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List of works by Agnes van der Heide

A cluster randomized controlled trial on the effects and costs of advance care planning in elderly care: study protocol

scientific article published on 22 July 2015

A comparison of attitudes towards end-of-life decisions: survey among the Dutch general public and physicians

scientific article published on 01 October 2005

A comparison of physicians' end-of-life decision making for non-western migrants and Dutch natives in the Netherlands

scientific article published on 27 September 2008

A prospective study on the variation in falling and fall risk among community-dwelling older citizens in 12 European countries

scientific article

Admissions to inpatient care facilities in the last year of life of community-dwelling older people in Europe.

scientific article

Advance Care Planning for frail older adults: Findings on costs in a cluster randomised controlled trial

scientific article published on 01 October 2018

Advance Care Planning in Frail Older Adults: A Cluster Randomized Controlled Trial

scientific article published on 02 April 2018

Advance care planning for patients with chronic respiratory diseases: a systematic review of preferences and practices

scientific article published on 6 November 2017

Advance care planning in patients with advanced cancer: A 6-country, cluster-randomised clinical trial

scientific article published on 13 November 2020

Advance care planning: Not a panacea

scientific article published on 01 May 2016

An ethical framework for the prevention of overweight and obesity: a tool for thinking through a programme's ethical aspects

scientific article published on 8 August 2012

An overview of ethical frameworks in public health: can they be supportive in the evaluation of programs to prevent overweight?

scientific article

Approaches to suffering at the end of life: the use of sedation in the USA and Netherlands

scientific article published on 14 September 2012

Artificial nutrition and hydration for patients with advanced dementia: perspectives from medical practitioners in the Netherlands and Australia

scientific article published on 24 September 2010

Assessing Emotional Functioning with Increased Power: Relative Validity of a Customized EORTC Short Form in the International ACTION Trial

scientific article published on 20 August 2018

Assistance in dying for older people without a serious medical condition who have a wish to die: a national cross-sectional survey

scientific article

Assisted suicide and euthanasia

scientific article published on January 2013

Attitudes of patients with incurable cancer toward medical treatment in the last phase of life.

scientific article published in March 2005

Audit of the Liverpool Care Pathway for the Dying Patient in a Dutch cancer hospital.

scientific article published in January 2006

Awareness and use of practice guidelines on medical end-of-life decisions in Dutch hospitals

scientific article published on 11 September 2009

Awareness of dying: it needs words

scientific article published on 19 June 2011

Barriers and facilitators to implementation of the Liverpool Care Pathway in the Netherlands: a qualitative study

scientific article published on 8 September 2014

Barriers in care for children with life-threatening conditions: a qualitative interview study in the Netherlands

scientific article published on 28 June 2020

Bereaved relatives' perspectives of the patient's oral intake towards the end of life: a qualitative study

scientific article published on 26 February 2013

Better drug use in advanced disease: an international Delphi study

scientific article published on 15 November 2018

Breaking bad news: what parents would like you to know

scientific article published on 30 October 2020

Can physicians conceive of performing euthanasia in case of psychiatric disease, dementia or being tired of living?

scientific article

Can the Dying Phase Be Masked by the Use of Dexamethasone? A Case Report

scientific article published on 09 February 2016

Care and Decision-Making at the End of Life for Patients With a Non-Western Migration Background Living in The Netherlands: A Nationwide Mortality Follow-Back Study

scientific article published on 16 December 2019

Changing practices in the use of continuous sedation at the end of life. A systematic review of the literature

scientific article published on 26 June 2020

Classification of end-of-life decisions by Dutch physicians: findings from a cross-sectional survey

scientific article published on 21 July 2020

Clinical decision-making at the end of life: the role of the patient's wish

scientific article published on 01 July 2003

Commonalities and differences in legal euthanasia and physician-assisted suicide in three countries: a population-level comparison

scientific article published on 11 July 2019

Considerations of healthcare professionals in medical decision-making about treatment for clinical end-stage cancer patients

scientific article published on 01 October 2004

Considerations of physicians about the depth of palliative sedation at the end of life

scientific article published on 13 February 2012

Consultation with specialist palliative care services in palliative sedation: considerations of Dutch physicians

scientific article published on 14 September 2013

Continuous deep sedation for patients nearing death in the Netherlands: descriptive study

scientific article

Continuous palliative sedation for cancer and noncancer patients

scientific article published on 17 September 2011

Continuous palliative sedation until death: practice after introduction of the Dutch national guideline

scientific article published on 11 July 2012

Continuous palliative sedation: not only a response to physical suffering

scientific article published on 01 January 2014

Coping strategies of patients with advanced lung or colorectal cancer in six European countries: Insights from the ACTION Study

scientific article published on 20 November 2019

Correction: Palliative care team consultation and quality of death and dying in a university hospital: A secondary analysis of a prospective study

scientific article published in PLoS ONE

Day-to-day care in palliative sedation: survey of nurses' experiences with decision-making and performance

scientific article

Decision-making after ultrasound diagnosis of fetal abnormality

scientific article published on 01 May 2008

Declining oral intake towards the end of life: how to talk about it? A qualitative study

scientific article

Definition and recommendations for advance care planning: an international consensus supported by the European Association for Palliative Care

scientific article published in September 2017

Depressive symptoms in the last days of life of patients with cancer: a nationwide retrospective mortality study

scientific article published on 9 February 2015

Descriptions by general practitioners and nurses of their collaboration in continuous sedation until death at home: in-depth qualitative interviews in three European countries

scientific article published on 4 June 2014

Development and dissemination of institutional practice guidelines on medical end-of-life decisions in Dutch health care institutions

scientific article published on 03 November 2009

Development and validation of search filters to find articles on palliative care in bibliographic databases

article

Development of an international Core Outcome Set (COS) for best care for the dying person: study protocol

scientific article published on 30 November 2020

Development of the care programme for the last days of life for older patients in acute geriatric hospital wards: a phase 0-1 study according to the Medical Research Council Framework

scientific article published on 9 May 2015

Developments in euthanasia practice in the Netherlands: Balancing professional responsibility and the patient's autonomy

scientific article published on 01 November 2018

Differences between terminally ill cancer patients who died after euthanasia had been performed and terminally ill cancer patients who did not request euthanasia

scientific article published in December 2005

Discussing physician-assisted dying: physicians' experiences in the United States and the Netherlands.

scientific article published on 2 September 2013

Discussing prognosis with terminally ill cancer patients and relatives: A survey of physicians’ intentions in seven countries

Do-not-resuscitate decisions in six European countries*

Doctor-assisted dying: what difference does legalisation make?

scientific article published on 01 December 2004

Drugs used to alleviate symptoms with life shortening as a possible side effect: end-of-life care in six European countries

scientific article published on February 2006

Dutch experience of monitoring active ending of life for newborns

scientific article published on April 2010

Dutch experience of monitoring euthanasia

scientific article published in September 2005

Dying at home or in an institution: perspectives of Dutch physicians and bereaved relatives

scientific article

Dying in the hospital: what happens and what matters, according to bereaved relatives.

scientific article published on 15 August 2014

Effect of palliative care nurse champions on the quality of dying in the hospital according to bereaved relatives: A controlled before-and-after study

scientific article published on 19 May 2015

Effectiveness of a nurse-delivered (FOCUS+) and a web-based (iFOCUS) psychoeducational intervention for people with advanced cancer and their family caregivers (DIAdIC): study protocol for an international randomized controlled trial

scientific article published on 28 December 2021

Empathy and the application of the 'unbearable suffering' criterion in Dutch euthanasia practice

scientific article published on 13 March 2012

End of life decisions. Doctors can be trusted

scientific article published on 14 September 2009

End-of-Life Decision Making in Europe and Australia

article

End-of-Life Decisions in Pediatric Cancer Patients

scientific article published on August 2015

End-of-Life Decisions in the Netherlands over 25 Years

scientific article published in August 2017

End-of-life care for homeless people in shelter-based nursing care settings: A retrospective record study

scientific article published on 30 July 2020

End-of-life decision making for cancer patients in different clinical settings and the impact of the LCP

scientific article

End-of-life decision-making in Belgium, Denmark, Sweden and Switzerland: does place of death make a difference?

scientific article published on December 2007

End-of-life decision-making in six European countries: descriptive study

scientific article

End-of-life decisions and old-age mortality: A cross-country analysis

scientific article published in December 2006

End-of-life decisions for children under 1 year of age in the Netherlands: decreased frequency of administration of drugs to deliberately hasten death

scientific article published on 13 August 2015

End-of-life decisions in the United Kingdom

scholarly article by Agnes van der Heide published in May 2009

End-of-life practices in the Netherlands under the Euthanasia Act

scientific article published on 01 May 2007

Estimating the potential life-shortening effect of continuous sedation until death: a comparison between two approaches

scientific article

Ethical and research governance approval across Europe: Experiences from three European palliative care studies

scientific article published on 18 March 2020

Euthanasia and other end-of-life decisions in the Netherlands in 1990, 1995, and 2001.

scientific article published in August 2003

Euthanasia for minors in Belgium

scientific article published in September 2014

Euthanasia or physician-assisted suicide? A survey from the Netherlands

scientific article

Evaluation showed that stakeholders valued the support provided by the Implementing Pediatric Advance Care Planning Toolkit

scientific article published on 20 May 2020

Experiences with and outcomes of Advance Care Planning in bereaved relatives of frail older patients: a mixed methods study

scientific article published on 01 March 2019

Factors associated with requesting and receiving euthanasia: a nationwide mortality follow-back study with a focus on patients with psychiatric disorders, dementia, or an accumulation of health problems related to old age

article

Forgoing artificial nutrition or hydration in patients nearing death in six European countries

scientific article published on 2 July 2007

Forgoing treatment at the end of life in 6 European countries

scientific article published on 01 February 2005

Frequency and determinants of advance directives concerning end-of-life care in The Netherlands.

scientific article published on 12 September 2005

Having a difficult time leaving: experiences and attitudes of nurses with palliative sedation

scientific article published on 01 October 2007

Home-Based Palliative Care for Children With Incurable Cancer: Long-term Perspectives of and Impact on General Practitioners

scientific article published on 29 December 2016

How patients and relatives experience a visit from a consulting physician in the euthanasia procedure: a study among relatives and physicians

scientific article

How to Deal With Relatives of Patients Dying in the Hospital? Qualitative Content Analysis of Relatives' Experiences

scientific article published on 15 April 2016

Hydration and symptoms in the last days of life

scientific article published on 31 August 2019

Improving the quality of palliative and terminal care in the hospital by a network of palliative care nurse champions: the study protocol of the PalTeC-H project

scientific article

Information needs of patients with incurable cancer

scientific article published on 27 April 2005

Intentionally hastening death by withholding or withdrawing treatment

scientific article published in June 2006

International palliative care experts' view on phenomena indicating the last hours and days of life.

scientific article published on 15 December 2012

Interventions Guiding Advance Care Planning Conversations: A Systematic Review

scientific article published on 22 November 2018

Interventions in hospitalised patients with cancer: the importance of impending death awareness

scientific article published on 9 February 2018

Involvement of supportive care professionals in patient care in the last month of life

scientific article

Involvement of the Dutch general population in advance care planning: a cross-sectional survey

scientific article published on 14 June 2013

Is physician awareness of impending death in hospital related to better communication and medical care?

scientific article published on 12 August 2014

Issues and needs in end-of-life decision making: an international modified Delphi study.

scientific article published on 3 October 2011

Judgment of unbearable suffering and willingness to grant a euthanasia request by Dutch general practitioners

scientific article published on 21 May 2010

Legal physician-assisted dying in Oregon and the Netherlands: evidence concerning the impact on patients in "vulnerable" groups

scientific article published on October 2007

Low patient activation levels in frail older adults: a cross-sectional study

scientific article published on 5 January 2018

Medical and nonmedical determinants of decision making about potentially life-prolonging interventions

scientific article published on 01 September 2004

Medical decision-making for seriously ill non-elderly and elderly patients

scientific article published on 01 December 2005

Medical end-of-life decisions for children in the Netherlands

scientific article published in September 2005

Medical end-of-life decisions made for neonates and infants in the Netherlands

scientific article published on July 26, 1997

Medical end-of-life decisions made for neonates and infants in the Netherlands, 1995-2001

scientific article published on 01 April 2005

Medication Discontinuation at the End of Life: A Questionnaire Study on Physicians' Experiences and Opinions

scientific article published on 18 April 2018

Medication Use in the Last Days of Life in Hospital, Hospice, and Home Settings in the Netherlands

scientific article published on 26 September 2017

News media coverage of euthanasia: a content analysis of Dutch national newspapers

scientific article

No increase in demand for euthanasia following implementation of the Euthanasia Act in The Netherlands; pain as a reason for euthanasia request was increasing before implementation but declined subsequently

scientific article published on 28 July 2010

Nursing interventions to support family caregivers in end-of-life care at home: A systematic narrative review

scientific article published on 23 April 2019

Obligatory consultation of an independent physician on euthanasia requests in the Netherlands: what influences the SCEN physicians judgment of the legal requirements of due care?

scientific article published on 15 December 2013

Obstetricians' agreement on fetal prognosis after ultrasound diagnosis of fetal anomalies

scientific article published in September 2004

Old age and forgoing treatment: a nationwide mortality follow-back study in the Netherlands

scientific article published on 20 April 2015

Opinions about euthanasia and advanced dementia: a qualitative study among Dutch physicians and members of the general public

scientific article

Opinions of health care professionals and the public after eight years of euthanasia legislation in the Netherlands: a mixed methods approach.

scientific article published on 13 June 2012

Opinions of the Dutch public on palliative sedation: a mixed-methods approach

scientific article published on October 2013

Palliative Sedation: Reliability and Validity of Sedation Scales

Palliative care consultation services in hospitals in the Netherlands: the design of the COMPASS study

scientific article published in December 2015

Palliative care in children with cancer: implications for general practice

scientific article published in December 2016

Palliative care team consultation and quality of death and dying in a university hospital: A secondary analysis of a prospective study

scientific article published in PLoS ONE

Palliative sedation in a specialized unit for acute palliative care in a cancer hospital: comparing patients dying with and without palliative sedation

scientific article published on 14 April 2008

Palliative sedation: The end of heated debate?

scientific article published on 13 March 2018

Palliative sedation: a focus group study on the experiences of relatives

scientific article published on 19 February 2013

Parental decision-making after ultrasound diagnosis of a serious foetal abnormality

scientific article

Patient evaluation of end-of-life care

scientific article published on 01 April 2007

Perspectives of patients, close relatives, nurses, and physicians on end-of-life medication management

scientific article

Physician adherence to clinical guidelines in euthanasia and assisted suicide in the Netherlands: a qualitative study

scientific article published on 01 March 2020

Physician discussions with terminally ill patients: a cross-national comparison.

scientific article

Physician reports of terminal sedation without hydration or nutrition for patients nearing death in the Netherlands

scientific article

Physician-Reported Symptoms and Interventions in People with Intellectual Disabilities Approaching End of Life

scientific article published on September 2016

Physicians' and Public Attitudes Toward Euthanasia in People with Advanced Dementia

scientific article published on 11 July 2020

Physicians' and nurses' experiences with continuous palliative sedation in the Netherlands

scientific article published on 01 July 2010

Physicians' attitudes towards end-of-life decisions: a comparison between seven countries

scientific article

Physicians' experiences with demented patients with advance euthanasia directives in the Netherlands

scientific article published in July 2005

Physicians' experiences with end-of-life decision-making: survey in 6 European countries and Australia

scientific article

Physicians' experiences with euthanasia: a cross-sectional survey amongst a random sample of Dutch physicians to explore their concerns, feelings and pressure

scientific article published on 17 December 2019

Physicians' opinions on palliative care and euthanasia in the Netherlands

scientific article published on October 2006

Physicians' perspectives on estimating and communicating prognosis in palliative care: a cross-sectional survey

scientific article published on 23 September 2020

Physicians' willingness to grant requests for assistance in dying for children: a study of hypothetical cases

scientific article published in May 2005

Policy statements and practice guidelines for medical end-of-life decisions in Dutch health care institutions: developments in the past decade

scientific article published on 01 April 2009

Preemptive use of palliative sedation and amyotrophic lateral sclerosis

scientific article published on 01 September 2012

Preferences of the Dutch general public for a good death and associations with attitudes towards end-of-life decision-making.

scientific article published in October 2006

Presence, communication and treatment of fatigue and pain complaints in incurable cancer patients

scientific article published on 18 April 2008

Pressure during decision making of continuous sedation in end-of-life situations in Dutch general practice

scientific article

Prevalence, impact, and treatment of death rattle: a systematic review

scientific article published on 18 June 2013

Public and physicians' support for euthanasia in people suffering from psychiatric disorders: a cross-sectional survey study

scientific article published on 11 September 2019

Quality of collaboration and information handovers in palliative care: a survey study on the perspectives of nurses in the Southwest Region of the Netherlands

scientific article published on 28 March 2020

Re: Palliative Sedation: The Need for a Descriptive Definition

Reducing questionnaire length did not improve physician response rate: a randomized trial

scientific article published on 28 November 2013

Regulating physician-assisted dying for minors in the Netherlands: views of paediatricians and other physicians

scientific article published on January 2007

Reporting of euthanasia and physician-assisted suicide in the Netherlands: descriptive study

scientific article

Requests for euthanasia or physician-assisted suicide from older persons who do not have a severe disease: an interview study

scientific article published on 01 May 2005

Requests to forgo potentially life-prolonging treatment and to hasten death in terminally ill cancer patients: a prospective study

scientific article published on 01 February 2006

Research on patient needs in palliative care at the end of life

scientific article published on 01 July 2002

Responders and non-responders in a study on medical end-of-life decisions in Denmark, the Netherlands, Sweden and Switzerland

scientific article published in January 2006

Risk factors for complicated grief in older adults

scientific article published on 11 February 2015

Ritualization as Alternative Approach to the Spiritual Dimension of Palliative Care: A Concept Analysis

scientific article published on 01 December 2019

Role of nurses in medication management at the end of life: a qualitative interview study

scientific article published on 13 May 2020

Satisfaction with care of hospitalised patients with advanced cancer in the Netherlands

scientific article published on 11 July 2018

Scopolaminebutyl given prophylactically for death rattle: study protocol of a randomized double-blind placebo-controlled trial in a frail patient population (the SILENCE study)

Self-management of patients with advanced cancer: A systematic review of experiences and attitudes

scientific article published on 01 February 2020

Self-reported health, healthcare service use and health-related needs: A comparison of older and younger homeless people

scientific article published on 25 April 2019

Seymour et al. Palliative sedation: Improvement of guidelines necessary, but not sufficient: A reply

scientific article published in May 2015

Sharp upturn of life expectancy in the Netherlands: effect of more health care for the elderly?

scientific article published on 30 November 2011

Striving for quality or length at the end-of-life: attitudes of the Dutch general public.

scientific article published on 8 December 2004

Survey of paediatricians caring for children with life-limiting conditions found that they were involved in advance care planning

scientific article published on 18 October 2019

Survival after non-aggressive obstetric management in cases of severe fetal anomalies: a retrospective study

scientific article published in December 2005

Swallowing problems at the end of the palliative phase: incidence and severity in 164 unsedated patients

scientific article published on 23 December 2014

Symptoms, treatment and "dying peacefully" in terminally ill cancer patients: a prospective study

scientific article published on 2 December 2004

Terminal sedation and euthanasia: a comparison of clinical practices

scientific article published on 01 April 2006

The COMPASS study: A descriptive study on the characteristics of palliative care team consultation for cancer patients in hospitals

scientific article published on 30 September 2019

The Feasibility and Effectiveness of Web-Based Advance Care Planning Programs: Scoping Review

scientific article published on 17 March 2020

The Impact of Palliative Care Team Consultation on Quality of Life of Patients with Advanced Cancer in Dutch Hospitals: An Observational Study

scientific article published on 24 June 2020

The Prevalence and Associated Distress of Physical and Psychological Symptoms in Patients With Advanced Heart Failure Attending a South African Medical Center

scientific article

The Rising Frequency of Continuous Deep Sedation in the Netherlands, a Repeated Cross-Sectional Survey in 2005, 2010, and 2015

scientific article published on 01 August 2019

The Role of Parents in End-of-Life Decisions in Neonatology: Physicians' Views and Practices

scientific article published on March 1, 1998

The Stability of Treatment Preferences Among Patients With Advanced Cancer

scientific article published on 19 February 2019

The association between palliative care team consultation and hospital costs for patients with advanced cancer: An observational study in 12 Dutch hospitals

scientific article published on 11 December 2019

The effect of the Liverpool Care Pathway for the dying: a multi-centre study

scientific article

The effectiveness of a nurse-led intervention to support family caregivers in end-of-life care: Study protocol for a cluster randomized controlled trial

scientific article published on 03 March 2020

The effects of advance care planning on end-of-life care: a systematic review

scientific article published on 20 March 2014

The experiences of relatives with the practice of palliative sedation: a systematic review

scientific article published on June 2012

The incidence and impact of implantable cardioverter defibrillator shocks in the last phase of life: An integrated review

scientific article published on 18 May 2018

The language of sedation in end-of-life care: The ethical reasoning of care providers in three countries

scientific article published on 10 November 2014

The last 3 days of life in three different care settings in The Netherlands

scientific article published on 15 March 2007

The last phase of life: who requests and who receives euthanasia or physician-assisted suicide?

scientific article published on 01 July 2010

The perspectives of clinical staff and bereaved informal care-givers on the use of continuous sedation until death for cancer patients: The study protocol of the UNBIASED study

scientific article

The practice of continuous deep sedation until death in Flanders (Belgium), the Netherlands, and the U.K.: a comparative study

scientific article published on 30 May 2012

The process of end-of-life decision-making in pediatrics: a national survey in the Netherlands

scientific article

The reporting rate of euthanasia and physician-assisted suicide: a study of the trends

scientific article published on December 2008

There is more to end-of-life practices than euthanasia - Authors' reply

scientific article published in January 2013

Towards advance care planning in pediatrics: a qualitative study on envisioning the future as parents of a seriously ill child

scientific article published on 19 March 2020

Trends in end-of-life practices before and after the enactment of the euthanasia law in the Netherlands from 1990 to 2010: a repeated cross-sectional survey

scientific article published on 11 July 2012

Trends in the use of opioids at the end of life and the expected effects on hastening death

scientific article published on 9 August 2008

Trends in time in the management of the implantable cardioverter defibrillator in the last phase of life: a retrospective study of medical records

scientific article published on 17 April 2019

Two Decades of Research on Euthanasia from the Netherlands. What Have We Learnt and What Questions Remain?

scientific article

Two decades of do-not-resuscitate decisions in the Netherlands

scientific article published on 17 July 2015

Ultrasound diagnosis of fetal anomalies: an analysis of perinatal management of 318 consecutive pregnancies in a multidisciplinary setting

scientific article published on 01 November 2004

Understanding relatives' experience of death rattle

scientific article published on 12 June 2020

Understanding the Continuation of Potentially Inappropriate Medications at the End of Life: Perspectives from Individuals and Their Relatives and Physicians

scientific article published on 17 October 2016

Unraveling patients' readiness in advance care planning conversations: a qualitative study as part of the ACTION Study

scientific article published on 01 October 2020

Using continuous sedation until death for cancer patients: a qualitative interview study of physicians' and nurses' practice in three European countries

scientific article

Using the LCP: bereaved relatives' assessments of communication and bereavement

scientific article published on 10 April 2008

Validation of the Rotterdam MOVE2PC Questionnaire for assessment of nurses' knowledge and opinions on palliative care

scientific article published on 27 June 2013

Variation in attitudes towards artificial hydration at the end of life: a systematic literature review

scientific article published on September 2011

[End-of-life decision making in six European countries]

scientific article published on 01 January 2004

[End-of-life decision making in six European countries]

scientific article published on 01 July 2003

[Frequency and characteristics of use of morphine at the end of life: a cross-sectional study]

[Palliative sedation largely in accordance with Dutch national guideline]

scientific article published on 01 January 2011