List of works - John Wilbanks

'Omics data sharing

scientific article

An Interoperability Principle for Knowledge Creation and Governance: The Role of Emerging Institutions

scholarly article

An open source pharma roadmap

scientific article (publication date: 18 April 2017)

Another reason for opening access to research

scientific article

Assessing the consequences of decentralizing biomedical research

scientific article published in January 2019

Assessment of the <i>All of Us</i> research program's informed consent process

scientific article published on 04 December 2020

Bringing Code to Data: Don't Forget Governance

scientific article published on 11 June 2020

Citizen Science on Your Smartphone: An ELSI Research Agenda

scientific article

Collaborating to Compete: Blood Profiling Atlas in Cancer (BloodPAC) Consortium.

scientific article published on 10 February 2017

Collaborative Computational Technologies for Biomedical Research

Cost of Freedom ⬇️

book about free culture honoring Bassel Khartabil

Creating a data resource: what will it take to build a medical information commons?

scientific article published on 22 September 2017

Custom-fit your journey to improved patient safety.

scientific article published on September 2014

Design Issues in E-Consent

scientific article published on 27 March 2018

Electronic Informed Consent in Mobile Applications Research

scientific article published on 01 March 2020

Empirical validation of an automated approach to data use oversight

scientific article published on 10 November 2021

First, design for data sharing

scientific article

Formative Evaluation of Participant Experience With Mobile eConsent in the App-Mediated Parkinson mPower Study: A Mixed Methods Study.

scientific article

Implementing a universal informed consent process for the Research Program

scientific article published on 01 January 2019

Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons

scientific article published on 01 March 2019

Indicators of retention in remote digital health studies: a cross-study evaluation of 100,000 participants

scientific article published on 17 February 2020

Intellectual Property Aspects of Collaboration

Introduction: Unregulated Health Research Using Mobile Devices

scientific article published on 01 March 2020

John Wilbanks: Let's pool our medical data

TEDGlobal 2012

Licence restrictions: A fool's errand

scientific article

Navigating ethical quandaries with the privacy dilemma of biomedical datasets

scientific article published on 01 January 2020

Open Access, Public Access: Policies, Implementation, Developments, and the Future of U.S.-Published Research

Open letter to the Society for Neuroscience

Openness as infrastructure ⬇️

scientific article published on October 14, 2011

Panton Principles

set of guidelines on how to share scientific data

Portable Approaches to Informed Consent and Open Data

Responsible sharing of biomedical data and biospecimens via the "Automatable Discovery and Access Matrix" (ADA-M)

Science, Open Communication and Sustainable Development

article

Stop the privatization of health data

scientific article

The Rise of Citizen Science in Health and Biomedical Research

scientific article published on 01 August 2019

The Role of Government in Precision Medicine, Precision Public Health and the Intersection With Healthy Living

scientific article published on 07 December 2018

The mPower study, Parkinson disease mobile data collected using ResearchKit

scientific article

Transgenic mouse with human mutant p53 expression in the prostate epithelium

scientific article

List of works by John Wilbanks

'Omics data sharing

An Interoperability Principle for Knowledge Creation and Governance: The Role of Emerging Institutions

An open source pharma roadmap

Another reason for opening access to research

Assessing the consequences of decentralizing biomedical research

Assessment of the <i>All of Us</i> research program's informed consent process

Bringing Code to Data: Don't Forget Governance

Citizen Science on Your Smartphone: An ELSI Research Agenda

Collaborating to Compete: Blood Profiling Atlas in Cancer (BloodPAC) Consortium.

Collaborative Computational Technologies for Biomedical Research

Cost of Freedom ⬇️

Creating a data resource: what will it take to build a medical information commons?

Custom-fit your journey to improved patient safety.

Design Issues in E-Consent

Electronic Informed Consent in Mobile Applications Research

Empirical validation of an automated approach to data use oversight

First, design for data sharing

Formative Evaluation of Participant Experience With Mobile eConsent in the App-Mediated Parkinson mPower Study: A Mixed Methods Study.

Implementing a universal informed consent process for the Research Program

Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons

Indicators of retention in remote digital health studies: a cross-study evaluation of 100,000 participants

Intellectual Property Aspects of Collaboration

Introduction: Unregulated Health Research Using Mobile Devices

John Wilbanks: Let's pool our medical data

Licence restrictions: A fool's errand

Navigating ethical quandaries with the privacy dilemma of biomedical datasets

Open Access, Public Access: Policies, Implementation, Developments, and the Future of U.S.-Published Research

Open letter to the Society for Neuroscience

Openness as infrastructure ⬇️

Panton Principles

Portable Approaches to Informed Consent and Open Data

Responsible sharing of biomedical data and biospecimens via the "Automatable Discovery and Access Matrix" (ADA-M)

Science, Open Communication and Sustainable Development

Stop the privatization of health data

The Rise of Citizen Science in Health and Biomedical Research

The Role of Government in Precision Medicine, Precision Public Health and the Intersection With Healthy Living

The mPower study, Parkinson disease mobile data collected using ResearchKit

Transgenic mouse with human mutant p53 expression in the prostate epithelium

US-EU Scientific Research Collaborations: Sage Bionetworks’ Experience Navigating the Complex Regulatory Landscape

Unregulated Health Research Using Mobile Devices: Ethical Considerations and Policy Recommendations

We need a Web for data

What the semantic web could do for the life sciences

Why Open Drug Discovery Needs Four Simple Rules for Licensing Data and Models

Why open drug discovery needs four simple rules for licensing data and models