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List of works by Mark A. Rothstein

A Review of: “Stuart J. Youngner, Martha W. Anderson, and Renie Schapiro (eds.), Transplanting Human Tissue: Ethics, Policy, and Practice”

journal article; published in The American Journal of Bioethics in 2006

An unbiased response to the open peer commentaries on "does consent bias research?".

scientific article published in January 2013

Autonomy and paternalism in health policy: currents in contemporary bioethics

scientific article published in January 2014

Biobanking Research and Privacy Laws in the United States

scientific article published on March 2016

But is he genetically diseased?

scientific article

California Takes the Lead on Data Privacy Law

scientific article published on 01 September 2019

Canavan decision favors researchers over families

scientific article published on 01 January 2003

Citizen Science on Your Smartphone: An ELSI Research Agenda

scientific article

Comparative Approaches to Biobanks and Privacy

scientific article

Compelled Disclosures of Health Records: Updated Estimates

scientific article

Compelled authorizations for disclosure of health records: magnitude and implications

scientific article

Compelled disclosure of health information: protecting against the greatest potential threat to privacy

scientific article published in June 2006

Confidentiality, privacy, and security of genetic and genomic test information in electronic health records: points to consider

scientific article published in July 2008

Currents in Contemporary Bioethics ⬇️

scientific article published on 01 January 2012

Currents in contemporary bioethics. Access to sensitive information in segmented electronic health records

article

Currents in contemporary bioethics. Constitutional right to informational health privacy in critical condition

article

Currents in contemporary bioethics. Health care reform and medical malpractice claims

scientific article

Currents in contemporary bioethics. Who will treat Medicaid and uninsured patients? Retired providers can help

scientific article published in January 2011

Currents in contemporary bioethics: physicians' duty to inform patients of new medical discoveries: the effect of health information technology

scientific article

Currents in contemporary ethics. GINA, the ADA, and genetic discrimination in employment

scientific article published on January 2008

Currents in contemporary ethics. Improving privacy in research by eliminating informed consent? IOM Report misses the mark

scientific article

Currents in contemporary ethics. Malpractice immunity for volunteer physicians in Public Health Emergencies: adding insult to injury

scientific article

Currents in contemporary ethics. Research privacy under HIPAA and the common rule

scientific article

Currents in contemporary ethics. Should health care providers get treatment priority in an influenza pandemic?

scientific article

DNA-based identity testing and the future of the family: a research agenda.

scientific article published on January 2002

Deidentification and Its Discontents: Response to the Open Peer Commentaries ⬇️

scientific article published on September 1, 2010

Disclosing Decedents’ Research Results to Relatives Violates the HIPAA Privacy Rule ⬇️

scientific article published on January 1, 2012

Disclosing genetic information to family members without consent: Five Australian case studies

scientific article published on 14 August 2020

Discrimination based on genetic information

scientific article published on January 1, 1992

Do privacy and security regulations need a status update? Perspectives from an intergenerational survey

scientific article published on 19 September 2017

Does Consent Bias Research? ⬇️

scientific article published on January 1, 2013

Doubling down on forensic twin studies

Ebola, quarantine, and the law.

scientific article published on January 2015

Eliciting preferences on secondary findings: the Preferences Instrument for Genomic Secondary Results.

scientific article

Employer Wellness Programs Challenged in Court

scientific article published in January 2017

Encouraging compliance with quarantine: a proposal to provide job security and income replacement

Ensuring Compliance With Quarantine by Undocumented Immigrants and Other Vulnerable Groups: Public Health Versus Politics

scientific article published on 18 July 2019

Epigenetic exceptionalism

scientific article

Epigenome data release: a participant-centered approach to privacy protection

scientific article

Ethical Issues in Big Data Health Research: Currents in Contemporary Bioethics

scientific article

Ethical implications of epigenetics research

scientific article published on April 2009

Ethical research and minorities

scientific article published on 17 October 2013

Ethical, legal and social implications of incorporating personalized medicine into healthcare

scientific article

Ethical, legal, and social implications of incorporating genomic information into electronic health records

scientific article published on 12 September 2013

Expanding the ethical analysis of biobanks

scientific article

From SARS to Ebola: Legal and Ethical Considerations for Modern Quarantine

article published in 2015

GINA at Ten and the Future of Genetic Nondiscrimination Law

scientific article published on 01 May 2018

Genetic Stalking and Voyeurism: A New Challenge to Privacy ⬇️

scientific article published on March 1, 2009

Genetic discrimination in employment and the Americans with Disabilities Act

scientific article published on January 1, 1992

Genetic discrimination in employment is indefensible

scientific article published in November 2013

Genetic exceptionalism & legislative pragmatism

scientific article published on 01 July 2005

Genetic exceptionalism and legislative pragmatism

scientific article

Genetic justice

scientific article published in June 2005

Genetics and susceptibility to toxic chemicals: do you (or should you) know your genetic profile?

scientific article

HIPAA Privacy Rule 2.0 ⬇️

scientific article published on January 1, 2013

Health privacy in the electronic age.

scientific article

Health risk reduction programs in employer-sponsored health plans: Part I-efficacy

scientific article published on August 2009

Health risk reduction programs in employer-sponsored health plans: Part II-law and ethics

scientific article

How Genetics Might Affect Real Property Rights: Currents in Contemporary Bioethics

scientific article published in March 2016

INTRODUCTION: Harmonizing Privacy Laws to Enable International Biobank Research

scientific article published on December 2015

Information technology is considered a potentially transformative element in the field of health care by purchasers, regulators, providers, vendors, and consumers alike. Introduction

scientific article published on 01 January 2010

Innovations of the Americans with Disabilities Act: confronting disability discrimination in employment

scientific article published in June 2015

International Health Research after Schrems v. Data Protection Commissioner

scientific article

Introduction: Unregulated Health Research Using Mobile Devices

scientific article published on 01 March 2020

Is Deidentification Sufficient to Protect Health Privacy in Research? ⬇️

scientific article published on September 1, 2010

Is GINA worth the wait?

scientific article

Is HIPAA flawed, or unnecessary?

scientific article published in July 2006

Keeping your genes private

scientific article published on 01 September 2008

LIMITING OCCUPATIONAL MEDICAL EVALUATIONS UNDER THE AMERICANS WITH DISABILITIES ACT AND THE GENETIC INFORMATION NONDISCRIMINATION ACT.

scientific article published in January 2015

Legal Conceptions of Equality in the Genomic Age ⬇️

scientific article published on January 1, 2007

Legal and Ethical Challenges of International Direct-to-Participant Genomic Research: Conclusions and Recommendations

scientific article published on 01 December 2019

Legal aspects of genetics, work and insurance in North America and Europe ⬇️

scientific article published on June 1, 1996

Looking Beyond GINA: Policy Approaches to Address Genetic Discrimination

scientific article published on 21 January 2020

Mandatory extended searches in all genome sequencing: "incidental findings," patient autonomy, and shared decision making

scientific article

Modernizing Research Regulations Is Not Enough: It's Time to Think Outside the Regulatory Box.

scientific article published in July 2017

On the edge of tomorrow: fitting genomics into public health policy

scientific article published on 01 January 2002

Pain Management and Public Health: Introduction to the Special Section

article

Pharmacogenetics: ethical problems and solutions

scientific article

Pharmacogenomics: ethical concerns for research and pharmacy practice.

scientific article

Points-to-consider on the return of results in epigenetic research

Pragmatic Tools for Sharing Genomic Research Results with the Relatives of Living and Deceased Research Participants

scientific article published on 27 March 2018

Predictive Health Information and Employment Discrimination under the ADA and GINA

scientific article published on 01 September 2020

Premature guidance about whole-genome sequencing

scientific article published on August 2013

Preventing Conflicts of Interest of NFL Team Physicians

scientific article published in November 2016

Preventing the discovery of plaintiff genetic profiles by defendants seeking to limit damages in personal injury litigation

scientific article published on 01 January 1996

Privacy Risks of Interoperable Electronic Health Records: Segmentation of Sensitive Information Will Help

scientific article published on 01 December 2019

Promoting public health in health care facilities

scientific article published on 17 April 2014

Public Health Planning for Pets

scientific article published on 01 December 2017

Public Health and Privacy in the Pandemic

scientific article published on 02 July 2020

Putting the Genetic Information Nondiscrimination Act in context

scientific article published on 01 September 2008

Recommendations for returning genomic incidental findings? We need to talk!

scientific article

Reconsidering the duty to warn genetically at-risk relatives

scientific article published in February 2018

Regulation of International Direct-to-Participant Genomic Research: Symposium Introduction

scientific article published on 01 December 2019

Regulatory Landscape of International Direct-to-Participant (DTP) Genomic Research: Time to Untie the Gordian Knot?

scientific article published on 01 June 2019

Response to open peer commentaries on "Compelled authorizations for disclosure of health records: magnitude and implications".

scientific article published in March 2007

Rethinking the meaning of public health

scientific article published in January 2002

Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations

scientific article

Risk of re-identification of epigenetic methylation data: a more nuanced response is needed

scientific article

Rothstein responds

scientific article published on 19 March 2015

Science and society: applications of behavioural genetics: outpacing the science?

scientific article

Should researchers disclose results to descendants?

scientific article

Some Lingering Concerns about the Precision Medicine Initiative: Currents in Contemporary Bioethics

scientific article published on 01 September 2016

Tarasoff Duties after Newtown

scientific article published in March 2014

The 1918 Influenza Pandemic: Lessons Learned and Not-Introduction to the Special Section

scientific article published on 01 November 2018

The AbioCor artificial replacement heart: bioengineering meets bioethics

scientific article published in April 2002

The Coronavirus Pandemic: Public Health and American Values

scientific article published on 01 June 2020

The End of the HIPAA Privacy Rule? Currents in Contemporary Bioethics

scientific article published on 01 June 2016

The Hippocratic bargain and health information technology

scientific article

The Moral Challenge of Ebola

scientific article

The Occupational Safety and Health Act at 50: Introduction to the Special Section

scientific article published on 01 May 2020

The Opioid Crisis and the Need for Compassion in Pain Management

scientific article published on 01 August 2017

The clone age

scientific article published on 01 July 1997

The expanding use of DNA in law enforcement: what role for privacy?

scientific article published in January 2006

The future of public health ethics

article

The ghost in our genes: legal and ethical implications of epigenetics.

scientific article

The growth of health law and bioethics

article

The law of genetic privacy: applications, implications, and limitations

scientific article published on 14 May 2019

The role of IRBs in research involving commercial biobanks

scientific article published in January 2002

The role of law in the development of American bioethics

scientific article

The use of genetic information for nonmedical purposes

scientific article published on January 1, 1994

Tiered disclosure options promote the autonomy and well-being of research subjects

scientific article published in November 2006

Time to End the Use of Genetic Test Results in Life Insurance Underwriting

scientific article published on 01 September 2018

Transgenerational epigenetics and environmental justice

scientific article published in July 2017

Unregulated Health Research Using Mobile Devices: Ethical Considerations and Policy Recommendations

scientific article published on 01 March 2020

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