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List of works by Ellen Wright Clayton

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A second generation human haplotype map of over 3.1 million SNPs

scientific article
Genome-wide detection and characterization of positive selection in human populations

scientific article
Development of a large-scale de-identified DNA biobank to enable personalized medicine.

scientific article published on 21 May 2008
Managing incidental findings in human subjects research: analysis and recommendations

scientific article published on January 2008
Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

scientific article
Operational implementation of prospective genotyping for personalized medicine: the design of the Vanderbilt PREDICT project.

scientific article published on 16 May 2012
Return of genomic results to research participants: the floor, the ceiling, and the choices in between

scientific article
Recommendations for returning genomic incidental findings? We need to talk!

scientific article
Principles of human subjects protections applied in an opt-out, de-identified biobank

scientific article
Ethical, legal, and social implications of genomic medicine

scientific article
Factors That Prompted Families to File Medical Malpractice Claims Following Perinatal Injuries

scientific article published on March 11, 1992
Beyond myalgic encephalomyelitis/chronic fatigue syndrome: an IOM report on redefining an illness

scientific article published in March 2015
The legal risks of returning results of genomics research

scientific article published on 09 February 2012
Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network

scientific article (publication date: April 2012)
Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine

scientific article
Addressing the Ethical Challenges in Genetic Testing and Sequencing of Children

scientific article published on January 1, 2014
Implications of Disclosing Individual Results of Clinical Research

scientific article published in The Journal of the American Medical Association
Newborn screening technology: proceed with caution

scientific article
Mandatory extended searches in all genome sequencing: "incidental findings," patient autonomy, and shared decision making

scientific article
A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.

scientific article
Two large-scale surveys on community attitudes toward an opt-out biobank

scientific article
Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience

scientific article (publication date: July 2011)
A multi-investigator/institutional DNA bank for AIDS-related human genetic studies: AACTG Protocol A5128.

scientific article
Informed consent and biobanks

scientific article published in January 2005
Ethical, legal, and social implications of incorporating genomic information into electronic health records

scientific article published on 12 September 2013
Incidental findings in genetics research using archived DNA

scientific article
Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium

scientific article
Stakeholder engagement: a key component of integrating genomic information into electronic health records

scientific article
Whole-genome sequencing in newborn screening? A statement on the continued importance of targeted approaches in newborn screening programmes

scientific article published on 28 January 2015
Identifiability in biobanks: models, measures, and mitigation strategies

scientific article
The OHRP and SUPPORT

scientific article
Return of research results from genomic biobanks: cost matters

scientific article published on 30 August 2012
Managing incidental genomic findings: legal obligations of clinicians

scientific article published on 28 February 2013
Privacy in the Genomic Era

scientific article
Openness of patients' reporting with use of electronic records: psychiatric clinicians' views

scientific article
Mapping the incidentalome: estimating incidental findings generated through clinical pharmacogenomics testing.

scientific article published on 29 November 2012
Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine

article
“Human Non-Subjects Research”: Privacy and Compliance

article
Currents in contemporary ethics. State run newborn screening in the genomic era, or how to avoid drowning when drinking from a fire hose

scientific article
The complex relationship of genetics, groups, and health: what it means for public health

scientific article
Parental Perspectives on a Pediatric Human Non-Subjects Biobank

scientific article
What patients and their relatives think about testing for BMPR2

scientific article published on 13 September 2008
Can I be sued for that? Liability risk and the disclosure of clinically significant genetic research findings

scientific article
Talking with parents before newborn screening

scientific article
Practical guidance on informed consent for pediatric participants in a biorepository

scientific article
Genetic testing in children.

scientific article published on June 1997
Biobanks: too long to wait for consent

scientific article published in November 2009
Teaching about cystic fibrosis carrier screening by using written and video information

scientific article published on July 1, 1995
Eliciting preferences on secondary findings: the Preferences Instrument for Genomic Secondary Results.

scientific article
Pharmacogenomics and children: meeting the ethical challenges

scientific article published on January 2003

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