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Engaging Patients and Caregivers Managing Rare Diseases to Improve the Methods of Clinical Guideline Development: A Research Protocol.

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Description scientific article
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author: Sean Grant  Arlene Fink  Ian Coulter  Ann Lucas  Kathi Kinnett  Brian Denger  Dmitry Khodyakov  Ann Martin  Holly Peay 

Publication date April 28, 2017
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