical disability

scientific article published on 01 October 1995

The transition study: a look at youth and adults with cerebral palsy, spina bifida and acquired brain injury

scientific article published in January 2006

The transition to adulthood for children with cerebral palsy: what do we know about their health care needs?

scientific article published on June 2007

Transition to adult-oriented health care: perspectives of youth and adults with complex physical disabilities

scientific article published in January 2009

Updating the Canadian hemophilia outcomes-kids life assessment tool (CHO-KLAT Version2.0).

scientific article

Use of health care among adults with chronic and complex physical disabilities of childhood

scientific article published in December 2005

Using exploratory focus groups to establish a sampling strategy to investigate disability experienced by adults living with HIV.

scientific article published in November 2009

Validation and reliability of a disease-specific quality of life measure (the TranQol) in adults and children with thalassaemia major

scientific article

Validation of the Chinese version of the Canadian Haemophilia Outcomes-Kids' Life Assessment Tool (the CHO-KLAT).

scientific article published on 2 October 2014

Validity of a modified standard gamble elicited from parents of a hospital-based cohort of children

scientific article published on 01 September 2003

Validity of the Aboriginal children's health and well-being measure: Aaniish Naa Gegii?

scientific article

Validity of the Portuguese CHO-KLAT in Brazil

scientific article published on 25 July 2016

Validity, reliability, and responsiveness of a new measure of health-related quality of life in children with immune thrombocytopenic purpura: the Kids' ITP Tools.

scientific article

What do we really know about the transition to adult-centered health care? A focus on cerebral palsy and spina bifida

scientific article

What does "active disease" mean? patient and parent perceptions of disease activity in the systemic arthritis form of juvenile idiopathic arthritis (SO-JIA).

scientific article

Why should we care about quality of life in persons with haemophilia?

scientific article published on 22 February 2012

Youth and young adults with cerebral palsy: their use of physician and hospital services

scientific article published in June 2007

Youth and young adults with spina bifida: their utilization of physician and hospital services

scientific article published on 2 October 2013

List of works by Nancy L. Young

A Conceptual Model of the Factors Affecting the Recreation and Leisure Participation of Children with Disabilities

A comparison of different indices of responsiveness

A prospective study of health-related quality of life of boys with severe haemophilia A in China: comparing on-demand to prophylaxis treatment.

A screening mechanism to recognize and support at-risk Aboriginal children.

Adherence to treatment regimen and bleeding rates in a prospective cohort of youth and young adults on low-dose daily prophylaxis for severe hemophilia A.

Advancing rehabilitation research: an interactionist perspective to guide question and design

An Examination of Adolescent Bone Tumor Patient Responses on the Activities Scale for Kids (ASK)

An examination of quality of life of children and parents during their Tele-Homecare experience

Assessing children's interpretations of the Aboriginal Children's Health and Well-Being Measure (ACHWM).

Beyond the patient: lessons from community engagement in a rural First Nation

CARIFS: The Canadian Acute Respiratory Illness and Flu Scale

Canadian Acute Respiratory Illness and Flu Scale (CARIFS)

Challenges of patient-reported outcome assessment in hemophilia care—a state of the art review

Changes in gross motor function and health-related quality of life in adults with cerebral palsy: an 8-year follow-up study.

Children's and parents' beliefs regarding the value of walking: rehabilitation implications for children with cerebral palsy

Community-based participatory research with indigenous communities: the proximity paradox

Comparing the burden of illness of haemophilia between resource-constrained and unconstrained countries: the São Paulo-Toronto Hemophilia Study

Comparing two measures of quality of life for children with haemophilia: the CHO-KLAT and the Haemo-QoL.

Comparison of oral versus normal and high-dose rectal acetaminophen in the treatment of febrile children

Comparison of three outcomes instruments in children

Complexities during transitions to adulthood for youth with disabilities: person-environment interactions

Connecting to the Good Life through outdoor adventure leadership experiences designed for Indigenous youth

Construct validation of the Health Utilities Index and the Child Health Questionnaire in children undergoing cancer chemotherapy.

Cross-cultural adaptation of the CHO-KLAT for boys with hemophilia in rural and urban China

Cross-cultural validation of the CHO-KLAT and HAEMO-QoL-A in Canadian French

Describing the quality of life of boys with haemophilia in China: Results of a multicentre study using the CHO-KLAT.

Developing a disease activity tool for systemic-onset juvenile idiopathic arthritis by international consensus using the Delphi approach

Disability Evaluation in Children With Hemidecorticectomy: Use of the Activity Scales for Kids and the Pediatric Evaluation Disability Inventory

Effectiveness of Telehealth for Teaching Specialized Hand-assessment Techniques to Physical Therapists

Evaluating physical function in an adolescent bone tumor population

Evaluation of health related quality of life in children with immune thrombocytopenia with the PedsQL™ 4.0 Generic Core Scales: a study on behalf of the pays de Loire pediatric hematology network

Exploration of nurses' pediatric pain management experiences in rural hospitals: A qualitative descriptive study

Exploring disability from the perspective of adults living with HIV/AIDS: development of a conceptual framework

Generic and disease-specific quality of life among youth and young men with Hemophilia in Canada.

Health outcomes among youths and adults with spina bifida

Health profiles of First Nations children living on-reserve in Northern Ontario: a pooled analysis of survey data.

Health-related quality of life (HRQL) scores reported from parents and their children with chronic illness differed depending on utility elicitation method

Health-related quality of life outcomes for patients with immune thrombocytopenic purpura.

Health-related quality of life questionnaires in individuals with haemophilia: a systematic review of their measurement properties.

How do existing HIV-specific instruments measure up? Evaluating the ability of instruments to describe disability experienced by adults living with HIV.

How well does the Canadian Haemophilia Outcomes-Kids' Life Assessment Tool (CHO-KLAT) measure the quality of life of boys with haemophilia?

Impact of prophylaxis on health-related quality of life of boys with hemophilia: An analysis of pooled data from 9 countries

Impairment and activity limitation associated with epiphyseal dysplasia in children 11No commercial party having a direct financial interest in the results of the research supporting this article has or will confer a benefit upon the author(s) or upo

Importance of literacy for self-reported health-related quality of life: a study of boys with haemophilia in Brazil.

Inaccessible childhoods: evaluating accessibility in homes, schools and neighbourhoods with disabled children

Indigenous Healing and Seeking Safety: A Blended Implementation Project for Intergenerational Trauma and Substance Use Disorders

Insight into health-related quality of life of young children with haemophilia B treated with long-acting nonacog beta pegol recombinant factor IX.

International cross-cultural validation study of the Canadian haemophilia outcomes: kids' life assessment tool

Keeping kids safe: caregivers' perspectives on the determinants of physical activity in rural Indigenous communities

Leisure-Time Physical Activity in adults with Cerebral Palsy

Looking Beyond the Bright Lights: Identifying Canadian Indicators of Health for Children in Rural and Northern Regions

Measurement properties of the Activities Scale for Kids

Measuring disease-specific quality of life in rare populations: a practical approach to cross-cultural translation

Measuring patient-reported outcomes in haemophilia clinical research.

Measuring the impact of changing from standard half-life (SHL) to extended half-life (EHL) FVIII prophylaxis on health-related quality of life (HRQoL) in boys with moderate/severe haemophilia A: Lessons learned with the CHO-KLAT tool

Men on the margin: A Bourdieusian examination of living into adulthood with muscular dystrophy

Oral oseltamivir treatment of influenza in children.

Paediatric health-related quality of life: what is it and why should we measure it?

Patient preferences before and after total knee arthroplasty

Patient-reported outcomes for the myelodysplastic syndromes: a new MDS-specific measure of quality of life

Patterns of participation in recreational and leisure activities among children with complex physical disabilities

Pediatric pain patterns during Ilizarov treatment of limb length discrepancy and angular deformity.

Pilot study of the effect of romiplostim on child health-related quality of life (HRQoL) and parental burden in immune thrombocytopenia (ITP).

Preference-based measurement of health-related quality of life (HRQL) in children with chronic musculoskeletal disorders (MSKDs).

Process and experience of cross-cultural adaptation of a quality of life measure (CHO-KLAT) for boys with haemophilia in Brazil.

Putting episodic disability into context: a qualitative study exploring factors that influence disability experienced by adults living with HIV/AIDS.

Quality of life in childhood immune thrombocytopenia: international validation of the kids' ITP tools

Quality of life in immune thrombocytopenia following treatment

Rasch analysis of the Western Ontario McMaster (WOMAC) Osteoarthritis Index: results from community and arthroplasty samples.

Reasons for hospital admissions among youth and young adults with cerebral palsy

Relationships among bleeding severity, health-related quality of life, and platelet count in children with immune thrombocytopenic purpura

Relevance of the Aboriginal Children's Health and Well-being Measure Beyond Wiikwemkoong.

Reliability of the Aboriginal Children's Health and Well-Being Measure (ACHWM).

Returning the focus to the quality of life of boys with Haemophilia

Revised versions of the Childhood Health Assessment Questionnaire (CHAQ) are more sensitive and suffer less from a ceiling effect

Taking the call-bell home: a qualitative evaluation of Tele-HomeCare for children

Telehomecare: a comparison of three Canadian models

The Application of Two-Eyed Seeing Decolonizing Methodology in Qualitative and Quantitative Research for the Treatment of Intergenerational Trauma and Substance Use Disorders

The Internet is valid and reliable for child-report: an example using the Activities Scale for Kids (ASK) and the Pediatric Quality of Life Inventory (PedsQL).