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List of works by Kathryn E. Flynn

A comparison of cancer survivors from the PROMIS study selecting telephone versus online questionnaires

scientific article published on July 2013

A conceptual framework for patient-centered fertility treatment.

scientific article published on 7 September 2017

A new outcome measure for LUTS: Symptoms of Lower Urinary Tract Dysfunction Research Network Symptom Index-29 (LURN SI-29) questionnaire

scientific article published on 21 June 2019

A typology of preferences for participation in healthcare decision making

scientific article

Accuracy of 30-day recall for components of sexual function and the moderating effects of gender and mood

scientific article published on 26 June 2013

Assessment of vulvar discomfort with sexual activity among women in the United States

scientific article

Baseline patient-reported outcomes in light-chain amyloidosis patients enrolled on an interventional clinical trial

scientific article published on 01 January 2019

Can we agree on patient-reported outcome measures for assessing hematopoietic cell transplantation patients? A study from the CIBMTR and BMT CTN.

scientific article published on 9 May 2016

Centralized patient-reported outcome data collection in transplantation is feasible and clinically meaningful

scientific article

Chronic Myeloid Leukemia-the Promise of Tyrosine Kinase Inhibitor Discontinuation.

scientific article published on 25 September 2017

Construct validity of the PROMIS® sexual function and satisfaction measures in patients with cancer

scientific article published on 11 March 2013

Content validity of the PROMIS® pediatric family relationships measure for children with chronic illness

scientific article published on 19 October 2018

Correction to: Inflammatory Bowel Diseases Can Adversely Impact Domains of Sexual Function Such as Satisfaction with Sex Life.

scientific article published in October 2018

Decisional conflict among patients who accept or decline participation in phase I oncology studies

scientific article published on September 2008

Design and rationale for the life after stopping tyrosine kinase inhibitors (LAST) study, a prospective, single-group longitudinal study in patients with chronic myeloid leukemia.

scientific article published on 2 April 2018

Development and Initial Validation of the PROMIS(®) Sexual Function and Satisfaction Measures Version 2.0.

scientific article published on 07 September 2015

Development and Validation of a Single-Item Screener for Self-Reporting Sexual Problems in U.S. Adults

scientific article

Development of the NIH PROMIS ® Sexual Function and Satisfaction measures in patients with cancer

scientific article published on February 2013

Effects of exercise training on health status in patients with chronic heart failure: HF-ACTION randomized controlled trial

scientific article published on April 2009

Evaluation of Flibanserin: Science and Advocacy at the FDA

scientific article

Exploring Patient Decision Making Regarding Discontinuation of Tyrosine Kinase Inhibitors for Chronic Myeloid Leukemia

scientific article published on 03 April 2019

Female Sexual Dysfunction-Medical and Psychological Treatments, Committee 14.

scientific article

From physician to consumer: the effectiveness of strategies to manage health care utilization

scientific article

Hemoglobin, exercise training, and health status in patients with chronic heart failure (from the HF-ACTION randomized controlled trial).

scientific article published on 27 June 2013

Impact of pediatric cancer on family relationships.

scientific article

Improving patients' understanding of terms and phrases commonly used in self-reported measures of sexual function

scientific article

In Reply

scientific article published on 24 December 2019

Incorporating patient-generated contextual data into care: Clinician perspectives using the Consolidated Framework for Implementation Science

scientific article published on 21 August 2019

Inflammatory Bowel Diseases Can Adversely Impact Domains of Sexual Function Such as Satisfaction with Sex Life

scientific article published on 21 March 2018

Initial report of the cancer Patient-Reported Outcomes Measurement Information System (PROMIS) sexual function committee: review of sexual function measures and domains used in oncology

scientific article published on March 2009

National survey of hospital strategies to reduce heart failure readmissions: findings from the Get With the Guidelines-Heart Failure registry.

scientific article published on 28 August 2012

Nurses' perceptions, acceptance, and use of a novel in-room pediatric ICU technology: testing an expanded technology acceptance model

scientific article

Nurses’ Perceptions of a Novel Health Information Technology: A Qualitative Study in the Pediatric Intensive Care Unit

article

Outcomes, health policy, and managed care: relationships between patient-reported outcome measures and clinical measures in outpatients with heart failure

scientific article

Parental Perceptions of Displayed Patient Data in a PICU: An Example of Unintentional Empowerment

scientific article published on 01 May 2019

Parental understanding of crucial medical jargon used in prenatal prematurity counseling

scientific article published on 22 July 2020

Participants’ perspectives on safety monitoring in clinical trials

Patient demographic and psychosocial characteristics associated with 30-day recall of self-reported lower urinary tract symptoms

scientific article published on 23 July 2020

Patient experiences with communication about sex during and after treatment for cancer

scientific article

Patient-Reported Neuropsychiatric Outcomes of Long-Term Survivors after Chimeric Antigen Receptor T Cell Therapy

scientific article published on 09 October 2019

Patient-provider communication about gestational weight gain among nulliparous women: a qualitative study of the views of obstetricians and first-time pregnant women

scientific article

Patient-reported distress is prevalent in systemic light chain (AL) amyloidosis but not determined by severity of disease

scientific article published on 01 June 2018

Patients' Conceptions of Terms Related to Sexual Interest, Desire, and Arousal.

scientific article

Patients' perceptions of safety if interpersonal continuity of care were to be disrupted

scientific article published on December 2008

Patients' perspectives on the definition of cure in chronic myeloid leukemia

scientific article published on 28 March 2019

Prevalence of decisional regret among patients who underwent allogeneic hematopoietic stem cell transplantation and associations with quality of life and clinical outcomes

journal article published in 2020

Prevalence of self-reported sleep dysfunction before allogeneic hematopoietic cell transplantation

scientific article published on 07 March 2018

Priorities for family building among patients and partners seeking treatment for infertility.

scientific article published on 05 April 2017

Provider Use of a Novel EHR display in the Pediatric Intensive Care Unit. Large Customizable Interactive Monitor (LCIM).

scientific article published on 20 July 2016

Psychometric Evaluation of PROMIS Sexual Function and Satisfaction Measures in a Longitudinal Population-Based Cohort of Men With Localized Prostate Cancer

scientific article published on 24 October 2018

Quality of Life and Long-Term Therapy in Patients with Chronic Myeloid Leukemia

scientific article published on 15 February 2016

Rationale and design of DUAL study: Doxycycline to Upgrade response in light chain (AL) amyloidosis (DUAL): A phase 2 pilot study of a two-pronged approach of prolonged doxycycline with plasma cell-directed therapy in the treatment of AL amyloidosis

scientific article published on 24 August 2017

Reasons for Seeking Clinical Care for Lower Urinary Tract Symptoms: A Mixed Methods Study

scientific article

Relationships between changes in patient-reported health status and functional capacity in outpatients with heart failure

scientific article published on January 2012

Reliability and construct validity of PROMIS® measures for patients with heart failure who undergo heart transplant

scientific article published on 3 June 2015

Reliability and validity of PROMIS® pediatric family relationships short form in children 8-17 years of age with chronic disease

scientific article published on 10 August 2019

Self-Reported Sexual Function Measures Administered to Female Cancer Patients: A Systematic Review, 2008-2014.

scientific article published on July 2015

Sexual Dysfunction and Reproductive Concerns in Young Men Diagnosed With Testicular Cancer: An Observational Study

scientific article published on 01 July 2019

Sexual Interest and Satisfaction in an Internet Cohort of Patients with Inflammatory Bowel Diseases

Sexual Orientation and Patient-Provider Communication About Sexual Problems or Concerns Among US Adults

scientific article published on 26 August 2019

Sexual Satisfaction and the Importance of Sexual Health to Quality of Life Throughout the Life Course of U.S. Adults

scientific article published on 23 September 2016

Sexual dysfunction and reproductive concerns in young women with breast cancer: Type, prevalence, and predictors of problems

scientific article published on 27 September 2018

Sexual function and satisfaction among heterosexual and sexual minority U.S. adults: A cross-sectional survey

scientific article

Sexual functioning along the cancer continuum: focus group results from the Patient-Reported Outcomes Measurement Information System (PROMIS®).

scientific article

Sleep-wake functioning along the cancer continuum: focus group results from the Patient-Reported Outcomes Measurement Information System (PROMIS(®))

scientific article

Standardizing patient-reported outcomes assessment in cancer clinical trials: a patient-reported outcomes measurement information system initiative

scientific article published on November 2007

The Comprehensive Assessment of Self-Reported Urinary Symptoms: A New Tool for Research on Subtypes of Patients with Lower Urinary Tract Symptoms.

scientific article published in June 2019

The Impact of Previsit Contextual Data Collection on Patient-Provider Communication and Patient Activation: Study Protocol for a Randomized Controlled Trial

scientific article published on 23 September 2020

The impact of patient-generated contextual data on communication in clinical practice: A qualitative assessment of patient and clinician perspectives

scientific article published on 30 October 2019

Too much time? Time use and fertility-specific quality of life among men and women seeking specialty care for infertility

scientific article published on 09 July 2019

Use of central institutional review boards for multicenter clinical trials in the United States: a review of the literature

scientific article published on 10 May 2013

Using central IRBs for multicenter clinical trials in the United States

scientific article

Using cognitive interviews to evaluate items for measuring sexual functioning across cancer populations: improvements and remaining challenges

scientific article published on 12 August 2009

Using item banks to construct measures of patient reported outcomes in clinical trials: investigator perceptions

scientific article published on January 2008

When do older adults turn to the internet for health information? Findings from the Wisconsin Longitudinal Study

scientific article published on 25 September 2006

Why Parents Seek Care for Acute Illness in the Clinic or the ED: The Role of Health Literacy.

scientific article published on 15 June 2017

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