Mapping the differences in care for 5,000 spinal muscular atrophy patients, a survey of 24 national registries in North America, Australasia and Europe
scientific article published on 27 October 2013
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author: Thomas Sejersen, Hanns Lochmüller, Rachel Thompson, Dana Craiu, Janbernd Kirschner, Christophe Beroud, Volker Straub, Anna Kostera-Pruszczyk, Haluk Topaloğlu, Anna Łusakowska, Richard H. Roxburgh, Jan J Verschuuren, Lawrence Korngut
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