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List of works by Lainie Friedman Ross

(Women and) children first: applicable to lifeboats? Applicable to human experimentation?

scientific article

360 Degrees of human subjects protections in community-engaged research

scientific article

50 Years Ago in The Journal of Pediatrics: Conference on Treatment of Phenylketonuria

scientific article published on 01 January 2017

50 Years Ago in The Journal of Pediatrics: Editorial Comment: Therapeutic Orphans

scientific article published in January 2018

50 Years Ago in The Journal of Pediatrics: Maternal Phenylketonuria: Implications for Growth and Development

scientific article published on 01 October 2018

50 Years Ago in The Journal of Pediatrics: Phenylketonuria in a Negro Infant

scientific article

50 Years Ago in The Journal of Pediatrics: Plus ça Change: Halfway Technologies in Pediatrics

scientific article published on 01 September 2020

50 Years Ago in The Journal of Pediatrics: Prenatal Detection of Genetic Defects

scientific article published on 01 January 2019

50 Years Ago in The Journal of Pediatrics: Variability in the Manifestations of Phenylketonuria/Transient Hyperphenylalaninemia

scientific article published on 01 April 2018

50 Years Ago in TheJournal ofPediatrics: A New Diagnostic Test for Hemoglobin S

scientific article published on 01 January 2020

50 Years Ago in TheJournal ofPediatrics: Evaluation of the Effects of Terminating the Diet in Phenylketonuria

scientific article published on 01 October 2016

50 Years Ago in TheJournal ofPediatrics: Legislation and Advances in Medical Knowledge-Acceleration or Inhibition?

scientific article published on 01 August 2016

50 Years Ago in TheJournal ofPediatrics: Parents of the Mentally Retarded Child: Emotionally Overwhelmed or Informationally Deprived?

scientific article published on 01 June 2019

50 Years Ago in TheJournal ofPediatrics: Why Patients Don't Follow Medical Advice: A Study of Children on Long-Term Antistreptococcal Prophylaxis

scientific article published on 01 December 2019

50 Years Ago in TheJournalofPediatrics: Renal Homotransplantations in Children

scientific article published on 01 March 2020

50 Years Ago in TheJournalofPediatrics: Shifting Attitudes toward the Disclosure of Serious Illness

scientific article published on 01 May 2020

50 years ago in the Journal of Pediatrics: comparison of serum phenylalanine levels with growth in Guthrie's inhibition assay in newborn infants

scientific article published in September 2012

50 years ago in the Journal of Pediatrics: identification of heterozygotes with phenylketonuria on basis of blood tyrosine responses

scientific article published on 01 September 2012

50 years ago in the Journal of Pediatrics: mass screening for phenylketonuria

scientific article published in September 2012

A Historical and Current Review of Newborn Screening for Neuromuscular Disorders From Around the World: Lessons for the United States

scientific article published on 25 August 2017

A compounding of errors: the case of bone marrow donation between non-intimate siblings

article

A descriptive and moral evaluation of providing informal medical care to one's own children.

scientific article published in January 2009

A pilot study to determine whether health care professionals perceive stigma in heterozygote carrier identification and disclosure decisions ⬇️

scientific article published on 07 July 2011

A pilot study to evaluate awareness of and attitudes about prenatal and neonatal genetic testing in postpartum African American women.

scientific article published in January 2013

A pilot study to evaluate knowledge and attitudes of Illinois pediatricians toward newborn screening for sickle cell disease and cystic fibrosis

scientific article published on 09 September 2010

A pilot study to explore knowledge, attitudes, and beliefs about sickle cell trait and disease.

scientific article published in November 2009

A re‐examination of the use of ethnicity in prenatal carrier testing ⬇️

scientific article published on November 21, 2011

Abusive Head Trauma and Parental Participation in Pediatric Decision Making

scientific article published on 01 January 2020

Adding Another Voice to the Living Donor Kidney Transplant Discussions at the CIBA Symposium of 1966.

scientific article

Addressing the ethical challenges in genetic testing and sequencing of children

scientific article

Adolescent autonomy in health care?

scientific article published on 01 January 2003

Adolescent sexuality and public policy: a liberal response.

scientific article published in March 1996

Adolescent sexuality and public policy: an unrepentant liberal approach.

scientific article

African-Americans with End Stage Renal Disease in the Early Years of Kidney Transplantation

scientific article published on 16 February 2019

Against newborn screening for type 1 diabetes.

scientific article published in June 2007

Against the tide: arguments against respecting a minor's refusal of efficacious life-saving treatment.

scientific article

Age and equity in liver transplantation: An organ allocation model.

scientific article

Age should not be considered in the allocation of deceased donor kidneys

scientific article published on 19 October 2012

All donations should not be treated equally: a response to Jeffrey Kahn's commentary.

scientific article published in January 2002

American Academy of Pediatrics policy statements on bioethics: summaries and commentaries: part 1.

scientific article published in January 2008

American Academy of Pediatrics policy statements on bioethics: summaries and commentaries: part 2.

scientific article published on March 2008

American academy of pediatrics policy statements on bioethics: summaries and commentaries: part 3

scientific article published on 01 May 2008

An empirical investigation of physicians' attitudes toward intrasibling kidney donation by minor twins

scientific article

An ethical and policy analysis of elective transplantation for metabolic conditions diagnosed by newborn screening

scientific article published in January 2010

Are Minority Children Under- or Overrepresented in Pediatric Research? ⬇️

scientific article published on October 1, 2003

Are We Ready to Expand Donation after Cardiac Death to the Newborn Population? ⬇️

scientific article published on September 25, 2010

Are research ethics standards satisfied in pediatric journal publications?

scientific article

Are we adequately protecting vulnerable patients in longitudinal observational studies? ⬇️

scientific article published on February 6, 2011

Arguments against health care autonomy for minors.

scientific article

Arguments against respecting a minor's refusal of efficacious life-saving treatment redux, part II.

scientific article published in January 2009

Association of Transplant Center With Survival Benefit Among Adults Undergoing Heart Transplant in the United States

scientific article published on 01 November 2019

Attitudes and Beliefs of Sports Medicine Providers to Sickle Cell Trait Screening of Student Athletes

scientific article published on 01 November 2011

Attitudes and Counseling Practices of Pediatricians Regarding Youth Sports Participation and Concussion Risks.

scientific article published on 24 February 2017

Attitudes and beliefs of pediatricians and genetic counselors regarding testing and screening for CF and G6PD: implications for policy

scientific article published on 01 November 2006

Attitudes of African-American parents about biobank participation and return of results for themselves and their children ⬇️

scientific article published on May 9, 2012

Attitudes of Lay Stakeholders and Transplant Professionals About Disclosure to Living Kidney Donors in Exchanges and Chains

scientific article published on 28 August 2016

Attitudes of genetic counselors towards expanding newborn screening and offering predictive genetic testing to children

scientific article published on 01 November 2006

Better than Best (Interest Standard) in Pediatric Decision Making

scientific article published on 01 January 2019

Biobank participation and returning research results: Perspectives from a deliberative engagement in South Side Chicago ⬇️

scientific article published on March 21, 2012

Carrier detection in childhood: a need for policy reform

scientific article

Certificates of confidentiality in research: rationale and usage

scientific article published in January 2004

Child maltreatment and modifying factors in Shanghai, China

scientific article published on 01 October 2019

Children in medical research: balancing protection and access--has the pendulum swung too far?

scientific article

Clinical and ethical considerations in managing carrier detection

scientific article

Communicating with parents about immunization safety: messages for pediatricians in the IOM report "the childhood immunization schedule and safety: stakeholder concerns, scientific evidence, and future studies".

scientific article published on September 2013

Consent Is the Cornerstone of Ethically Valid Research: Ethical Issues in Recontacting Subjects Who Enrolled in Research as a Minor

scientific article published on October 2015

Convening a 407 panel for research not otherwise approvable: "Precursors to diabetes in Japanese American youth" as a case study.

scientific article published in June 2004

Decision making in liver transplantation--limited application of the liver donor risk index

scientific article

Delegating Decision-Making Authority To a Surrogate

scientific article published on 01 December 2019

Describing how children with life threatening complex chronic conditions die.

scientific article published in February 2018

Developing an ethics framework for living donor transplantation

scientific article published on 04 July 2018

Development of a Donor-Centered Approach to Risk Assessment: Rebalancing Nonmaleficence and Autonomy

scientific article published on 13 April 2015

Different standards are not double standards: all elective surgical patients are not alike

scientific article published on January 1, 2012

Disclosing Health and Health Behavior Information between Living Donors and Their Recipients

scientific article

Disclosing misattributed paternity.

scientific article published in April 1996

Do genetic relationships create moral obligations in organ transplantation?

scientific article published in January 2002

Do healthy children deserve greater protection in medical research?

scientific article

Do not resuscitate orders and iatrogenic arrest during dialysis: should "No" mean "No"?

scientific article published on 01 September 2003

Do peer guidelines or editorial policies affect the reporting and discussion of race and ethnicity in pediatric research?

scientific article published in January 2005

Does familiarity breed acceptance? The influence of policy on physicians' attitudes toward newborn screening programs

scientific article published in May 2006

Effect of family history on disclosure patterns of cystic fibrosis carrier status ⬇️

scientific article published on May 15, 2003

Empirical data about women's attitudes toward a biobank focused on pregnancy outcomes

scientific article published on 01 February 2008

Empirical data about women's attitudes towards a hypothetical pediatric biobank

scientific article published on 01 February 2008

Engaging African-Americans about biobanks and the return of research results ⬇️

scientific article published on March 28, 2012

Engaging family stakeholders in post-discharge NICU missions

scientific article published on 01 April 2019

Ethical Analysis and Policy Recommendations Regarding Domino Liver Transplantation

Ethical Issues Raised by the Media Portrayal of Adolescent Transplant Refusals

scientific article published on 01 August 2020

Ethical Issues in Newborn Sequencing Research: The Case Study of BabySeq

scientific article published on 12 November 2019

Ethical and Logistical Issues Raised by the Advanced Donation Program "Pay It Forward" Scheme

scientific article published in October 2017

Ethical and policy issues in newborn screening of children for neurologic and developmental disorders

scientific article published on 07 April 2015

Ethical and policy issues in pediatric genetics.

scientific article published in February 2008

Ethical and policy issues raised by heterozygote carrier identification and predictive genetic testing of adolescents

scientific article published in August 2011

Ethical and policy lessons to be learned from a family with inherited bone marrow failure

scientific article published on 01 November 2008

Ethical assessment of clinical asthma trials including children subjects

scientific article published on January 2004

Ethical considerations related to pregnancy in transplant recipients

scientific article published on 01 March 2006

Ethical issues in identifying and recruiting participants for familial genetic research.

scientific article published in November 2004

Ethics and professionalism in medical physics: a survey of AAPM members

scientific article published on April 2013

Ethics and professionalism in the pediatric curriculum: a survey of pediatric program directors

scientific article published on 14 September 2009

Ethics of hematopoietic stem cell transplantation in type 1 diabetes mellitus.

scientific article published in July 2007

Ethics of placebos in clinical asthma trials

scientific article published on 02 November 2005

Forty years later: the scope of bioethics revisited

scientific article published on January 2010

Fragile X screening: attitudes of genetic health professionals.

scientific article published in February 2009

From genetics to genomics: ethics, policy, and parental decision-making

scientific article published on 22 July 2008

Gender Differences in the Authorship of Original Research in Pediatric Journals, 2001-2016.

scientific article

Genetic Testing by Sports Medicine Physicians in the United States: Attitudes, Experiences, and Knowledge

scientific article published on 12 November 2018

Growth attenuation by commission and omission may be ethically justifiable in children with profound disabilities

scientific article published on 01 April 2007

Health Care Surrogacy Laws Do Not Adequately Address the Needs of Minors

scientific article published on 01 March 2020

Heterozygote carrier testing in high schools abroad: what are the lessons for the U.S.?

scientific article published on January 2006

Human subject protections in genetic research

scientific article published in January 2004

Human subjects protections in community-engaged research: a research ethics framework

scientific article

Hypoplastic left heart syndrome: a paradigm case for examining conscientious objection in pediatric practice

scientific article published on 01 July 2009

Identification and Management of Sickle Cell Trait by Young Physicians ⬇️

scientific article published on May 1, 2012

Impact of the Kidney Allocation System on Young Pediatric Recipients.

scientific article published on 19 February 2018

Implications of Disclosing Individual Results of Clinical Research

scientific article published in The Journal of the American Medical Association

In Further Defense of "Better than Best (Interest)"

scientific article published on 01 January 2019

In defense of a single standard of research risk for all children

scientific article published on 01 November 2005

In defense of the American Academy of Pediatrics Policy Statement—Children as Hematopoietic Stem Cell Donors ⬇️

scientific article published on January 24, 2011

In defense of the Hopkins Lead Abatement Studies.

scientific article published in January 2002

Incidental findings of therapeutic misconception in biobank-based research ⬇️

scientific article published on January 26, 2012

Incorporating newborn screening into prenatal care

scientific article published on 01 April 2004

Informed consent for genetic research involving pleiotropic genes: an empirical study of ApoE research

article

Informed consent in pediatric research.

scientific article

Introducing Genetic Tests With Uncertain Implications in Living Donor Kidney Transplantation: ApoL1 as a Case Study

scientific article published on 14 June 2016

Is kidney donation in the donor's best interest?

scientific article published on September 2003

It is time to revise the kidney allocation system to restore the pediatric advantage

scientific article published on 22 May 2018

Justice for children: the child as organ donor.

scientific article published in April 1994

Kidney Donor Profile Index Does Not Accurately Predict the Graft Survival of Pediatric Deceased Donor Kidneys

scientific article

Lessons to be learned from the 407 process

scientific article published on 01 January 2005

Lethal language, lethal decisions.

scientific article published in March 2003

Living Donation by Individuals with Life-Limiting Conditions

scientific article published on 01 March 2019

Living Kidney Donors Who Develop Kidney Failure: Excerpts of Their Thoughts

scientific article published on 25 May 2016

Living kidney donors and ESRD.

scientific article published on 30 April 2015

Long-term consequences of kidney donation

article published in 2009

Mandatory extended searches in all genome sequencing: "incidental findings," patient autonomy, and shared decision making

scientific article

Mandatory versus voluntary consent for newborn screening?

scientific article published on 01 December 2010

Maternal Attitudes About Sickle Cell Trait Identification in Themselves and Their Infants ⬇️

scientific article published on November 1, 2010

Maternal knowledge and attitudes about newborn screening for sickle cell disease and cystic fibrosis

scientific article published on 01 November 2009

Media appeals for directed altruistic living liver donations: lessons from Camilo Sandoval Ewen.

scientific article

Methodology matters

scientific article published on 28 February 2007

Minimizing risks: the ethics of predictive diabetes mellitus screening research in newborns

scientific article

Minority children in pediatric research.

scientific article

Minors as living solid-organ donors

scientific article published on August 2008

Missed Opportunities in the Preparticipation Physical Examination for High School Athletes

scientific article published on 21 February 2019

Motivation, risk, and benefit in living organ donation: a reply to Aaron Spital.

scientific article published in January 2005

Newborn screening for cystic fibrosis: a lesson in public health disparities

scientific article

Newborn screening for lysosomal storage diseases: an ethical and policy analysis ⬇️

scientific article published on December 22, 2011

Newborn screening for sickle cell disease: whose reproductive benefit? ⬇️

scientific article published on November 9, 2011

Newborn screening technology: proceed with caution

scientific article

Newborns and other children: in defense of differential attitudes and treatment

scientific article published on 15 February 2013

Nine key functions for a human subjects protection program for community-engaged research: points to consider

scientific article

Outcomes after kidney donation

scientific article published on 01 July 2014

Paediatricians' attitudes and practices towards HPV vaccination

scientific article published on 29 July 2008

Parental attitudes and beliefs regarding the genetic testing of children

scientific article

Parental attitudes regarding newborn screening of PKU and DMD.

scientific article published in July 2003

Parental understanding of newborn screening for cystic fibrosis after a negative sweat-test

scientific article published on 10 January 2011

Parents: Critical Stakeholders in Expanding Newborn Screening ⬇️

scientific article published on June 22, 2012

Patient autonomy: imperfect, insufficient, but still quite necessary

scientific article published on 01 January 2002

Pediatric Decision Making Requires Both Guidance and Intervention Principles

journal article; published in The American Journal of Bioethics in 2018

Pediatric Professionals' Attitudes about Secondary Findings in Genomic Sequencing of Children

scientific article published on 26 February 2015

Pediatric Resident Preparedness and Educational Experiences With Informed Consent

scientific article

Pediatric bioethics: reintroducing the parents.

scientific article published in January 1999

Pediatric research and the federal minimal risk standard

scientific article published on 01 February 2006

Pediatricians are more supportive of the human papillomavirus vaccine than the general public

scientific article

Pediatricians' attitudes about screening newborns for infectious diseases

scientific article published on 9 December 2008

Pediatricians' attitudes toward expanding newborn screening

scientific article published on 01 October 2005

Pediatricians' attitudes toward resuscitation in children with chronic illnesses

scientific article published in May 2009

Phase I research and the meaning of direct benefit

scientific article published on July 2006

Policy considerations in designing a fragile X population screening program

scientific article published on October 2008

Potential inefficiency of a proposed efficiency model for kidney allocation

scientific article published in April 2008

Practical and ethical challenges to paired exchange programs

scientific article published on 01 October 2004

Predictive genetic testing for conditions that present in childhood

scientific article published in September 2002

Predictive genetic testing of children and the role of the best interest standard

scientific article published in January 2013

Premature guidance about whole-genome sequencing

scientific article published on August 2013

Prisoners as Living Donors: A Vulnerabilities Analysis

scientific article published in January 2018

Professional and personal attitudes about access and confidentiality in the genetic testing of children: a pilot study

scientific article published on 01 January 2003

Protect NIH's DNA advisory committee

scientific article published in Science

Public Attitudes and Knowledge About Youth Sports Participation and Concussion Risk in an Urban Area

scientific article published on 28 October 2018

Qualitative insights into how pediatric pay-for-performance programs are being designed.

scientific article published in May 2009

Racial disparities in reaching the renal transplant waitlist: is geography as important as race?

scientific article published on 27 April 2015

Re-Opening Schools Safely: The Case for Collaboration, Constructive Disruption of Pre-COVID Expectations, and Creative Solutions

scientific article published on 20 May 2020

Reactions of pediatricians to refusals of medical treatment for minors

scientific article published on 28 April 2010

Recommendations for returning genomic incidental findings? We need to talk!

scientific article

Reflections on Charlie Gard and the Best Interests Standard From Both Sides of the Atlantic Ocean

scientific article published on 01 August 2020

Relational autonomy: moving beyond the limits of isolated individualism

scientific article published in February 2014

Reply

scientific article published on 15 May 2017

Reporting Incidental Findings in Genomic Scale Clinical Sequencing-A Clinical Laboratory Perspective: A Report of the Association for Molecular Pathology

scientific article published on 11 February 2015

Reproduction and transplantation: report on the AST Consensus Conference on Reproductive Issues and Transplantation

scientific article

Research ethics education for community-engaged research: a review and research agenda

scientific article

Respecting Choice in Definitions of Death

scientific article published on 01 November 2018

Responding to the challenge of the children's health act: an introduction to children in research

scientific article

Restricting living-donor-cadaver-donor exchanges to ensure that standard blood type O wait-list candidates benefit

scientific article published on 01 September 2004

Risk, Prognosis, and Unintended Consequences in Kidney Allocation ⬇️

scientific article published on March 16, 2011

Saving lives is more important than abstract moral concerns: financial incentives should be used to increase organ donation

scientific article published on October 2009

Screening for conditions that do not meet the Wilson and Jungner criteria: the case of Duchenne muscular dystrophy.

scientific article

Shared decision making in deceased-donor transplantation

scientific article published on 01 July 2006

Should Medical Errors Be Disclosed to Pediatric Patients? Pediatricians' Attitudes Toward Error Disclosure

scientific article published on 29 August 2015

Should We Mandate a COVID-19 Vaccine for Children?

scientific article published on 14 September 2020

Should a PVS patient be a live organ donor?

scientific article published in January 2006

Should all living donors be treated equally?

scientific article

Should children and adolescents undergo genetic testing?

scientific article published on November 2004

Sickle cell trait screening in athletes: pediatricians' attitudes and concerns

scientific article published on 08 August 2011

Solid organ donation between strangers

scientific article published on 01 January 2002

Spinal Muscular Atrophy: Past, Present, and Future

scientific article published on 01 August 2019

Surrogate Decision Making for Children: Who Should Decide?

scientific article published on 07 November 2019

Teaching and assessment of ethics and professionalism: a survey of pediatric program directors

scientific article published in November 2013

Technical report: Ethical and policy issues in genetic testing and screening of children

scientific article

The 1966 Ciba Symposium on Transplantation Ethics: 50 Years Later

scientific article published on 25 March 2016

The Advantages and Challenges of Testing Children for Heritable Predisposition to Cancer

scientific article

The Best Interest Standard: Same Name but Different Roles in Pediatric Bioethics and Child Rights Frameworks

scientific article published in January 2017

The Challenges of Incorporating Research Ethics Consultation Into Institutional Human Subjects Protections Programs

scientific article published in January 2018

The Complexities of Ascertaining Public Preferences for Newborn Screening Policies

scientific article published on 17 July 2018

The Harms of Carrier Status Identification: A Cautionary Warning Against Newborn Sequencing

scientific article published on 14 May 2020

The OHRP and SUPPORT

scientific article

The Role of Gender in Publication in The Journal of Pediatrics 2015-2016: Equal Reviews, Unequal Opportunities

scientific article published on 17 July 2018

The University of Chicago Institute for Translational Medicine

scientific article

The challenges of collaboration for academic and community partners in a research partnership: points to consider

scientific article

The ethical limits in expanding living donor transplantation.

scientific article published in June 2006

The ethics of hematopoietic stem cell donation by minors

scientific article published on 01 November 2009

The ethics of type 1 diabetes prediction and prevention research

article

The moral and legal need to disclose despite a certificate of confidentiality

scientific article

The moral status of the newborn and its implications for medical decision making.

scientific article published in January 2007

The need for consistency in 407 reviews

scientific article published in September 2004

The need to promote all pediatric stem cell donors' understanding and interests

scientific article published on 01 May 2014

The participation of children in nontherapeutic diabetes research in the US.

scientific article published in May 2007

The participation of minorities in published pediatric research.

scientific article

Theory and Practice of Pediatric Bioethics

scientific article

Threading the Needle for the Tiniest Babies

scientific article published in November 2017

To tell or not to tell: attitudes of transplant surgeons and transplant nephrologists regarding the disclosure of recipient information to living kidney donors.

scientific article published on 20 November 2015

Universal state newborn screening programs can reduce health disparities.

scientific article published in January 2015

Unspoken ambivalence in kinship obligation in living donation

scientific article published on 12 June 2018

We need a registry of living kidney donors.

scientific article published in November 2007

What is wrong with the Physician Charter on Professionalism

scientific article published on 01 July 2006

Whether and why pediatric researchers report race and ethnicity

scientific article

Why "doctor, if this were your child, what would you do?" deserves an answer

scientific article published on 01 March 2003

Why Most Bad Decisions About Vaccines Do Not Constitute Child Neglect

scientific article published on 17 September 2020

Young physicians' recall about pediatric training in ethics and professionalism and its practical utility

scientific article published on 21 May 2013

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