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List of works by Carolyn A. Young

3D MRI in multiple sclerosis: a study of three sequences at 3 T.

scientific article published on 27 September 2006

A medical definition of fatigue in multiple sclerosis

scientific article published on 14 January 2008

A multicentre evaluation of oropharyngeal secretion management practices in amyotrophic lateral sclerosis

scientific article published on 31 August 2016

A phase III study evaluating the efficacy and safety of MBP8298 in secondary progressive MS ⬇️

scientific article published on October 5, 2011

A randomised controlled trial comparing rehabilitation against standard therapy in multiple sclerosis patients receiving intravenous steroid treatment.

scientific article

A randomised placebo controlled exploratory study of vitamin B-12, lofepramine, and L-phenylalanine (the "Cari Loder regime") in the treatment of multiple sclerosis.

scientific article

A randomized controlled trial of a health promotion education programme for people with multiple sclerosis

scientific article published in September 2006

A randomized group intervention trial to enhance mood and self-efficacy in people with multiple sclerosis

scientific article

Acitretin-induced myopathy

scientific article published on May 1996

Acute amnesia in MS revisited

scientific article published in September 2009

Adverse cognitive effects of phenytoin in severe brain injury: a case report

scientific article published on January 2011

Anti-spasticity agents for multiple sclerosis

scientific article

Assessing social isolation in motor neurone disease: a Rasch analysis of the MND Social Withdrawal Scale

scientific article published on 09 August 2013

Assessment of depression in patients with motor neuron disease and other neurologically disabling illness

scientific article published in October 1997

Assessment of health needs in multidisciplinary care

scientific article published in January 2003

Association of British Neurologists: revised (2015) guidelines for prescribing disease-modifying treatments in multiple sclerosis

scientific article published on 22 June 2015

Bladder and bowel dysfunction affect quality of life. A cross sectional study of 60 patients with aquaporin-4 antibody positive Neuromyelitis Optica spectrum disorder

scientific article published on 30 July 2015

Bladder symptoms in multiple sclerosis: a review of pathophysiology and management

scientific article

Building a care and research team

scientific article published on 01 October 1998

Central pontine myelinolysis: clinical and MRI correlates

scientific article published on July 1995

Circle of Willis variation in a complex stroke presentation: a case report.

scientific article

Communicating psychosocial well-being in motor neurone disease to staff: results from a World Café approach

scientific article published on 30 April 2019

Comparing the Aspartate Aminotransferase (AST) to Platelet Ratio Index (APRI) Between African American and White Veterans with Chronic Hepatitis C

scientific article published on May 1, 2011

Country, sex, EDSS change and therapy choice independently predict treatment discontinuation in multiple sclerosis and clinically isolated syndrome

scientific article

Detection of hearing impairment and handicap in Paget's disease of bone using a simple scoring system: a case control study.

scientific article published on 8 September 2006

Determinants of accepting non-invasive ventilation treatment in motor neurone disease: a quantitative analysis at point of need

scientific article

Development and validation of a self-efficacy measure for people with multiple sclerosis: the Multiple Sclerosis Self-efficacy Scale.

scientific article

Development of a patient reported outcome measure for fatigue in motor neurone disease: the Neurological Fatigue Index (NFI-MND).

scientific article published on 22 November 2011

Development of a patient reported outcome scale for fatigue in multiple sclerosis: The Neurological Fatigue Index (NFI-MS)

scientific article published in 2010

Development of a patient-specific dyspnoea questionnaire in motor neurone disease (MND): the MND dyspnoea rating scale (MDRS)

article

Dexpramipexole versus placebo for patients with amyotrophic lateral sclerosis (EMPOWER): a randomised, double-blind, phase 3 trial

scientific article published on 23 September 2013

DiPALS: Diaphragm Pacing in patients with Amyotrophic Lateral Sclerosis - a randomised controlled trial.

scientific article published on June 2016

Disability after encephalitis: development and validation of a new outcome score.

scientific article

Disease progression and perceptions of health in patients with motor neurone disease

scientific article

Economic Evaluation of Multiple Sclerosis in the UK, Germany and France

article

Effect of glatiramer acetate on conversion to clinically definite multiple sclerosis in patients with clinically isolated syndrome (PreCISe study): a randomised, double-blind, placebo-controlled trial

scientific article published on 6 October 2009

Effect of laquinimod on MRI-monitored disease activity in patients with relapsing-remitting multiple sclerosis: a multicentre, randomised, double-blind, placebo-controlled phase IIb study.

scientific article

Effects of early treatment with glatiramer acetate in patients with clinically isolated syndrome

scientific article

Experience of long-term use of non-invasive ventilation in motor neuron disease: an interpretative phenomenological analysis

scientific article published on 4 October 2013

Experience of telehealth in people with motor neurone disease using noninvasive ventilation

scientific article published on 12 September 2019

Factors predisposing to the development of multiple sclerosis ⬇️

scientific article published on 07 March 2011

Flexibility to manage and enhance quality of life among people with motor neurone disease

scientific article published on 23 November 2020

Fornix damage from solitary subependymal giant cell astrocytoma causing postoperative amnesic syndrome

scientific article published in August 2009

HLA-DRB1 and disease outcome in multiple sclerosis

scientific article published on 01 April 2001

Health utility decreases with increasing clinical stage in amyotrophic lateral sclerosis

scientific article published on 7 February 2014

How does current care practice influence the experience of a new diagnosis of motor neuron disease? A qualitative study of current guidelines-based practice

scientific article published on September 2006

Identifying poor adaptation to a new diagnosis of motor neuron disease: A pilot study into the value of an early patient-led interview

scientific article published in January 2010

Incorporating self-reported questions for telemonitoring to optimize care of patients with MND on noninvasive ventilation (MND OptNIVent)

scientific article published on 26 March 2019

Is NIPA1-associated hereditary spastic paraplegia always 'pure'? Further evidence of motor neurone disease and epilepsy as rare manifestations

scientific article published on 05 June 2020

Is the Epworth sleepiness scale suitable for use in stroke?

scientific article

Letter to the editor re: Worsening disability status in multiple sclerosis predicts urologic complications. Int Urol Nephrol. May; 52(5):859-863. doi: 10.1007/s11255-020-02381-6. Epub 2020 Jan 25 by Abello et al

scientific article published on 25 June 2020

Long-term follow-up of patients treated with glatiramer acetate: a multicentre, multinational extension of the European/Canadian double-blind, placebo-controlled, MRI-monitored trial

scientific article published on 9 February 2007

Management of sialorrhoea in motor neuron disease: a survey of current UK practice.

scientific article published on 07 May 2013

Mapping ALSFRS-R and ALSUI to EQ-5D in Patients with Motor Neuron Disease

scientific article published on 26 July 2018

Measuring quality of life in ALS/MND: validation of the WHOQOL-BREF

scientific article published on 27 June 2020

Measuring the impact of multiple sclerosis on psychosocial functioning: the development of a new self-efficacy scale

article

Obstructive sleep apnoea with Arnold-Chiari malformation

scientific article published on June 1995

Opsoclonus-myoclonus syndrome: an autopsy study of three cases.

scientific article published in April 1993

Oral laquinimod in patients with relapsing-remitting multiple sclerosis: 36-week double-blind active extension of the multi-centre, randomized, double-blind, parallel-group placebo-controlled study ⬇️

scientific article published on September 8, 2010

Oromucosal delta9-tetrahydrocannabinol/cannabidiol for neuropathic pain associated with multiple sclerosis: an uncontrolled, open-label, 2-year extension trial

scientific article

Overdiagnosis of TIA and minor stroke: experience at a regional neurovascular clinic ⬇️

scientific article published on 01 December 1997

Perceived changes and minimum clinically important difference of the Neurological Fatigue Index for multiple sclerosis (NFI-MS).

scientific article published on 23 August 2012

Perceptions of goal setting in a neurological rehabilitation unit: a qualitative study of patients, carers and staff

scientific article published in March 2008

Perceptions of self-efficacy and rehabilitation among neurologically disabled adults

scientific article

Placebo-controlled trial of oral laquinimod in multiple sclerosis: MRI evidence of an effect on brain tissue damage

scientific article published on 12 September 2013

Poststroke fatigue: the patient perspective.

scientific article

Protocol for a double-blind randomised placebo-controlled trial of lithium carbonate in patients with amyotrophic lateral sclerosis (LiCALS) [Eudract number: 2008-006891-31].

scientific article

Quality of life assessment in MND: development of a social withdrawal scale.

scientific article published in October 1999

Quality of life for post-polio syndrome: a patient derived, Rasch standard scale

scientific article

Quality of life issues in motor neurone disease: the development and validation of a coping strategies questionnaire, the MND Coping Scale.

scientific article published in October 2001

Rasch analysis of SF-Qualiveen in multiple sclerosis.

scientific article

Rasch analysis of the Fatigue Severity Scale in multiple sclerosis

scientific article published on 28 August 2008

Rasch analysis of the Modified Fatigue Impact Scale (MFIS) in multiple sclerosis

scientific article published on 14 June 2010

Rasch analysis of the WHOQOL-BREF in post polio syndrome.

scientific article

Rasch analysis of the hospital anxiety and depression scale (HADS) for use in motor neurone disease

scientific article

Regionality of disease progression predicts prognosis in amyotrophic lateral sclerosis

scientific article published on 17 June 2015

Risk factors for social withdrawal in amyotrophic lateral sclerosis/motor neurone disease

scientific article published on 06 November 2018

Safety and immunogenicity of a new formulation of interferon beta-1a (Rebif New Formulation) in a Phase IIIb study in patients with relapsing multiple sclerosis: 96-week results

scientific article published on 28 August 2008

Short‐term memory impairment in an alert patient as a presentation of herpes simplex encephalitis ⬇️

scientific article published on January 1, 1992

Solitary sclerosis: Progressive neurological deficit from a spatially isolated demyelinating lesion: A further report.

scientific article

Spasticity in multiple sclerosis: Associations with impairments and overall quality of life.

scientific article published on 22 October 2015

Sporadic Creutzfeldt-Jakob disease in two adolescents

scientific article published on 23 May 2007

Studies of associations between disability in multiple sclerosis, skin type, gender and ultraviolet radiation

scientific article published in April 2007

Systematic review of the influence of spasticity on quality of life in adults with chronic neurological conditions

scientific article published on 29 December 2015

The Edinburgh Cognitive and Behavioral ALS Screen (ECAS) in frontotemporal dementia

scientific article published on 19 August 2020

The WHOQOL-BREF: a modern psychometric evaluation of its internal construct validity in people with multiple sclerosis

scientific article published on 19 March 2020

The effect of oral immunomodulatory therapy on treatment uptake and persistence in multiple sclerosis

scientific article published on 21 July 2015

The effects of an 'exercise and education' programme on exercise self-efficacy and levels of independent activity in adults with acquired neurological pathologies: an exploratory, randomized study

scientific article

The impact of fatigue and psychosocial variables on quality of life for patients with motor neuron disease

scientific article published on 31 May 2013

The patient experience of fatigue in motor neurone disease

scientific article published on 25 October 2013

The relationship between fatigue and other clinical features of multiple sclerosis

scientific article

The relationships between symptoms, disability, perceived health and quality of life in amyotrophic lateral sclerosis/motor neuron disease

scientific article published on 22 May 2019

The role of affect on the perception of disability in multiple sclerosis

scientific article published in February 2000

The unidimensional self-efficacy scale for MS (USE-MS): developing a patient based and patient reported outcome

scientific article published on 5 April 2012

The use of dry powder inhaler devices by elderly patients suffering from chronic obstructive pulmonary disease

scientific article published in December 2009

Treatment for ataxia in multiple sclerosis

scientific article

Treatment for sialorrhea (excessive saliva) in people with motor neuron disease/amyotrophic lateral sclerosis

scientific article

Tumefactive demyelination: an unusual cause of a spontaneously resolving homonymous hemianopia

scientific article published on 21 June 2013

Use of clinical staging in amyotrophic lateral sclerosis for phase 3 clinical trials

scientific article

Use of coping strategies in MND/ALS: Association with demographic and disease-related characteristics

scientific article published on 22 May 2019

Use of coping strategies in multiple sclerosis: Association with demographic and disease-related characteristics

scientific article published on 22 October 2018

Validation and Reliability of the Neuropathic Pain Scale (NPS) in Multiple Sclerosis

scientific article published on 01 July 2007

Validation of the Neurological Fatigue Index for stroke (NFI-Stroke) ⬇️

scientific article published on May 15, 2012

Vitamin D receptor gene polymorphism is associated with reduced disability in multiple sclerosis

scientific article published on 24 July 2008

Why don't they accept non-invasive ventilation?: insight into the interpersonal perspectives of patients with motor neurone disease

scientific article published on 5 May 2014

Worries and concerns of patients with multiple sclerosis: development of an assessment scale

scientific article published in April 2006

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