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Enabling External Inquiries to an Existing Patient Registry by Using the Open Source Registry System for Rare Diseases: Demonstration of the System Using the European Society for Immunodeficiencies Registry

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Description scientific article published on 07 October 2020
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author: Jens Göbel  Raphael Scheible  Christoph Klein  Stephan Ehl  Bodo Grimbacher  Holger Storf  Alexandra Nieters  Dennis Kadioglu  Marco Blum  Gerhard Kindle  Michael Folz  Stephan Rusch  Martin Boeker 

Publication date October 7, 2020
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