List of works by Irene Higginson

"I Can Breathe Again!" Patients' Self-Management Strategies for Episodic Breathlessness in Advanced Disease, Derived From Qualitative Interviews.

scientific article published on 21 May 2016

"I know he controls cancer": the meanings of religion among Black Caribbean and White British patients with advanced cancer.

scientific article

"I will do it if it will help others:" motivations among patients taking part in qualitative studies in palliative care.

scientific article published on 4 February 2008

"Outcomes" Is Not an Oxymoron in Hospice/Palliative Care.

scientific article published in November 2016

'A softening of edges': a comparison of yoga classes at palliative care services in New Delhi and London

scientific article

'Best practice' in developing and evaluating palliative and end-of-life care services: a meta-synthesis of research methods for the MORECare project

scientific article published on 15 January 2013

'Burden to others' as a public concern in advanced cancer: a comparative survey in seven European countries

scientific article

'I'll be in a safe place': a qualitative study of the decisions taken by people with advanced cancer to seek emergency department care

scientific article

'It doesn't do the care for you': a qualitative study of health care professionals' perceptions of the benefits and harms of integrated care pathways for end of life care

scientific article

'It makes me feel that I'm still relevant': a qualitative study of the views of nursing home residents on dignity therapy and taking part in a phase II randomised controlled trial of a palliative care psychotherapy.

scientific article published on 15 June 2012

'Less ticking the boxes, more providing support': A qualitative study on health professionals' concerns towards the Liverpool Care of the Dying Pathway

scientific article

'My body's falling apart.' Understanding the experiences of patients with advanced multimorbidity to improve care: serial interviews with patients and carers

scientific article published on 28 May 2014

'My dreams are shuttered down and it hurts lots'-a qualitative study of palliative care needs and their management by HIV outpatient services in Kenya and Uganda

scientific article

'Peace' and 'life worthwhile' as measures of spiritual well-being in African palliative care: a mixed-methods study

scientific article published on 10 June 2013

A Comparison of Symptom Prevalence in Far Advanced Cancer, AIDS, Heart Disease, Chronic Obstructive Pulmonary Disease and Renal Disease

article

A Phase II randomised controlled trial assessing the feasibility, acceptability and potential effectiveness of dignity therapy for older people in care homes: study protocol

scientific article

A Psychometric Validation of Two Brief Measures to Assess Palliative Need in Patients Severely Affected by Multiple Sclerosis

scientific article published on 27 November 2012

A Systematic Review of the Use of the Palliative Care Outcome Scale and the Support Team Assessment Schedule in Palliative Care

scientific article

A comparison of two measures of quality of life: their sensitivity and validity for patients with advanced cancer.

scientific article published on October 1994

A critical review of advance directives in Germany: attitudes, use and healthcare professionals' compliance

scientific article published on 23 November 2011

A framework for complexity in palliative care: A qualitative study with patients, family carers and professionals.

scientific article published in February 2018

A multicenter evaluation of cancer pain control by palliative care teams.

scientific article published on July 1997

A new approach to eliciting patients' preferences for palliative day care: the choice experiment method.

scientific article

A novel approach to enhancing hope in patients with advanced cancer: a randomised phase II trial of dignity therapy

scientific article published on 9 October 2011

A pan-European survey of research in end-of-life cancer care

scientific article published on 30 November 2010

A psychometric evaluation of measures of spirituality validated in culturally diverse palliative care populations

scientific article published on 02 June 2011

A psychometric evaluation of the functional assessment of chronic illness therapy-palliative care (FACIT-Pal) scale with palliative care samples in three African countries

scientific article published on 15 April 2014

A randomised controlled trial to assess the effectiveness of a nurse-led palliative care intervention for HIV positive patients on antiretroviral therapy: recruitment, refusal, randomisation and missing data

scientific article

A randomised, controlled, feasibility trial of an online, self-guided breathlessness supportive intervention<b>(SELF-BREATHE)</b>for individuals with chronic breathlessness due to advanced disease

scientific article published in 2023

A randomised, multicentre clinical trial of specialised palliative care plus standard treatment versus standard treatment alone for cancer patients with palliative care needs: the Danish palliative care trial (DanPaCT) protocol.

scientific article

A research study to identify facilitators and barriers to outcome measure implementation

scientific article published on 01 May 2005

A systematic review of end of life care communication skills training for generalist palliative care providers: research quality and reporting guidance

scientific article

A virtual user involvement forum for people living with motor neuron disease

About the "surprise question".

scientific article

Acceptability and preferences of six different routes of drug application for acute breathlessness: a comparison study between the United Kingdom and Germany

scientific article

Access to services for patients with chronic obstructive pulmonary disease: the invisibility of breathlessness.

scientific article published on 20 May 2008

Accuracy of prognosis estimates by four palliative care teams: a prospective cohort study

scientific article

Active ingredients of a person-centred intervention for people on HIV treatment: analysis of mixed methods trial data

scientific article published on 10 January 2018

Adjusting to the caregiving role: the importance of coping and support

scientific article published in November 2012

Advancing palliative care by learning.

scientific article published on October 2013

An integrated palliative and respiratory care service for patients with advanced disease and refractory breathlessness: a randomised controlled trial

scientific article published on 29 October 2014

Antidepressants for the treatment of depression in neurological disorders: a systematic review and meta-analysis of randomised controlled trials

scientific article published on 10 May 2011

Antidepressants for the treatment of depression in palliative care: systematic review and meta-analysis

scientific article published on 08 October 2010

Appraisal of literature reviews on end-of-life care for minority ethnic groups in the UK and a critical comparison with policy recommendations from the UK end-of-life care strategy

scientific article published on 2 June 2011

Appropriate methods to assess the effectiveness and efficacy of treatments or interventions to control cancer pain.

scientific article published in June 2004

Are There Differences in the Prevalence of Palliative Care-Related Problems in People Living With Advanced Cancer and Eight Non-Cancer Conditions? A Systematic Review

scientific article

Are bereaved family members a valid proxy for a patient's assessment of dying?

scientific article published in February 1994

Assessing palliative care outcomes for people with motor neurone disease living at home

scientific article published on 01 September 2004

Assessing quality-of-life in older people in care homes.

scientific article published on 31 March 2011

Assessing structure, process and outcome in palliative day care: a pilot study for a multicentre trial.

scientific article

Assessing the feasibility, acceptability and potential effectiveness of Dignity Therapy for people with advanced cancer referred to a hospital-based palliative care team: Study protocol

scientific article published on 16 May 2009

Assessing the symptoms, anxiety and practical needs of HIV/AIDS patients receiving palliative care

article

Associations between informal care costs, care quality, carer rewards, burden and subsequent grief: the international, access, rights and empowerment mortality follow-back study of the last 3 months of life (IARE I study)

scientific article published on 03 November 2020

Attitudes to timeliness of death and euthanasia among first generation black Caribbean and white patients and their families living in the United Kingdom.

scientific article published in April 2003

Audit in palliative care: does practice change?

scientific article

Availability of essential drugs for managing HIV-related pain and symptoms within 120 PEPFAR-funded health facilities in East Africa: a cross-sectional survey with onsite verification

scientific article published on 24 July 2013

Avoid 'prognostic paralysis'--just get ahead and plan and co-ordinate care

scientific article published on 9 October 2014

Benefits and Costs of Home Palliative Care Compared With Usual Care for Patients With Advanced Illness and Their Family Caregivers

scientific article published in The Journal of the American Medical Association

Benzodiazepines for the relief of breathlessness in advanced malignant and non-malignant diseases in adults.

scientific article

Benzodiazepines for the relief of breathlessness in malignant and advanced non-malignant diseases in adults

scientific article

Bereaved relatives' views about participating in cancer research

scientific article published on 23 May 2011

Bioelectrical impedance phase angle relates to function, disease severity and prognosis in stable chronic obstructive pulmonary disease

scientific article published on 7 January 2015

Breathlessness and crises in the context of advanced illness: A comparison between COPD and lung cancer patients

scholarly article by Christine Dunger et al published 13 February 2014 in Palliative and Supportive Care

Breathlessness during daily activity: The psychometric properties of the London Chest Activity of Daily Living Scale in patients with advanced disease and refractory breathlessness.

scientific article published on 8 December 2016

Breathlessness in cancer patients - implications, management and challenges

scientific article

Breathlessness, functional status, distress, and palliative care needs over time in patients with advanced chronic obstructive pulmonary disease or lung cancer: a cohort study

scientific article published on 12 March 2014

Breathlessness--current and emerging mechanisms, measurement and management: a discussion from an European Association of Palliative Care workshop.

scientific article published on 09 July 2013

British Psychological Oncology Group: seventh annual conference.

scientific article

Building user participation to reshape services for people affected by motor neurone disease.

scientific article published in August 2002

Cancer trajectories at the end of life: is there an effect of age and gender?

scientific article published on 2 May 2008

Capture, transfer, and feedback of patient-centered outcomes data in palliative care populations: does it make a difference? A systematic review

scientific article

Caregiver assessment of patients with advanced cancer: concordance with patients, effect of burden and positivity.

scientific article published on 2 June 2008

Caring for a person in advanced illness and suffering from breathlessness at home: threats and resources.

scientific article published on June 2009

Challenges in defining 'palliative care' for the purposes of clinical trials

scientific article published on December 2012

Challenges to conducting research with older people living in nursing homes

scientific article published on 24 August 2009

Changing health behaviour with rehabilitation in thoracic cancer: A systematic review and synthesis

article

Changing patterns of mortality during the COVID-19 pandemic: Population-based modelling to understand palliative care implications

scientific article published on 24 July 2020

Characteristics of episodic breathlessness as reported by patients with advanced chronic obstructive pulmonary disease and lung cancer: Results of a descriptive cohort study.

scientific article published on 29 January 2015

Characterizing episodic breathlessness in patients with advanced disease

scientific article published on 20 September 2013

Child and adolescent mental health service use. HoNOSCA as an outcome measure.

scientific article published on July 2000

Choosing care homes as the least preferred place to die: a cross-national survey of public preferences in seven European countries

scientific article published on 23 October 2014

Clinical effectiveness and safety of acupuncture in the treatment of irradiation-induced xerostomia in patients with head and neck cancer: a systematic review.

scientific article

Clinical priorities, barriers and solutions in end-of-life cancer care research across Europe. Report from a workshop

scientific article published on 22 April 2010

Cochrane Reviews: Four Proposals for Improvement

Cognitive interviewing of bereaved relatives to improve the measurement of health outcomes and care utilisation at the end of life in a mortality followback survey

scientific article published on 8 June 2013

Communication in end-of-life cancer care: a comparison of team assessments in three European countries.

scientific article published in September 2002

Comparative Analysis of Informal Caregiver Burden in Advanced Cancer, Dementia, and Acquired Brain Injury.

scientific article published on 22 April 2015

Comparisons of Costs between Black Caribbean and White British Patients with Advanced Multiple Sclerosis in the UK.

scientific article published on 05 February 2014

Complementary evidence?

scientific article

Computer database for palliative care

scientific article published in The Lancet

Constructing understandings of end-of-life care in Europe: a qualitative study involving cognitive interviewing with implications for cross-national surveys

scientific article

Coordination of care for individuals with advanced progressive conditions: a multi-site ethnographic and serial interview study

scientific article published on August 2013

Coordination of end-of-life care for patients with lung cancer and those with advanced COPD: are there transferable lessons? A longitudinal qualitative study.

scientific article published in March 2014

Cost-effectiveness of lenalidomide in multiple myeloma.

scientific article published on June 2010

Cultural competence in end-of-life care: terms, definitions, and conceptual models from the British literature

scientific article published on 04 June 2012

Culture and end of life care: a scoping exercise in seven European countries

scientific article published in 2012

Culture is a priority for research in end-of-life care in Europe: a research agenda

scientific article published on 5 June 2012

Current HIV/AIDS end-of-life care in sub-Saharan Africa: a survey of models, services, challenges and priorities

scientific article

Death from renal failure eighty years on: how far have we come?

scientific article published in December 2007

Decision Making About Gastrostomy and Noninvasive Ventilation in Amyotrophic Lateral Sclerosis

Definition, categorization, and terminology of episodic breathlessness: consensus by an international Delphi survey.

scientific article

Delivering research in end-of-life care: problems, pitfalls and future priorities

scientific article published on 28 April 2010

Depression assessment and classification in palliative cancer patients: a systematic literature review

scientific article published on 13 October 2009

Detailed statistical analysis plan for the Danish Palliative Care Trial (DanPaCT).

scientific article

Developing methods to improve the quality of end-of-life care

Development and evaluation of the feasibility and effects on staff, patients, and families of a new tool, the Psychosocial Assessment and Communication Evaluation (PACE), to improve communication and palliative care in intensive care and during [...]

scientific article

Development and validation of a casemix classification to predict costs of specialist palliative care provision across inpatient hospice, hospital and community settings in the UK: a study protocol.

scientific article published on 17 March 2018

Development of a Patient-Reported Palliative Care-Specific Health Classification System: The POS-E

scientific article

Development of a caregiver-reported measure to support systematic assessment of people with dementia in long-term care: The Integrated Palliative care Outcome Scale for Dementia.

scientific article

Development, effectiveness and cost-effectiveness of a new out-patient Breathlessness Support Service: study protocol of a phase III fast-track randomised controlled trial.

scientific article

Dignity Through Integrated Symptom Management: Lessons From the Breathlessness Support Service.

scientific article published on 17 September 2016

Disability in activities of daily living among adults with cancer: A systematic review and meta-analysis.

scientific article

Discovering the hidden benefits of cognitive interviewing in two languages: The first phase of a validation study of the Integrated Palliative care Outcome Scale

scientific article published on 28 September 2015

Discussion of quality and audit in health.

scientific article published on January 2006

Diversity in defining end of life care: an obstacle or the way forward?

scientific article published on 03 July 2013

Do religious or spiritual beliefs influence bereavement? A systematic review

scientific article published on April 2007

Do social factors affect where patients die: an analysis of 10 years of cancer deaths in England

article

Do specialist palliative care teams improve outcomes for cancer patients? A systematic literature review.

scientific article published in September 1998

Do we need palliative care audit in developing countries?

scientific article published on 01 November 2002

Doctors should not discuss resuscitation with terminally ill patients: AGAINST.

scientific article

Does ethnicity affect where people with cancer die? A population-based 10 year study

scientific article

Does palliative care improve outcomes for patients with HIV/AIDS? A systematic review of the evidence.

scientific article published on February 2005

Does the EQ-5D capture the concerns measured by the Palliative care Outcome Scale? Mapping the Palliative care Outcome Scale onto the EQ-5D using statistical methods

scientific article published on April 2017

Dying at home--is it better: a narrative appraisal of the state of the science.

scientific article published on 22 May 2013

Dying to be home? Preferred location of death of first-generation black Caribbean and native-born white patients in the United Kingdom.

scientific article

Dying with cancer, living well with advanced cancer.

scientific article published on 14 March 2008

EAPC White Paper on outcome measurement in palliative care: Improving practice, attaining outcomes and delivering quality services - Recommendations from the European Association for Palliative Care (EAPC) Task Force on Outcome Measurement

scientific article published on 11 June 2015

Early specialised palliative care: interventions, symptoms, problems

scientific article published on 27 March 2020

Effect of a palliative home care team on hospital admissions among patients with advanced cancer

scientific article published on 01 June 2003

Effect of participation in a randomised controlled trial of an integrated palliative care intervention on HIV-associated stigma.

scientific article published on 17 April 2018

Effectiveness and cost-effectiveness of home palliative care services for adults with advanced illness and their caregivers

scientific article (publication date: 2013)

Effectiveness and cost-effectiveness of home palliative care services for adults with advanced illness and their caregivers

scientific article

Effectiveness of a hand-held fan for breathlessness: a randomised phase II trial

scientific article

Effectiveness of palliative day care in improving pain, symptom control, and quality of life.

scientific article

Efficiency of searching the grey literature in palliative care.

scientific article

Emergency department attendance by patients with cancer in their last month of life: a systematic review and meta-analysis

scientific article published on 22 December 2014

End of life content in geriatric textbooks: what is the current situation?

scientific article

End-of-life care across Southern Europe: a critical review of cultural similarities and differences between Italy, Spain and Portugal

scientific article published on 08 July 2011

End-of-life care--what do cancer patients want?

scientific article

End-stage renal disease: a new trajectory of functional decline in the last year of life.

scientific article published on 28 January 2011

Enhancing patient-reported outcome measurement in research and practice of palliative and end-of-life care.

scientific article published on 7 March 2012

Episodes of breathlessness: types and patterns - a qualitative study exploring experiences of patients with advanced diseases.

scientific article published on 13 March 2013

Episodic and continuous breathlessness: a new categorization of breathlessness.

scientific article

Episodic breathlessness in patients with advanced disease: a systematic review

scientific article published on 24 August 2012

Equal or not? Women hold less prestigious roles at respiratory medicine conferences than men

scientific article published on 23 January 2020

Evaluating complex interventions in end of life care: the MORECare statement on good practice generated by a synthesis of transparent expert consultations and systematic reviews

scientific article

Evaluation of a new model of short-term palliative care for people severely affected with multiple sclerosis: a randomised fast-track trial to test timing of referral and how long the effect is maintained

article

Evaluation of hospital palliative care teams: strengths and weaknesses of the before-after study design and strategies to improve it.

scientific article published on 24 October 2008

Evidence-based policy in palliative care: time to learn from our mistakes.

scientific article published on 19 October 2016

Experience of persistent psychological symptoms and perceived stigma among people with HIV on antiretroviral therapy (ART): a systematic review

scientific article published on 11 February 2014

Experiences of breathlessness: a systematic review of the qualitative literature

scientific article published on September 2007

Expert opinion on detecting and treating depression in palliative care: A Delphi study

scientific article

Exploring meanings of illness causation among those severely affected by multiple sclerosis: a comparative qualitative study of Black Caribbean and White British people.

scientific article published on 19 April 2015

Factors Associated with Participation, Active Refusals and Reasons for Not Taking Part in a Mortality Followback Survey Evaluating End-of-Life Care.

scientific article published on 8 January 2016

Factors Associated with Transition from Community Settings to Hospital as Place of Death for Adults Aged 75 and Older: A Population-Based Mortality Follow-Back Survey

scientific article published on 09 September 2016

Factors associated with aggressive end of life cancer care.

scientific article published on 8 August 2015

Fast-Track Trials in Palliative Care: An Alternative Randomized Controlled Trial Design

scientific article published on 01 March 2009

Fear of dying in an ethnically diverse society: cross-sectional studies of people aged 65+ in Britain

scientific article

Feasibility and acceptability of a patient-reported outcome intervention in chronic heart failure

scientific article published on September 2017

Feasibility of assessing quality of care at the end of life in two cluster trials using an after-death approach with multiple assessments

scientific article

Feasibility, acceptability and potential effectiveness of Dignity Therapy for older people in care homes: a phase II randomized controlled trial of a brief palliative care psychotherapy.

scientific article published on 22 August 2011

Financial help for terminally ill patients

scientific article published in The Lancet

Fit to care? A comparison of informal caregivers of first-generation Black Caribbeans and White dependants with advanced progressive disease in the UK.

scientific article published in November 2003

General practitioners' use and experiences of palliative care services: a survey in south east England

scientific article

Holistic services for people with advanced disease and chronic or refractory breathlessness: a mixed-methods evidence synthesis

Home care by general practitioners for cancer patients in the last 3 months of life: An epidemiological study of quality and associated factors

scientific article

Home or hospital? Choices at the end of life

scientific article published on 01 September 2004

Home palliative care for terminal cancer patients: a survey on the final week of life.

scientific article published in May 1999

Home palliative care works: but how? A meta-ethnography of the experiences of patients and family caregivers.

scientific article published on 23 February 2017

How common are palliative care needs among older people who die in the emergency department?

scientific article

How do general end-of-life treatment goals and values relate to specific treatment preferences? A population-based study

How does a new breathlessness support service affect patients?

scientific article published on 17 September 2015

How empowering is hospital care for older people with advanced disease? Barriers and facilitators from a cross-national ethnography in England, Ireland and the USA.

scientific article

How integrated are neurology and palliative care services? Results of a multicentre mapping exercise

scientific article

How many people need palliative care? A study developing and comparing methods for population-based estimates

scientific article published on 21 May 2013

How many people will need palliative care in 2040? Past trends, future projections and implications for services.

scientific article

How should nations measure the quality of end-of-life care for older adults? Recommendations for an international minimum data set.

scientific article

How should we manage information needs, family anxiety, depression, and breathlessness for those affected by advanced disease: development of a Clinical Decision Support Tool using a Delphi design

scientific article

How to analyze palliative care outcome data for patients in Sub-Saharan Africa: an international, multicenter, factor analytic examination of the APCA African POS.

scientific article

I've had a good life, what's left is a bonus: factor analysis of the Mental Adjustment to Cancer Scale in a palliative care population

scientific article

Identification of palliative care needs among people with dementia and its association with acute hospital care and community service use at the end-of-life: A retrospective cohort study using linked primary, community and secondary care data

scientific article published on 31 May 2021

Identifying neuropathic pain in patients with head and neck cancer: use of the Leeds Assessment of Neuropathic Symptoms and Signs Scale.

scientific article published in August 2003

Identifying psychological distress at key stages of the cancer illness trajectory: a systematic review of validated self-report measures

scientific article

If you had less than a year to live, would you want to know? A seven-country European population survey of public preferences for disclosure of poor prognosis.

scientific article published on 18 March 2013

Illness perceptions, adjustment to illness, and depression in a palliative care population

scientific article published on 30 January 2012

Implementing Outcome Measures in Palliative Care

Implementing patient reported outcome measures (PROMs) in palliative care--users' cry for help ⬇️

scientific article

Implementing patient-reported outcome measures in palliative care clinical practice: a systematic review of facilitators and barriers

scientific article published on 25 June 2013

Improving end-of-life care for patients with chronic heart failure: "Let's hope it'll get better, when I know in my heart of hearts it won't".

scientific article published on 19 February 2007

Improving generalist end of life care: national consultation with practitioners, commissioners, academics, and service user groups

scientific article published on October 2008

Improving palliative care for cancer

scientific article published on 01 February 2003

Improving the assessment of quality of life in the clinical care of myeloma patients: the development and validation of the Myeloma Patient Outcome Scale (MyPOS)

scientific article

Inclusion of end-of-life care in the global health agenda

scientific article published on 25 June 2014

Individual breathlessness trajectories do not match summary trajectories in advanced cancer and chronic obstructive pulmonary disease: results from a longitudinal study

article

Influences on Care Preferences of Older People with Advanced Illness: A Systematic Review and Thematic Synthesis.

scientific article published on 7 March 2018

Integration of palliative care throughout HIV disease

scientific article published on 11 June 2012

Intensity and correlates of multidimensional problems in HIV patients receiving integrated palliative care in sub-Saharan Africa

scientific article published on 15 August 2012

Interactive technologies and videotapes for patient education in cancer care: systematic review and meta-analysis of randomised trials

scientific article published on 23 September 2006

International variation in classification of dialysis withdrawal: a systematic review.

scientific article published on 28 November 2013

Interventions for improving palliative care for older people living in nursing care homes

scientific article (publication date: 16 March 2011)

Interventions to improve symptoms and quality of life of patients with fibrotic interstitial lung disease: a systematic review of the literature.

scientific article published on December 2012

Invisible suffering: breathlessness in and beyond the clinic--a reply.

scientific article published in August 2015

Is Short-Term Palliative Care Cost-Effective in Multiple Sclerosis? A Randomized Phase II Trial

article by Irene Higginson et al published December 2009 in Journal of Pain and Symptom Management

Is a specialist breathlessness service more effective and cost-effective for patients with advanced cancer and their carers than standard care? Findings of a mixed-method randomised controlled trial

scientific article

Is antiretroviral therapy associated with symptom prevalence and burden?

Is dying in hospital better than home in incurable cancer and what factors influence this? A population-based study

scientific article

Is the qualitative research interview an acceptable medium for research with palliative care patients and carers?

scientific article

Is there evidence that palliative care teams alter end-of-life experiences of patients and their caregivers?

scientific article

It just didn't work: the realities of quality assessment in the English health care context.

scientific article

It would be NICE to have more evidence?

article

JAN Forum: your views and letters

scientific article published on 01 December 2003

Learning from the public: citizens describe the need to improve end-of-life care access, provision and recognition across Europe

scientific article

Liverpool Care Pathway for patients with cancer in hospital: a cluster randomised trial

scientific article

Living with breathlessness: a survey of caregivers of breathless patients with lung cancer or heart failure.

scientific article

Longitudinal validity and reliability of the Myeloma Patient Outcome Scale (MyPOS) was established using traditional, generalizability and Rasch psychometric methods.

scientific article published on 27 July 2017

MORECare research methods guidance development: recommendations for ethical issues in palliative and end-of-life care research

scientific article published on 21 May 2013

Maintaining dignity for residents of care homes: a qualitative study of the views of care home staff, community nurses, residents and their families.

scientific article published on 17 October 2013

Making Palliative Care Matter

scientific article published on 01 December 2014

Managing bereavement in the classroom: a conspiracy of silence? ⬇️

scientific article published on October 1, 2003

Managing cancer pain at the end of life with multiple strong opioids: a population-based retrospective cohort study in primary care. ⬇️

scientific article published on 27 January 2014

Managing patients with lung cancer. Effective communication, palliative care, and guidelines are needed

scientific article

Managing the supportive care needs of those affected by COVID-19

scientific article published on 08 April 2020

Measurement of dyspnoea in the clinical rather than the research setting

scientific article published on June 2008

Measures to assess commonly experienced symptoms for people with dementia in long-term care settings: a systematic review.

scientific article

Measuring geographical accessibility to palliative and end of life (PEoLC) related facilities: a comparative study in an area with well-developed specialist palliative care (SPC) provision.

scientific article

Measuring the Net Benefits of Hospice and Palliative Care: A Composite Measure for Multiple Audiences—Palliative Net Benefit

scientific article published in March 2011

Meeting information needs of patients with incurable progressive disease and their families in South Africa and Uganda: multicentre qualitative study

scientific article published on 22 April 2009

Meeting the communication and information needs of chronic heart failure patients

scientific article published on 2 July 2008

Mental health status of clients from three HIV/AIDS palliative care projects.

scientific article published in June 2004

Minimum dataset activity for hospice and hospital palliative care services in the UK 1997/98.

scientific article published in September 2000

Mixed methods research in the development and evaluation of complex interventions in palliative and end-of-life care: report on the MORECare consensus exercise

scientific article

Modelling services to meet the palliative care needs of chronic heart failure patients and their families: current practice in the UK

article

Multi-centred mixed-methods PEPFAR HIV care & support public health evaluation: study protocol

scientific article

Multidimensional patient-reported problems within two weeks of HIV diagnosis in East Africa: a multicentre observational study

scientific article

Needs assessments in palliative care: an appraisal of definitions and approaches used

scientific article published on May 2007

Neuromuscular electrical stimulation for muscle weakness in adults with advanced disease

scientific article

Neuromuscular electrical stimulation for muscle weakness in adults with advanced disease.

scientific article

Neuromuscular electrical stimulation to improve exercise capacity in patients with severe COPD - Authors' reply.

scientific article published on 4 April 2016

Neuromuscular electrical stimulation to improve exercise capacity in patients with severe COPD: a randomised double-blind, placebo-controlled trial

scientific article published on 14 December 2015

Non-pharmacological interventions for breathlessness in advanced stages of malignant and non-malignant diseases

scientific article (publication date: 22 November 2013)

Non-pharmacological interventions for breathlessness in advanced stages of malignant and non-malignant diseases

scientific article

Nurse-led palliative care for HIV-positive patients taking antiretroviral therapy in Kenya: a randomised controlled trial

scientific article published on 15 June 2015

Of apples and oranges: Lessons learned from the preparation of research protocols for systematic reviews exploring the effectiveness of Specialist Palliative Care.

scientific article

Opioid prescribing for cancer pain during the last 3 months of life: associated factors and 9-year trends in a nationwide United Kingdom cohort study.

scientific article published on 29 October 2012

Outcomes 'out of africa': the selection and implementation of outcome measures for palliative care in Africa

scientific article

PRISMA: a pan-European co-ordinating action to advance the science in end-of-life cancer care

scientific article published on 23 February 2010

Pain and Symptom Control in HIV Disease: Under-Researched and Poorly Managed

article

Pain experienced by lung cancer patients: a review of prevalence, causes and pathophysiology.

scientific article published on March 2004

Palliative care and management of troublesome symptoms for people with chronic obstructive pulmonary disease

scientific article published in September 2017

Palliative care for patients with advanced fibrotic lung disease: a randomised controlled phase II and feasibility trial of a community case conference intervention.

scientific article published on 23 June 2015

Palliative care for people severely affected by multiple sclerosis: evaluation of a novel palliative care service

scientific article published on 19 March 2010

Palliative care for people with HIV/AIDS: Views of patients, carers and providers ⬇️

scientific article published on January 1, 1993

Palliative care in sub-Saharan Africa

scientific article

Palliative care needs of heart failure patients in China: putting people first

scientific article

Palliative care-related self-report problems among cancer patients in East Africa: a two-country study

scientific article

Palliative care: Based on neither diagnosis nor prognosis, but patient and family need. Commentary on Chattoo and Atkin

scientific article published on 12 June 2009

Palliative day care: what do services do? Palliative Day Care Project Group.

scientific article

Palliative day care: what does it cost to run a centre and does attendance affect use of other services? ⬇️

scientific article published on October 1, 2003

Past trends and projections of hospital deaths to inform the integration of palliative care in one of the most ageing countries in the world

scientific article published on 10 July 2015

Patient Reports of Symptoms and Their Treatment at Three Palliative Care Projects Servicing Individuals with HIV/AIDS

article

Patient and carer experiences of clinical uncertainty and deterioration, in the face of limited reversibility: A comparative observational study of the AMBER care bundle

scientific article

Patient, caregiver, health professional and researcher views and experiences of participating in research at the end of life: a critical interpretive synthesis of the literature.

scientific article

Patients' experiences of a new integrated breathlessness support service for patients with refractory breathlessness: Results of a postal survey

scientific article published on 26 August 2015

Patterns and predictors of place of cancer death for the oldest old.

scientific article

Patterns of dignity-related distress at the end of life: a cross-sectional study of patients with advanced cancer and care home residents

scientific article published on 20 May 2014

Patterns of dying: palliative care for non-malignant disease

scientific article published on 01 January 2004

Pharmacological treatment of refractory breathlessness

scientific article published in February 2009

Phase I Cancer Trials and Palliative Care: Antagonism, Irrelevance, or Synergy?

scientific article published on 24 May 2016

Physical and Psychological Distress Are Related to Dying Peacefully in Residents With Dementia in Long-Term Care Facilities

scientific article published on 4 April 2015

Place and cause of death in centenarians: a population-based observational study in England, 2001 to 2010

scientific article (publication date: June 2014)

Place of care in advanced cancer: a qualitative systematic literature review of patient preferences.

scientific article

Place of death in children and young people with cancer and implications for end of life care: a population-based study in England, 1993-2014.

scientific article

Place of death, and its relation with underlying cause of death, in Parkinson’s disease, motor neurone disease, and multiple sclerosis: A population-based study

scientific article published on 04 June 2013

Population, mortality and place of death in Germany (1950-2050) - implications for end-of-life care in the future.

scientific article published on 2 October 2012

Predictors of emergency department attendance by people with dementia in their last year of life: Retrospective cohort study using linked clinical and administrative data

scientific article published on 08 August 2017

Predictors of non-remission of depression in a palliative care population

scientific article published on 22 June 2011

Preferences for place of death if faced with advanced cancer: a population survey in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain.

scientific article published on 16 February 2012

Prevalence of symptoms in patients with multiple myeloma: a systematic review and meta-analysis

scientific article

Prevalence, burden, and correlates of physical and psychological symptoms among HIV palliative care patients in sub-Saharan Africa: an international multicenter study

scientific article published on June 2012

Prevalence, course and associations of desire for hastened death in a UK palliative population: a cross-sectional study

scientific article published on 4 July 2011

Prevalence, severity, duration and measurement of pain in sub-Saharan Africa

scientific article published in December 2004

Priorities for treatment, care and information if faced with serious illness: a comparative population-based survey in seven European countries

scientific article published on 23 May 2013

Professionals' views and experiences of using outcome measures in palliative care.

scientific article

Progression, symptoms and psychosocial concerns among those severely affected by multiple sclerosis: a mixed-methods cross-sectional study of Black Caribbean and White British people

scientific article

Provision of palliative care for chronic heart failure inpatients: how much do we need?

scientific article

Psychological as well as illness factors influence acceptance of non-invasive ventilation (NIV) and gastrostomy in amyotrophic lateral sclerosis (ALS): a prospective population study

scientific article published on 6 March 2014

Psychological distress in cancer from survivorship to end of life care: prevalence, associated factors and clinical implications

scientific article

Psychological services in hospices in the UK and Republic of Ireland.

scientific article published in December 2006

Psychological well-being and quality of care: a factor-analytic examination of the palliative care outcome scale

scientific article published on 15 May 2010

Psychometric Properties of a Generic, Patient-Centred Palliative Care Outcome Measure of Symptom Burden for People with Progressive Long Term Neurological Conditions

scientific article

Public Health and Palliative Care

article

Public health and palliative care in 2015.

scientific article published on 26 February 2015

Public opinion on preferences and priorities for end-of-life care in sub-Saharan Africa: piloting a novel method of street surveying

scientific article published on 13 December 2011

Public preferences and priorities for end-of-life care in Kenya: a population-based street survey

scientific article

Quality criteria valuable with slight modification

Quality of life among patients receiving palliative care in South Africa and Uganda: a multi-centred study

scientific article

Quality of life and survival prediction in terminal cancer patients: a multicenter study

scientific article

Quality of life and wellbeing among HIV outpatients in East Africa: a multicentre observational study

scientific article

Randomised clinical trial of early specialist palliative care plus standard care versus standard care alone in patients with advanced cancer: The Danish Palliative Care Trial

scientific article published in May 2017

Randomised controlled trial of a new palliative care service: Compliance, recruitment and completeness of follow-up

scientific article

Randomised, double-blind, multicentre, mixed-methods, dose-escalation feasibility trial of mirtazapine for better treatment of severe breathlessness in advanced lung disease (BETTER-B feasibility)

scientific article published on 08 January 2020

Rasch analysis and impact factor methods both yield valid and comparable measures of health status in interstitial lung disease

scientific article published on 10 April 2015

Recommendations for managing missing data, attrition and response shift in palliative and end-of-life care research: part of the MORECare research method guidance on statistical issues

scientific article

Reconciling employment with caring for a husband with an advanced illness

scientific article

Reducing hospital beds for patients with advanced cancer

scientific article published in The Lancet

Refractory breathlessness: oxygen or room air?

scientific article published in September 2010

Relationship between three palliative care outcome scales

scientific article

Religious faith and support at the end of life: a comparison of first generation black Caribbean and white populations.

scientific article published in November 2002

Reporting of clinically diagnosed dementia on death certificates: retrospective cohort study

scientific article published on 04 May 2016

Republished: which questions of two commonly used multidimensional palliative care patient reported outcome measures are most useful? Results from the European and African PRISMA survey

scientific article published in August 2012

Research challenges in palliative and end of life care.

scientific article published on March 2016

Research into end-of-life cancer care—investment is needed

scientific article published in The Lancet

Research into palliative care in sub-Saharan Africa

scientific article published on April 2013

Research priorities in health economics and funding for palliative care: views of an international think tank

scientific article published in July 2009

Response and role of palliative care during the COVID-19 pandemic: A national telephone survey of hospices in Italy

scientific article published on 29 April 2020

Results of a pilot investigation into a complex intervention for breathlessness in advanced chronic obstructive pulmonary disease (COPD): brief report

scientific article published on 23 March 2010

Results of a transparent expert consultation on patient and public involvement in palliative care research.

scientific article

Reversal of the British trends in place of death: Time series analysis 2004–2010

article

Review: measures to determine the outcome of community services for people with dementia.

scientific article published on January 1995

Screening for depression in advanced disease: psychometric properties, sensitivity, and specificity of two items of the Palliative Care Outcome Scale (POS).

scientific article published on 15 August 2014

Seeing is believing - healthcare professionals' perceptions of a complex intervention to improve care towards the end of life: A qualitative interview study.

scientific article published in May 2017

Self-management for breathlessness in COPD: the role of pulmonary rehabilitation.

scientific article published in January 2009

Self-report measurement of pain & symptoms in palliative care patients: a comparison of verbal, visual and hand scoring methods in Sub-Saharan Africa

scientific article

Service Needs of Patients with Advanced HIV Disease: A Comparison of Client and Staff Reports at Three Palliative Care Projects

article

Services, costs and appropriate outcomes in end of life care

scientific article published on 01 February 1999

Short-form Zarit Caregiver Burden Interviews were valid in advanced conditions

scientific article published in May 2010

Social and clinical determinants of preferences and their achievement at the end of life: prospective cohort study of older adults receiving palliative care in three countries

scientific article published on 23 November 2017

Social-cultural factors in end-of-life care in Belgium: a scoping of the research literature

scientific article published on 05 December 2011

Strategies to address the shortcomings of commonly used advanced chronic heart failure descriptors to improve recruitment in palliative care research: A parallel mixed-methods feasibility study.

scientific article published in May 2017

Strategies used in improving and assessing the level of reporting of implementation fidelity in randomised controlled trials of palliative care complex interventions: A systematic review

scientific article published on July 2017

Stressors and resources of caregivers of patients with incurable progressive illness in sub-Saharan Africa

scientific article

Study protocol: Phase III single-blinded fast-track pragmatic randomised controlled trial of a complex intervention for breathlessness in advanced disease

scientific article

Study protocol: delayed intervention randomised controlled trial within the Medical Research Council (MRC) Framework to assess the effectiveness of a new palliative care service

scientific article

Support in the community for people with dementia and their carers: a comparative outcome study of specialist mental health service interventions.

scientific article published in April 2003

Symptom assessment in palliative care: a need for international collaboration

scientific article published on August 2008

Symptoms and quality of life in late stage Parkinson syndromes: a longitudinal community study of predictive factors

scientific article

Symptoms in the Month Before Death for Stage 5 Chronic Kidney Disease Patients Managed Without Dialysis

scientific article published on 26 June 2010

Systematic review of specialist palliative day-care for adults with cancer

scientific article

Systematic review of the primary research on minority ethnic groups and end-of-life care from the United Kingdom

scientific article published on 17 October 2011

Systematic reviews

scientific article published on 01 January 1999

Terminal Cancer Patients and Timing of Referral to Palliative Care A Multicenter Prospective Cohort Study

scientific article published on 01 October 1999

The "Spirit 8" successfully captured spiritual well-being in African palliative care: factor and Rasch analysis

scientific article published on April 2012

The AMBER care bundle for hospital inpatients with uncertain recovery nearing the end of life: the ImproveCare feasibility cluster RCT

scientific article published on 01 October 2019

The Effectiveness of Singing or Playing a Wind Instrument in Improving Respiratory Function in Patients with Long-Term Neurological Conditions: A Systematic Review.

scientific article

The Global Palliative Care Lottery: Can We Overcome It?

scientific article published on 01 April 2011

The HIV basic care package: where is it available and who receives it? Findings from a mixed methods evaluation in Kenya and Uganda

scientific article

The Liverpool Care Pathway for cancer patients dying in hospital medical wards: a before-after cluster phase II trial of outcomes reported by family members

scientific article

The MVQOLI successfully captured quality of life in African palliative care: a factor analysis

scientific article published on 6 April 2011

The Myeloma Patient Outcome Scale is the first quality of life tool developed for clinical use and validated in patients with follicular lymphoma.

scientific article

The PRISMA Symposium 1: outcome tool use. Disharmony in European outcomes research for palliative and advanced disease care: too many tools in practice

scientific article published in October 2011

The PRISMA Symposium 4: how should Europe progress end-of-life and palliative clinical care research? Recommendations from the proceedings

article published in 2011

The Place Where They Have to Take You In or the Place Where You Prefer to Be?

scientific article published on 01 September 2009

The TEAM Approach to Improving Oncology Outcomes by Incorporating Palliative Care in Practice

scientific article

The Use of Opioid Analgesia in End-Stage Renal Disease Patients Managed Without Dialysis

scholarly article by Fliss Murtagh et al published 6 June 2007 in Journal of Pain and Palliative Care Pharmacotherapy

The changing demographics of inpatient hospice death: Population-based cross-sectional study in England, 1993-2012.

scientific article

The clinical and cost effectiveness of a Breathlessness Intervention Service for patients with advanced non-malignant disease and their informal carers: mixed findings of a mixed method randomised controlled trial

scientific article

The clinical epidemiology of depression in palliative care and the predictive value of somatic symptoms: cross-sectional survey with four-week follow-up

scientific article published on 12 January 2011

The detection of depression in palliative care

scientific article published on March 2009

The development and validation of the King's Brief Interstitial Lung Disease (K-BILD) health status questionnaire

scientific article published on 03 May 2012

The development and validation of the King's Sarcoidosis Questionnaire for the assessment of health status.

scientific article published on 12 October 2012

The development of evidence-based European guidelines on the management of depression in palliative cancer care

scientific article published on 04 January 2011

The effect of communication skills training for generalist palliative care providers on patient-reported outcomes and clinician behaviours: a systematic review and meta-analysis

scientific article published on August 2017

The effectiveness and cost-effectiveness of inpatient specialist palliative care in acute hospitals for adults with advanced illness and their caregivers

scientific article

The effectiveness and cost-effectiveness of inpatient specialist palliative care in acute hospitals for adults with advanced illness and their caregivers

The end of life: unknown and unplanned?

scientific article published on 28 March 2007

The etiology and management of intractable breathlessness in patients with advanced cancer: a systematic review of pharmacological therapy

scientific article published on February 2008

The experience of using the SEIQoL-DW with patients with advanced chronic obstructive pulmonary disease (COPD): issues of process and outcome

scientific article

The feasibility of a single-blinded fast-track pragmatic randomised controlled trial of a complex intervention for breathlessness in advanced disease

scientific article

The gap between policy and practice: a systematic review of patient-centred care interventions in chronic heart failure

scientific article

The impact of disease-related symptoms and palliative care concerns on health-related quality of life in multiple myeloma: a multi-centre study.

scientific article

The impact of palliative medicine?

scientific article published on 01 July 1999

The intensity of caregiving is a more important predictor of adverse bereavement outcomes for adult-child than spousal caregivers of patients who die of cancer

scientific article published on 2 May 2016

The level of need for palliative care: a systematic review of the literature.

scientific article

The measurement of spirituality in palliative care and the content of tools validated cross-culturally: a systematic review

scientific article published on April 2011

The need for palliative care for patients with non-cancer diseases: a review of the evidence.

scientific article

The need for palliative care in Ireland: a population-based estimate of palliative care using routine mortality data, inclusive of nonmalignant conditions

scientific article

The need to research refractory breathlessness.

scientific article published in January 2016

The palliative care needs for fibrotic interstitial lung disease: a qualitative study of patients, informal caregivers and health professionals.

scientific article

The presence of CD4 counts for the management of HIV patients in East Africa: a multicentred study

scientific article

The prevalence and burden of symptoms amongst cancer patients attending palliative care in two African countries

scientific article published on 6 September 2010

The prevalence of symptoms in end-stage renal disease: a systematic review.

scientific article published on January 2007

The randomized fast-track trial in palliative care: Role, utility and ethics in the evaluation of interventions in palliative care?

article by Irene Higginson et al published December 2011 in Palliative Medicine

The real-world problem of care coordination: a longitudinal qualitative study with patients living with advanced progressive illness and their unpaid caregivers

scientific article

The real-world problem of care coordination: a longitudinal qualitative study with patients living with advanced progressive illness and their unpaid caregivers

The role of service factors on variations in place of death: an observational study

The selection and use of outcome measures in palliative and end-of-life care research: the MORECare International Consensus Workshop

scientific article published on 28 April 2013

The use of opioid analgesia in end-stage renal disease patients managed without dialysis: recommendations for practice.

scientific article published on January 2007

The value of cognitive interviewing techniques in palliative care research.

scientific article published in March 2007

The value of uncertainty in critical illness? An ethnographic study of patterns and conflicts in care and decision-making trajectories.

scientific article published on 9 February 2016

Time for a prospective study to evaluate the Amber Care Bundle.

scientific article

Time to get it right: are preferences for place of death more stable than we think?

scientific article published on 09 February 2010

Time to go beyond observing the problem. Response to: Dying in hospital: socioeconomic inequality trends in England, DOI: 10.1177/1355819616686807.

scientific article published in January 2018

To be involved or not to be involved: a survey of public preferences for self-involvement in decision-making involving mental capacity (competency) within Europe

scientific article published on 20 February 2013

Towards patient-centred cancer care: cross-cultural validity and responsiveness of the Turkish Integrated Palliative care Outcome Scale

scientific article published on 22 September 2020

Trajectories of Illness in Stage 5 Chronic Kidney Disease: A Longitudinal Study of Patient Symptoms and Concerns in the Last Year of Life

scientific article published on 16 June 2011

Treatment outcomes in palliative care: the TOPCare study. A mixed methods phase III randomised controlled trial to assess the effectiveness of a nurse-led palliative care intervention for HIV positive patients on antiretroviral therapy

scientific article

Twitter discussions from a respirology journal club - authors' reply.

scientific article published in April 2015

Two HIV/AIDS community support teams: Patient characteristics, problems at referral and during the last 6 weeks of life

article

Understanding breathlessness: cross-sectional comparison of symptom burden and palliative care needs in chronic obstructive pulmonary disease and cancer

scientific article published in September 2010

Understanding how a palliative-specific patient-reported outcome intervention works to facilitate patient-centred care in advanced heart failure: A qualitative study.

scientific article published in November 2017

Understanding what matters most to people with multiple myeloma: a qualitative study of views on quality of life

scientific article

Universal coverage for palliative care in respiratory disease and critical care

scientific article

Use of the palliative outcome scale in Argentina: a cross-cultural adaptation and validation study

scientific article published on 21 December 2007

Using routine data to improve palliative and end of life care

scientific article

Using satisfaction to measure the quality of palliative care: a review of the literature.

scientific article

Using the 12-item General Health Questionnaire to screen psychological distress from survivorship to end-of-life care: dimensionality and item quality

scientific article published on 9 May 2011

Validation and Clinical Application of the German Version of the Palliative Care Outcome Scale

article

Validation of a core outcome measure for palliative care in Africa: the APCA African Palliative Outcome Scale

scientific article

Validity of the support team assessment schedule: do staffs' ratings reflect those made by patients or their families?

scientific article

Validity, reliability and responsiveness to change of the Italian palliative care outcome scale: a multicenter study of advanced cancer patients

scientific article

Valuing Attributes of Home Palliative Care With Service Users: A Pilot Discrete Choice Experiment.

scientific article published on 7 August 2017

Variations in the cost of formal and informal health care for patients with advanced chronic disease and refractory breathlessness: A cross-sectional secondary analysis

scientific article

Variations in the quality and costs of end-of-life care, preferences and palliative outcomes for cancer patients by place of death: the QUALYCARE study

scientific article

Vulnerability in palliative care research: findings from a qualitative study of black Caribbean and white British patients with advanced cancer.

scientific article published in July 2009

Wellbeing among sub-Saharan African patients with advanced HIV and/or cancer: an international multicentred comparison study of two outcome measures

scientific article published on 31 May 2014

What are the perceived needs and challenges of informal caregivers in home cancer palliative care? Qualitative data to construct a feasible psycho-educational intervention.

scientific article

What factors influence emergency department visits by patients with cancer at the end of life? Analysis of a 124,030 patient cohort.

scientific article published in June 2017

What influences end-of-life decisions? Results of a representative German survey

scientific article published on 14 August 2015

What is palliative day care?

scientific article published on 21 August 2002

What is the best way to help caregivers in cancer and palliative care? A systematic literature review of interventions and their effectiveness.

scientific article

What is the evidence for mirtazapine in treating cancer-related symptomatology? A systematic review

scientific article published on 19 December 2019

What is the evidence that palliative care teams improve outcomes for cancer patients and their families?

scientific article

What is the impact of population ageing on the future provision of end-of-life care? Population-based projections of place of death

scientific article

What is the potential for the use of clinical outcome measures to be computerised? Findings from a qualitative research study

scientific article published on 01 January 2004

What issues matter most to people with multiple myeloma and how well are we measuring them? A systematic review of quality of life tools.

scientific article published on 26 October 2012

What palliative care-related problems do patients experience at HIV diagnosis? A systematic review of the evidence

scientific article published on 26 May 2011

Where do cancer patients die? Ten-year trends in the place of death of cancer patients in England

article

Where people die (1974--2030): past trends, future projections and implications for care.

scientific article published on January 2008

Which patients with advanced respiratory disease die in hospital? A 14-year population-based study of trends and associated factors

scientific article

Which questions of two commonly used multidimensional palliative care patient reported outcome measures are most useful? Results from the European and African PRISMA survey

scientific article published on 4 January 2012

Working with ambivalence: informal caregivers of patients at the end of life.

scientific article

`Fighting for everything': service experiences of people severely affected by multiple sclerosis

scientific article published on 09 February 2007

‘I'll continue as long as I can, and die when I can't help it’: a qualitative exploration of the views of end-of-life care by those affected by head and neck cancer (HNC)

scientific article published on 13 May 2014

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