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If you build a rare disease registry, will they enroll and will they use it? Methods and data from the National Registry of Myotonic Dystrophy (DM) and Facioscapulohumeral Muscular Dystrophy (FSHD)

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Description scientific article published on November 26, 2011
Author/s

author: Rabi Tawil 

Publication date November 26, 2011
Language English
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https://europepmc.org/articles/pmc3357007?pdf=render

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