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National registries of rare diseases in Europe: an overview of the current situation and experiences

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Description scientific article published on 9 September 2014
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author: Herman van Oyen  Luciano Vittozzi  Rumen Stefanov  Domenica Taruscio  Manuel Posada  Ketil R. Heimdal  Georgi Iskrov 

Publication date September 9, 2014
Language English
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