Search filters

List of works by Ellen Wright Clayton

A game theoretic framework for analyzing re-identification risk

scientific article

A multi-investigator/institutional DNA bank for AIDS-related human genetic studies: AACTG Protocol A5128.

scientific article

A ray of light about frozen embryos

scientific article published on 01 December 1992

A second generation human haplotype map of over 3.1 million SNPs

scientific article

A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.

scientific article

A systematic literature review of individuals' perspectives on privacy and genetic information in the United States

scientific article published in PLoS ONE

Addressing the ethical challenges in genetic testing and sequencing of children

scientific article

Approaches to carrier testing and results disclosure in translational genomics research: The clinical sequencing exploratory research consortium experience

scientific article published on 21 August 2018

Are you and your waiting room's televised "expert" saying the same thing?

scientific article published on 01 March 1993

Attitudes and Beliefs of Sports Medicine Providers to Sickle Cell Trait Screening of Student Athletes

scientific article published on 01 November 2011

Balancing Expediency and Scientific Rigor in SARS-CoV-2 Vaccine Development

scientific article published on 04 May 2020

Beyond myalgic encephalomyelitis/chronic fatigue syndrome: an IOM report on redefining an illness

scientific article published in March 2015

Biobanks: too long to wait for consent

scientific article published in November 2009

Can I be sued for that? Liability risk and the disclosure of clinically significant genetic research findings

scientific article

Childhood Vaccine Exemptions: A Broader Perspective Is Required

scientific article published on 18 March 2016

Children in methamphetamine homes: a survey of physicians practicing in southeast Tennessee

scientific article published in October 2007

Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine

scientific article

Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine

article

Clinical and ethical considerations in managing carrier detection

scientific article

Compensation under the National Childhood Vaccine Injury Act

scientific article published on 01 April 1990

Conducting a large, multi-site survey about patients' views on broad consent: challenges and solutions

scientific article

Confronting Commercial Sexual Exploitation and Sex Trafficking of Minors

article

Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium

scientific article

Correspondence re: Mills SE, Kempson RL, Fechner RE, et al.: Guardians of the wax ... and the patient. Mod Pathol 8:699, 1995

scientific article published on 01 April 1996

Currents in contemporary ethics. State run newborn screening in the genomic era, or how to avoid drowning when drinking from a fire hose

scientific article

Data re-identification: societal safeguards

scientific article published on March 2013

Development of a large-scale de-identified DNA biobank to enable personalized medicine.

scientific article published on 21 May 2008

Disclosure of Genetic Risk Revealed in a Research Study

scientific article published on 01 February 2020

Dobbs and the future of health data privacy for patients and healthcare organizations

scientific article published in 2022

Does the law require reinterpretation and return of revised genomic results?

scientific article published on 08 January 2021

Doping Doctors: The Influence of the Marketing Departments of Pharmaceutical Companies on Physician and Researcher Behavior in Japan

scientific article published on February 2016

Eliciting preferences on secondary findings: the Preferences Instrument for Genomic Secondary Results.

scientific article

Enrichment sampling for a multi-site patient survey using electronic health records and census data

scientific article published on 01 March 2019

Ethical Issues in Newborn Sequencing Research: The Case Study of BabySeq

scientific article published on 12 November 2019

Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience

scientific article (publication date: July 2011)

Ethical and practical challenges to studying patients who opt out of large-scale biorepository research

scientific article published on 25 July 2013

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

scientific article

Ethical, legal, and social implications of genomic medicine

scientific article

Ethical, legal, and social implications of incorporating genomic information into electronic health records

scientific article published on 12 September 2013

Evaluating pharmacogenetic tests: a case example

scientific article published in March 2004

Expanding Access to Large-Scale Genomic Data While Promoting Privacy: A Game Theoretic Approach

scientific article

Experimental arrest of cerebral blood flow in human subjects: the red wing studies revisited

scientific article published on January 2011

Exploring options for expanded newborn screening

article

Factors That Prompted Families to File Medical Malpractice Claims Following Perinatal Injuries ⬇️

scientific article published on March 11, 1992

False positive newborn screening results are not always benign.

scientific article

From Ventilators to Vaccines: Reframing the Ethics of Resource Allocation

scientific article published on 01 July 2020

Genetic testing in children.

scientific article published on June 1997

Genetic testing is different. Essay review.

scientific article

Genome-wide detection and characterization of positive selection in human populations

scientific article

Health and kinship matter: Learning about direct-to-consumer genetic testing user experiences via online discussions

scientific article published on 08 September 2020

How Much Control Do Children and Adolescents Have over Genomic Testing, Parental Access to Their Results, and Parental Communication of Those Results to Others?

scientific article

Identifiability in biobanks: models, measures, and mitigation strategies

scientific article

Implications of Disclosing Individual Results of Clinical Research

scientific article published in The Journal of the American Medical Association

Improving recommendations for genomic medicine: building an evolutionary process from clinical practice advisory documents to guidelines

scientific article published on 04 June 2019

Incidental findings in genetics research using archived DNA

scientific article

Informed consent and biobanks

scientific article published in January 2005

Insurance Coverage Policies for Pharmacogenomic and Multi-Gene Testing for Cancer.

scientific article

Issues in state newborn screening programs ⬇️

scientific article published on October 1, 1992

It's all in the timing: calibrating temporal penalties for biomedical data sharing

scientific article published on 26 September 2017

LGBTQ+ Perspectives on Conducting Genomic Research on Sexual Orientation and Gender Identity ⬇️

scientific article published on 26 May 2022

Legal and Ethical Commentary: The Dangers of Reading Duty Too Broadly

Lessons (re)learned from cystic fibrosis carrier screening

scientific article published on 01 November 1999

Let us ask better questions

article

Managing incidental findings in human subjects research: analysis and recommendations

scientific article published on January 2008

Managing incidental genomic findings: legal obligations of clinicians

scientific article published on 28 February 2013

Mandatory extended searches in all genome sequencing: "incidental findings," patient autonomy, and shared decision making

scientific article

Mapping the incidentalome: estimating incidental findings generated through clinical pharmacogenomics testing.

scientific article published on 29 November 2012

Natural settings trials--improving the introduction of clinical genetic tests.

scientific article published on January 2004

Navigating the research-clinical interface in genomic medicine: analysis from the CSER Consortium

scientific article published on 31 August 2017

Newborn screening technology: proceed with caution

scientific article

Openness of patients' reporting with use of electronic records: psychiatric clinicians' views

scientific article

Operational implementation of prospective genotyping for personalized medicine: the design of the Vanderbilt PREDICT project.

scientific article published on 16 May 2012

Parental Perspectives on a Pediatric Human Non-Subjects Biobank

scientific article

Parents' attitudes toward consent and data sharing in biobanks: A multisite experimental survey

scientific article published on 01 July 2018

Patient awareness and approval for an opt-out genomic biorepository.

scientific article published on June 2013

Patient perspectives on variant reclassification after cancer susceptibility testing

scientific article published on 24 April 2020

Patients' willingness to reconsider cancer genetic testing after initially declining: Mention it again

scientific article published on 25 September 2019

Pediatrics ethics: a view from the United States

scientific article published on 01 August 1996

Pharmacogenomics and children: meeting the ethical challenges

scientific article published on January 2003

Physicians’ perspectives on receiving unsolicited genomic results

scientific article published on 05 July 2018

Planning the Genome Institute's Future

scientific article published in Science

Practical guidance on informed consent for pediatric participants in a biorepository

scientific article

Premature guidance about whole-genome sequencing

scientific article published on August 2013

Principles of human subjects protections applied in an opt-out, de-identified biobank

scientific article

Privacy in the Genomic Era

scientific article

Protecting Life While Preserving Liberty: Ethical Recommendations for Suicide Prevention With Artificial Intelligence

scholarly article by Lindsey C McKernan et al published 2018 in Frontiers in Psychiatry

Publisher Correction: Sociotechnical safeguards for genomic data privacy

correction of a scholarly article

Recommendations for returning genomic incidental findings? We need to talk!

scientific article

Religious and spiritual issues in medical genetics

scientific article published on February 2009

Removing the shadow of the law from the debate about genetic testing of children

Reproductive genetic testing: regulatory and liability issues

scientific article

Responding to the Sexual Exploitation of Minors

Response to Patryn and Zagaja.

scientific article

Return of genomic results to research participants: the floor, the ceiling, and the choices in between

scientific article

Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network

scientific article (publication date: April 2012)

Return of research results from genomic biobanks: a call for data

article

Return of research results from genomic biobanks: cost matters

scientific article published on 30 August 2012

Returning Results in the Genomic Era: Initial Experiences of the eMERGE Network

scientific article published on 27 April 2020

Satisfaction With Obstetric Care: Relation to Neonatal Intensive Care

scientific article published on 01 February 1998

Screening and treatment of newborns.

scientific article published in January 1992

Seeking Genomic Knowledge: The Case for Clinical Restraint

scientific article published on August 2013

Sharing Individual Research Results with Biospecimen Contributors: Counterpoint ⬇️

scientific article published on February 1, 2012

Sickle cell trait screening in athletes: pediatricians' attitudes and concerns

scientific article published on 08 August 2011

So what are we going to do about research using clinical information and samples?

scientific article published on 01 November 2004

Sociotechnical safeguards for genomic data privacy

scientific article published in 2022

Stakeholder engagement: a key component of integrating genomic information into electronic health records

scientific article

State-offered ethnically targeted reproductive genetic testing.

scientific article

Talking with parents before newborn screening

scientific article

Teaching about cystic fibrosis carrier screening by using written and video information ⬇️

scientific article published on July 1, 1995

Ten fingers, ten toes: newborn screening for untreatable disorders

scientific article published on 01 January 2009

Testing Teens: A Commentary

The OHRP and SUPPORT

scientific article

The complex relationship of genetics, groups, and health: what it means for public health

scientific article

The dispersion of genetic technologies and the law

scientific article published on 01 May 1995

The dispersion of genetic technologies and the law.

scientific article published on May 1995

The ethical health lawyer: an empirical assessment of moral decision making

scientific article published in January 2009

The legal risks of returning results of genomics research

scientific article published on 09 February 2012

The role of distress in uptake and response to predisposition genetic testing: the BMPR2 experience

scientific article published on 15 November 2011

The web of relations: thinking about physicians and patients

scientific article published on 01 January 2006

Two large-scale surveys on community attitudes toward an opt-out biobank.

scientific article

Using game theory to thwart multistage privacy intrusions when sharing data

scientific article published in 2021

What Results Should Be Returned from Opportunistic Screening in Translational Research?

scientific article published on 01 March 2020

What is Really at Stake in Baby K? A Response to Ellen Flannery ⬇️

scientific article published on January 1, 1995

What patients and their relatives think about testing for BMPR2

scientific article published on 13 September 2008

What should be the role of public health in newborn screening and prenatal diagnosis?

scientific article

What should the law say about disclosure of genetic information to relatives?

scientific article published on 01 January 1998

When Participants in Genomic Research Grow Up: Contact and Consent at the Age of Majority

scientific article published on 15 October 2015

Whole-genome sequencing in newborn screening? A statement on the continued importance of targeted approaches in newborn screening programmes

scientific article published on 28 January 2015

Whose DNA is it anyway? Relationships between families and researchers.

scientific article

Why the Americans with Disabilities Act Matters for genetics

scientific article published in June 2015

“Human Non-Subjects Research”: Privacy and Compliance

article

Paulina is supported by:

About Paulina

Help